Gavin's Guerillas against Cystic Fibrosis

Gavin's Guerillas against Cystic Fibrosis Family and Friends coming together to support Gavin Steel and help raise money to find a cure for Cystic Fibrosis You are Gavin's Guerillas!

Gavin Steel is a brilliant, charming and energetic 5 year old with a zest for life. He is a ray of light on the darkest and coldest days. He's an ambassador for life and when he's not sleeping, eating or taking one of his many medical treatments, he runs around and gets into EVERYTHING! Gavin was born February 25, 2010 with Cystic Fibrosis as well as lesser known 22q11.2 microdeletion syndrome, th

e latter of which caused him to also be born missing the wall that separates the two lower chambers of the heart, along with many other issues and potential complications, both physically and developmentally. Gavin was in Golisano Children's Hospital at URMC Strong from one month to almost 6 months old. At 2 months old, on April 28, 2010, at only 6 lbs, in heart failure and failing to thrive, Gavin had open heart surgery. We are a group of family, extended family and close friends who have come together to help Gavin and support the Fight for a Cure. With help from BonaDent Dental Laboratories, our BonaDent family, Wal*Mart of Seneca Falls/Waterloo, GIANT PANDA GUERRILLA DUB SQUAD, the Just Breathe Foundation, the CFFC, Claire's Place Foundation, and many others, we have been able to successfully raise money for the Cystic Fibrosis Foundation to help add tomorrows to the lives of Gavin and 33,000 other Americans suffering from this fatal disease. Gavin's fight is like no other because he is the first and only child who has BOTH Cystic Fibrosis AND 22q. He is seen regularly by his team at Golisano Children's Hospital at URMC Strong as well as twice a year at Children's Hospital of Philadelphia's 22q and You Center, the nation's leading research and treatment center for 22Q. You are our prayer warriors, our support team, our inspiration and our cheerleaders! Gavin needs you, and we all know the power of prayer and positive energy. We will fight vigilantly until CF stands for Cure Found! Please join us in the war against CF and be one of Gavin's Guerillas!!

03/02/2019
Merry Christmas! Happy Holidays! Be well!
12/03/2017

Merry Christmas! Happy Holidays! Be well!

Check it out! Make a donation to the Just Breathe Foundation before the end of the year ave Salvatore's will match it wi...
12/28/2016

Check it out! Make a donation to the Just Breathe Foundation before the end of the year ave Salvatore's will match it with a gift card! Click the link below to find out more. Thank you Salvatore's Pizza and Soccer Sam Fantauzzo for all of your support!

If you missed Anthony Simonetti, Kyle CF Schuhart, and Brianna Collichio on the Soccer Sam Show on 12/24 listen here: http://kickthis.com/media/audio/20161224.mp3

Make a donation to the Just Breathe Foundation before the end of the year & Salvatore’s will match that
donation with a Salvatore’s gift card

12/16/2016

Can't make it to the event, but still want to be involved?

http://bit.ly/mobilebidding

We will be providing a live stream of our program on Facebook Live! Viewers at home will be able to enjoy musical performances, our keynote speaker, annual short documentary on cystic fibrosis, and participate in the cash call! cash call donor's names will appear live on our projector screens!

Instructions for cash call: bit.ly/cashcallguide

The auction is open for bidding! Visit the link below and click the START BIDDING button on the top left.

http://bit.ly/mobilebidding

12/08/2016

Tonight Gavin sang 3 songs with his first grade class at their holiday concert. It was so sweet! Gavin was so super excited to get up and sing with his friends, his smile never shrinks.... he did an awesome job and can't wait to do it again! Enjoy these short videos of him singing and be ready to smile along with Gavin!

Gavin and his family have been busy this holiday season. We're in the spirit, are you?
12/05/2016

Gavin and his family have been busy this holiday season. We're in the spirit, are you?

12/05/2016

Sally LeBlanc Zimmer was kneeling at the grave of her daughter Mya on Wednesday afternoon, clearing space for the Christmas flowers she planned to lay. Zimmer's phone rang. And the caller was letting her know that Miami Dolphins wide receiver Jarvis Landry, who had once dated Mya, was going to wear…

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