Seattle WALK to End Hydrocephalus

05/09/2026

😍

The wait is OVER! The 2026 WALK To End Hydrocephalus T-shirt is here!
All registered participants who raise $100 will receive this t-shirt.
Who's excited to rock the new t-shirt this fall?!
Click here to view our WALK sites and register today -> https://www.hydroassoc.org/find-a-walk-near-you/

04/12/2026

Diagnosing NPH can be so complicated!

The man’s changed gait was the first sign of a serious problem.

01/05/2026

2026! Let’s GO!!!!!

01/05/2026

10/17/2025

Congrats to Dr. Ellenbogen for this honor!

09/30/2025

Day 30 💙🩵 As Hydrocephalus Awareness Month comes to a close, my heart is full. 💙This month is about more than facts or ribbons — it’s about faces, stories, strength, and hope. It’s about honoring every warrior and every family walking this path with courage and love. Awareness doesn’t end today. It lives on in the conversations we start, the compassion we share, and the hope we keep alive every single day.

09/29/2025

Day 29🩵💙 Gracia has damage to her optic nerve, a result of the high pressure in her brain from hydrocephalus when she was first born. The optic nerve carries visual information from the eyes to the brain, and once it’s damaged, that vision loss can’t be reversed. We have been told of how amazing it is that she can still see as well as she does. Any additional increase in pressure or further damage could result in permanent blindness.

If there’s one thing Gracia Mia has done since day one, it’s prove the odds wrong. 💙 So we’ll keep doing what we’ve always done: taking things one step at a time, trusting her strength, and believing in the impossible. 💙

09/28/2025

Day 28💙🩵 Every story matters. Each time someone shares their journey with hydrocephalus, it helps break stigma and build understanding. There’s beauty in every step forward, no matter how different the path.

09/27/2025

Day 27 💙🩵 Being a parent of someone with Hydrocephalus —
The diagnosis changes everything. Hearing the word “hydrocephalus” is overwhelming, the tests, the specialists, the fear of the unknown. Treatment often means surgery, usually a shunt, to help drain excess fluid from the brain. Every decision feels heavy when it’s about your child’s well-being.

The emotions are constant and complicated, fear, anxiety, guilt, hope, exhaustion. You learn to live with uncertainty, watching for symptoms, bracing for complications, celebrating every good day.

Ongoing care becomes a part of life, endless appointments, scans, medications, therapy sessions, all woven into what it means to love and protect your child.

Development may come slower, but every milestone is that much more meaningful. You become your child’s biggest advocate, working with therapists and teachers to help them reach their fullest potential.

And through it all, the community matters most, other parents who get it, who offer understanding and encouragement on the hardest days. That support reminds you that you’re not alone in this journey.
💙

09/25/2025

Day 24🩵💙 My daughter Gracia has had a shunt for 16 and a half years. I sometimes wonder what it must feel like or if she even feels it. During Hydrocephalus awareness month there are all sorts of posts about all aspects of Hydrocephalus. Thought I’d share this link that has the perspective of an adult that lives day to day with Hydrocephalus. 😊 💙

https://www.hydroassoc.org/hydrocephalus-day-to-day/

09/23/2025

Day 23🩵💙 Awareness Month is about more than a ribbon or a post—it’s about honoring the lives we’ve lost far too soon, standing in solidarity with every person and family navigating the daily challenges of hydrocephalus, and fueling the fight for better treatments and a cure for future generations. It’s a time to remember, to support, and to take action so that no one walks this journey alone.