Washington RARE Action Network

Washington RARE Action Network Rare Action Network (RAN), a grassroots network of rare disease patients, caregiver, advocates and or

Take action now - share with all of your Washington friends and family!!!!!
03/24/2020

Take action now - share with all of your Washington friends and family!!!!!

Congress could use COVID-19 to strip students with disabilities of access to education by allowing schools waivers to opt-out of providing free appropriate public education.

03/15/2020
03/14/2020

In light of the coronavirus outbreak in King County, we are following Public Health’s recommendations to avoid large gatherings and practice “social distancing” – increasing the physical distance b…

03/10/2020

A group of Sopris Elementary School fourth grade students put their research hats on recently to learn more about rare diseases, including a disorder that afflicts one of their classmates. Beyond the academics of it...

03/10/2020

SalemOaks and CureGPX4.org presents Raising Rare. Raising Rare is a podcast following a parents quest to cure their son’s ultra rare disease. You will listen...

03/08/2020

Over 25 million Americans live with a rare disease. 90% of the 7,000+ rare diseases are without an FDA-approved treatment. By showing your stripes, you can s...

03/08/2020

Rare Daily StaffA 60 million-year-old tumor, found in the fossilized tail of a dinosaur in Canada, has been shown to have the pathological features of Langerhans cell histiocytosis, a rare and painful disease that still afflicts humans, researchers reported. In a study in the open access journal Sci...

03/04/2020
02/29/2020

"Rare disease research shouldn’t matter only to those whose friends and family members who have rare diseases."

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