Alport Syndrome Foundation of USA

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Alport Syndrome Foundation of USA The Alport Syndrome Foundation on Facebook is designed for patients and families affected by Alport s

The Alport Syndrome Foundation (ASF) is the leading independent, nonprofit organization in the United States serving and giving a voice to the Alport syndrome community. ASF’s mission is to improve the lives of patients through education, empowerment, advocacy and research to realize the vision to conquer Alport syndrome. ASF is focused on realizing this Vision, and has directed the majority of the Foundation’s resources to medical research. ASF raises awareness in the patient and medical communities and is fostering collaboration among Alport syndrome stakeholders all over the world – including alliances with international patient support groups, patient registries, and medical researchers. ASF empowers the Alport syndrome community by centralizing medical information, hosting patient meetings and conferences, and providing education, advocacy, communication and a network of support.

02/27/2026

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Scottsdale, AZ
85261

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