Look. Foundation

06/24/2026

Update from 📰

RECOGNITION VIA LANGUAGE ON PANS/PANDAS INCLUDED in FEDERAL APPROPRIATIONS BILL‼️

“The House Appropriations Committee approved the Labor HHS Appropriations Bill on June 9 with a vote of 34-28. This bill is awaiting further action for a vote on the House floor..”

“We are also very pleased to see the inclusion of many of our report language requests in the bill report. Report language plays an essential role in the congressional consideration of appropriations measures and affects how federal agencies interpret and obligate the funds provided in those measures. Although funding and other directives that appear only in report language do not establish a statutory requirement, the Appropriations Committees generally expect that the agencies comply with a report’s directives”.

Stay tuned 📻 as this bill continues to make its way through congress and huge thanks to and for their continued advocacy on this 🙏

https://drive.google.com/file/d/1LdcSzdG47iwIfsQmtC-xo1bOVO74EA3v/view?mc_cid=99d7c970ce&mc_eid=34cc5b889c

06/23/2026

🧡 Congratulations and thank you to Jimmy for completing a Half Ironman as part of Team Look.! 🧡
As someone who has personally experienced PANDAS/PANS, Jimmy knows how much this mission matters. Now, as a Team Look. athlete advocate, he is using his strength, story, and determination to help raise awareness and hope for other children, young adults, and families still fighting for answers.

And not only did Jimmy train for and complete a Half Ironman, he did it while graduating from high school and raising more than $7,500 for the Look. Foundation.

From the 1.2-mile swim to the 56-mile bike ride to the 13.1-mile run, Jimmy pushed through every mile with purpose. And cheering him on every step of the way were the family and friends who have stood beside him, a beautiful reminder that no one walks this journey alone.

Athletes like Jimmy are helping us ensure more families can access the testing, treatment, and support they need while spreading a message we believe deeply: healing is possible when we look for root causes.

Want to turn your next race into something bigger than a finish line?

🏃 Run for Look.

🚴 Ride for Look.

🏊 Swim for Look.

🧡 Raise awareness. Fund hope. Change lives.

Whether it’s a 5K, marathon, triathlon, or Ironman, we’d love to have you on Team Look.

📩 Interested in racing for Team Look.? Email us at [email protected]

🧡

06/21/2026

7 days. One team. One mission. 💙💚

Next weekend, Team Look. will hit the water, roads, and finish line at the Cohasset Triathlon in support of children and young adults battling PANS/PANDAS.

The funds raised help provide financial assistance, education, advocacy, and hope to families navigating this often misunderstood illness.

Let's make these 7 days count. 🧡

Help us finish strong. Donate through the link in our bio

06/19/2026

On June 12, 2026, Jennifer Vitelli, Executive Director of the Look. Foundation, delivered this address at the Going the Distance for PANS/PANDAS Dinner, hosted by The Alex Manfull Fund at the Army Navy Country Club in Arlington, Virginia.

Held as part of 36 Hours of PANS/PANDAS Advocacy in Washington, D.C., the evening brought together families, young adult survivors and advocates, physicians, researchers, legislators, and nonprofit leaders committed to moving this field forward.

Vitelli reflected on the extraordinary progress this community has made and the urgent gap that remains between what science and families know and the care patients can actually access.

“Medicine rarely changes simply because evidence exists. It changes because people push.”-Jennifer Vitelli

Her message was both a challenge and a call to collective action: keep pushing, bring new champions into the movement, and refuse to allow PANS/PANDAS to become a diagnosis of privilege.

“Let’s make sure the next generation of families doesn’t just find answers. They find care.”-Jennifer Vitelli

On June 12, 2026, Jennifer Vitelli, Executive Director of the Look....

06/19/2026

🌟 **Join the Fight for PANS & PANDAS - Bidding Closes on June 19th** 🌟

We're excited to encourage everyone to participate in the **36 Hours for PANS & PANDAS Advocacy in Motion** AUCTION, presented by the Alex Manfull Fund! They have some incredible items including discounted labs including Moleculara Autoimmune Panel and Tlab! This is a fantastic opportunity to support research, treatment, and hope for those impacted by PANS and PANDAS.

🗓️ **Bidding Closes:** June 19, 2026, at 11:45 PM EDT

Your bids will help fuel progress in our community and ensure that no child or young adult is missed in their journey toward healing.

