Spina Bifida Association of New York State

11/04/2026

Our Executive Director, Julia Duff, recently joined WNYT NewsChannel 13's Capital Region Lifestyle to discuss our upcoming 14th Annual Dare to Dream Gala!

Taking place this Saturday, November 7, the gala brings our community together to support individuals and families impacted by Spina Bifida throughout New York State.

Although tickets are officially sold out, there are still opportunities to support our mission through donations and our jewelry raffle.

Watch Julia's full interview here: https://wnyt.com/crl/spina-bifida-association-of-new-york-states-annual-dare-to-dream-gala-to-support-families-impacted-by-spina-bifida/

Purchase your jewelry raffle tickets here: https://www.paypal.com/ncp/payment/A5V5KYZDTKJHC?fbclid=IwY2xjawVYb-JleHRuA2FlbQIxMABwZG9mAWJyaWQRMTFjVWRFZ2FlYmZSWnRJcTRzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEftapXch-beLCp0JlY9psdThbKAsEyvyWJ3BLmWku0Wz86usmS3_lNNyLN5sg_aem_JrgZBTquGCi37rHNJ3OoeA

11/04/2026

Do not wait until Saturday and wish you had entered.

The winners of the Dare to Dream Jewelry Raffle will be announced this Saturday, November 7, and there is still time to get your name in the drawing.

For just $20, you could win jewelry including:

• A $185 Reagan Chain Set with Pearls
• A $150 Julia Crystal Set
• A $98 Katie Teardrop Abalone Earrings & Necklace Set
• Plus necklaces, bracelets, earrings, and more

There are 14 jewelry prizes waiting to be won.

And remember, you do not need to attend the Dare to Dream Gala to participate or win.

Your chance to enter is right here:https://www.paypal.com/ncp/payment/A5V5KYZDTKJHC

Raffle Tickets: $20 each

Winners will be announced Saturday during the 14th Annual Dare to Dream Gala.

11/03/2026

Why is protecting kidney health such an important part of urologic care for individuals with Spina Bifida?

Maintaining normal kidney function is the primary goal of urologic management throughout life.

According to the Spina Bifida Association's Urology Guideline:
• Early Protection: During the first several years of life, the kidneys are especially vulnerable to damage.
• Bladder Management: Identifying and managing bladder problems can help prevent damage to the kidneys.
• Ongoing Monitoring: Regular testing and evaluation help healthcare providers monitor kidney function and identify potential problems.
• Lifelong Care: Protecting kidney function remains a priority from infancy through adulthood.

Understanding the importance of kidney health is an essential part of managing Spina Bifida throughout the lifespan.

Learn more in the Spina Bifida Association's Urology Guideline: https://www.spinabifidaassociation.org/blog/urology-guideline/

11/02/2026

📣 COMING UP IN 2 DAYS! COMMUNITY INFORMATION SESSION

Join SBA on November 3 for our upcoming session on Feeding and Swallowing in Spina Bifida!

Learn more about strategies, resources, and ways to support feeding and swallowing needs in people with Spina Bifida.

📅 November 3, 2026
⏰7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

🔗 Register today: https://vist.ly/5qx75

Share this opportunity with those who may find it helpful!

11/02/2026

Did you know that the goals of urologic care for individuals with Spina Bifida change as they grow?

Urologic care focuses on different priorities throughout life:
• Early Childhood: Protecting kidney function and preventing kidney damage.
• School Age: Greater attention is given to achieving urinary continence.
• Teenage Years: Transitioning toward greater independence in managing personal care.
• Adulthood: Continuing to support self-management and independent living.

While priorities may shift with age, maintaining kidney function, achieving urinary continence, and maximizing independence remain important goals throughout life.

Learn more about urologic care across the lifespan by exploring the Spina Bifida Association's Urology Guideline: https://www.spinabifidaassociation.org/blog/urology-guideline/

11/01/2026