10/16/2026
💜WEEKLY SPOTLIGHT🧡
This week, we’re spotlighting two year old Maddox:
Maddox’s story began in a way no parent ever expects. Shortly after he was born, his newborn screening revealed something life-changing — he was diagnosed with Spinal Muscular Atrophy (SMA). What could have been a devastating delay in diagnosis became a powerful example of why newborn screening matters. Because of early detection, Maddox was able to receive treatment at just 19 days old.
Nineteen days.
Before many babies have even settled into a routine, Maddox was already fighting — and winning — the biggest battle of his life.
Today, Maddox is a thriving 2-year-old who truly lets nothing hold him back. SMA may be part of his story, but it does not define his limits. He runs, he plays, and he keeps up right alongside everyone else. He has a love for sports that shows in everything he does — if there’s a ball, a goal, or a game, he’s all in. His determination shines through every sprint across the yard and every laugh-filled moment on the playground.
One of his favorite things in the world is playing with his sister. Whether they’re racing, tossing a ball, or just being silly together, he meets every moment with energy and joy. Watching them run and play is a beautiful reminder of how far he has come.
Maddox is proof of the power of early diagnosis, medical innovation, and resilience. He is strong. He is fearless. He is unstoppable. And at just two years old, he’s already inspiring everyone around him!”
If you or someone you know has SMA, use the link below to submit your story 💜🧡
https://survey.alchemer.com/s3/8235509/SMA-Stories
