01/24/2025
Awareness saves lives.
"My sister had breast cancer in 2011 and then pancreatic cancer in 2020, at which time she underwent genetic testing. The tests revealed she had a BRCA2 gene mutation. Family in her bloodline were invited to be tested as well.
At that time, I started taking part in a BRCA2 Clinical Study at Penn Medicine for people over 45 years old. I had an MRI and endoscopy every three to four months. In January 2022, it was noted that a cyst in my pancreas had enlarged and was then labeled as a mass/tumor.
Had I not known about my gene mutation, I would not have been in the clinical study. Instead of them finding my cancer at stage I, within a year it would have likely been stage III or IV. Pancreatic cancer has virtually no indications until it reaches later stages.
Eventually I had the Whipple procedure, a type of surgery which removed one-half of my pancreas and my duodenum (my gallbladder was removed four years ago). I then started 12 rounds of chemotherapy to attack any remaining cancer.
In February 2024, scans showed there were precancer cells in the main duct of my remaining pancreas. Along with my wife, son and daughter, we made the decision that I should have a pancreatectomy [surgical removal of the remaining pancreas] in March 2024.
Now, I have to remind myself how fortunate I am to be alive. At times, it is surreal to me that I am missing so many organs, yet here I am! I’m able to eat everything I ate before pancreatic cancer, although the quantities are less. I work out once or twice a week, walk, and play golf every Saturday. I see my oncologist every three months, and I get scans every six months.
My words of advice: once you’re diagnosed, try to make decisions about your treatment ASAP with the guidance of your care team and the ones you love, because pancreatic cancer won’t wait!"
— Ted Niemczyk, pancreatic cancer survivor