Marshall’s Mountain

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Marshall’s Mountain Marshall was born with Pompe Disease. His condition is progressive & lifelong. We have

The first Tracks to Trails hunt of the year was a huge success! What an incredible hunt and experiance! A huge thank you...
10/08/2026

The first Tracks to Trails hunt of the year was a huge success! What an incredible hunt and experiance! A huge thank you to Nocking Point Outfitters for providing a full bow setup as well as Hunter Bostater for guiding the hunt. We are looking forward to many more hunts, and unforgetable memories ahead!

Pictured below: Photos of Cody Davis and guide Hunter Bostater during the first Tracks to Trails Deer hunting experiance

Pancakes and pulls! 🥞🚜 Who is heading out to Farmer, Ohio THIS Saturday (10/3) for the fire department’s breakfast?! Be ...
10/01/2026

Pancakes and pulls! 🥞🚜 Who is heading out to Farmer, Ohio THIS Saturday (10/3) for the fire department’s breakfast?! Be sure to stick around for the Old School Garden Tractor pulls that afternoon 💙💚🏔️

October’s Updated Schedule and Events. The last pull for the garden tractors, Oct 24. Noon. NO HOOK FEES, Pull as many times as you’d like OSGTP buys Pizza Afterwards.

Minnesota friends—be sure to visit SweetDrip Sauna this season!
09/28/2026

Minnesota friends—be sure to visit SweetDrip Sauna this season!

4 more days!

Link in bio to book your seat.

09/25/2026

🎯🎯PREPARE FOR THE PRIZE🎯🎯

I’m honored to have participated in the CDC’s newborn screening (NBS) video campaign and to share a part of our family’s...
09/16/2026

I’m honored to have participated in the CDC’s newborn screening (NBS) video campaign and to share a part of our family’s story.

Our son’s newborn screening changed the course of his life. It led to an early diagnosis of Pompe disease and, most importantly, gave us the opportunity to begin treatment before severe disease progression occurred.

With September being newborn screening awareness month, I am reminded of the importance of sharing our experience. By telling our story, I hope to help other families understand the incredible value of newborn screening, give hope to families navigating a diagnosis, and remind decision-makers why access to comprehensive newborn screening is so important.

When Marshall was born, only 23 states were screening for Pompe disease. Today, nearly all states in the U.S. are screening for the condition. Every baby deserves the chance for the healthiest possible start. 💙💚🏔️

This was originally recorded in 2024 when I had the incredible opportunity to tour the CDC’s NBS laboratories. Many thanks to the CDC Newborn screening and molecular biology branch for seeing this project through to completion. 🫶

Families, partners, and newborn screening champions gathered at CDC...

Yum! Wicked 'Wiches & BBQ We are so excited they will be at next weekend’s pull! Be sure to stop out and grab some tasty...
09/13/2026

Yum! Wicked 'Wiches & BBQ

We are so excited they will be at next weekend’s pull! Be sure to stop out and grab some tasty food!

09/12/2026

We are 1 week away from our Biggest pull of the year. Saturday Sept 19th Noon start. Farmer Ohio. $5.00 Admission kids under 10 Free. Food trucks, silent auction, and lots of horsepower!
Tri State Mini Pullers

For some time, it was difficult to not live each moment in the overcast of a Pompe disease diagnosis. But as Marshall co...
05/28/2026

For some time, it was difficult to not live each moment in the overcast of a Pompe disease diagnosis. But as Marshall continues to grow and develop, he teaches us how to live and let live. We try to give Marshall the space to experience life on his own terms while giving ourselves permission to let him.

Going into kindergarten graduation today, I wanted to experience the moment for what it was—an exciting milestone for my saucy, red-haired child. He is every bit frolicsome and full of life and for that, we are forever grateful. In his own words, he had “the best year.” Many thanks to his amazing teacher for making this year such a beautiful success!

Kindergarten graduate today. Endless possibilities ahead. 🖤💛 🎓💪

Tomorrow Defiance County residents will be voting on a proposed tax levy for the benefit of the Defiance County DD progr...
05/05/2026

Tomorrow Defiance County residents will be voting on a proposed tax levy for the benefit of the Defiance County DD programs and services. Without a majority vote in favor of the proposed tax levy, essential programs like the Defiance county early intervention program and Good Samaritan school will be cut.

My youngest son, Marshall, benefited significantly from the early intervention (EI) program. The physical therapy services we received through EI helped us effectively support Marshall and his specialized developmental needs relating to his Pompe diagnosis. Our physical therapist was incredibly knowledgeable and not only provided excellent care to Marshall, but was an irreplaceable resource for Ross and I as we learned from her how to best help Marshall navigate and improve upon some of the physical challenges he faced because of Pompe. Yes, Marshall was also being followed by physical therapists in Cincinnati and Durham, North Carolina, but those visits were often virtual and impersonal or incredibly cumbersome to travel to. Our physical therapist through Defiance County’s EI program brought the care Marshall needed into our home and taught us how to turn play and other everyday activities into exercises that helped him improve upon his strength and mobility. And because the care she provided was so involved and personal, she even helped us recognize when Marshall needed other services like feeding therapy and speech therapy.

Without newborn screening we would have not known about Pompe disease, but it gave us so much more than a diagnosis. Newborn screening and an early diagnosis for our son also gave us the opportunity to access meaningful interventions and therapies that have truly altered the trajectory of his life.
Newborn screening, early access to treatment, AND early access to our local early intervention services have allowed Marshall to develop into the active, energetic kid he is today. We cannot let our county lose access to these important, local services. Tomorrow, please consider voting ‘FOR the tax levy’ and ensure that our community continues to have access to all of the beneficial programs that the Defiance County DD offers.

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Sherwood, OH

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