👉 **Register to Bid Here:**

36 Hours is The Alex Manfull Fund’s signature two-day experience—including the TAMF 5K—where community and collaboration fuel progress in research, treatment, and hope for those impacted by PANS and PANDAS.

06/16/2026

Thirty-six hours. One incredible community. So much shared purpose.

Look. Foundation Board members Michelle Pinto, Adam Noska, and Sheilah Gauch, along with Executive Director Jennifer Vitelli, spent an impactful 36 hours in Washington, D.C., connecting, advocating, and helping move the PANS/PANDAS community forward.

Hats off to the NAPPA - National Alliance for PANS / Pandas Action (NAPPA) and the National Pandas/Pans Youth Alliance (NPYA) for organizing the advocacy efforts on Capitol Hill and creating opportunities for families and advocates to speak directly with lawmakers.

A heartfelt thank-you to Susan and Towny Manfull and the entire team at The Alex Manfull Fund for hosting the beautiful Going the Distance for PANS/PANDAS Dinner, an inspiring evening filled with camaraderie, meaningful conversation, and collaboration among advocates, researchers, scientists, physicians and families.

The evening also honored the researchers helping advance our understanding of neuroimmune psychiatric disorders, including Dr. Sean Miller and Dr. Herbert Lachman. A particularly meaningful moment was the presentation of "The Alex Manfull Fund Legacy Award" to Dr. Susan Swedo, recognizing her pioneering work and lasting impact on the PANS/PANDAS field.

The program also featured powerful remarks from Olympian and PANDAS survivor Jadin O’Brien; Dr. Jennifer Frankovich, a leading PANS/PANDAS clinician and researcher at Stanford; and Look. Foundation Executive Director Jennifer Vitelli, who spoke about this pivotal moment in PANS/PANDAS history and the urgent need to close the gap between what we know and the care families can access.

The weekend continued with The Alex Manfull Fund 5K Run/Walk, a powerful morning that brought the community together once again in remembrance, hope, and shared determination.

We left Washington inspired, energized, and more committed than ever to the work ahead.

These 36 hours were a reminder of what is possible when we come together, speak up, and keep moving forward.

We are proud and grateful to stand alongside this extraordinary community.

Thirty-six hours. One incredible community. So much shared purpose....

06/12/2026

06/11/2026

What an incredible evening. 🧡

Our Strength in Stages: Evening of Storytelling, in partnership with the United Way of Greater Plymouth County, brought together caregivers, young adults, advocates, and supporters for a night of connection, understanding, and hope.

A special thank you to our panelists, who courageously shared their personal journeys with honesty and vulnerability. Their stories offered insight, inspiration, and so much hope to the families and individuals in attendance. By sharing their experiences, they reminded our community that healing is possible and that no one has to navigate the PANS/PANDAS journey alone.

Thank you to everyone who attended, shared, listened, and helped create a space where people could learn from one another and feel seen.

Together, we are building awareness, fostering connection, and creating hope for families navigating PANS/PANDAS.

06/07/2026

Today is the day!

Jimmy is taking on the IRONMAN 70.3 Western Massachusetts (IRONMAN) to raise awareness and support for kids and young adults battling PANS/PANDAS. 🏃🧡
From the 1.2 mile swim to the 56 mile bike to the 13.1 mile run, every mile is fueled by purpose. Help Jimmy turn 70.3 miles into hope for families searching for answers.
Support his race and make an impact: Text JIMMY703 to 53-555 to donate.

https://givebutter.com/Jimmy703

06/06/2026

Big news for PANS/PANDAS research 🧡 Pivotal Time in PANS/PANDAS History

For the first time in history, PANS/PANDAS is included as an eligible FY26 Topic Area under the Congressionally Directed Medical Research Programs’ Peer Reviewed Medical Research Program (PRMRP) funding opportunities.

This is an important opportunity to advance meaningful research, from basic science to translational research, clinical research, and clinical trials, that can help deepen understanding and improve care for children, young adults, and families impacted by PANS/PANDAS.

The CDMRP will be hosting upcoming informational sessions for researchers interested in learning more about the PRMRP, the application process, and currently open funding opportunities. All sessions will provide the same information, so applicants may choose the date that works best for them.

Please help us spread the word by sharing this opportunity with researchers, clinicians, academic institutions, and anyone in your network who may be interested in applying.

This is exactly why awareness, advocacy, and research matter. 🧡