Cure SMA

Cure SMA Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA). Visit cureSMA.org
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Cure SMA is pleased to announce that we are accepting grant applications for funding of research projects and postdoctor...
08/21/2026

Cure SMA is pleased to announce that we are accepting grant applications for funding of research projects and postdoctoral fellowships, under a competitive review by our Scientific Advisory Board (SAB). The deadline for submission has been extended to Friday, September 18, 2026.

You can learn more here: https://www.curesma.org/funding-opportunities/

💜Small Business Spotlight🧡“Hi, my name is Janelle Fiesta and I’m the artist behind my small art business, Cute Loot Arts...
08/19/2026

💜Small Business Spotlight🧡

“Hi, my name is Janelle Fiesta and I’m the artist behind my small art business, Cute Loot Arts. I enjoy drawing my cute and original cartoon characters in my free time. With the support of my fiancé, I turn my artwork into art merchandise such as homemade stickers, acrylic charms, tote bags, and plushies. I hope that my artwork is able to make others laugh, feel inspired, smile, or create conversations.”

Check out Cute Loot Arts and support Janelle by using the link below 💜🧡

The Milwaukee Summit of Strength is coming up this Saturday, August 22! Have you registered?The Summit of Strength is a ...
08/19/2026

The Milwaukee Summit of Strength is coming up this Saturday, August 22! Have you registered?

The Summit of Strength is a great opportunity to get up to speed about the latest advances in treatment, care, advocacy, and support. These half-day meetings will feature presentations by local and national experts.

This is a free program which includes refreshments, lunch, and parking for all attendees.

We look forward to seeing you in Milwaukee!

https://summit-curesma.donordrive.com/MilwaukeeSummit

💜WEEKLY SPOTLIGHT🧡This week, we are spotlighting Sydney:“Our story is my husband and I adopted a little at the age of 3,...
08/14/2026

💜WEEKLY SPOTLIGHT🧡

This week, we are spotlighting Sydney:

“Our story is my husband and I adopted a little at the age of 3, she is now 21! Sydney was in foster care when she was diagnosed with SMA type ll. We are in our 50’s at the time but we were told she wouldn’t be here long maybe 5 years. We couldn’t let her live in foster care with this diagnosis so we took her and we fell in love with her and we adopted her. We have had many ups and downs throughout her life thus far .

Sydney was one of the first to get treatment in our town. Sheis a strong young lady. She loves singing , texting, playing on her tablets and talking to her friends.”

If you or someone you know has SMA, use the link below to submit your story 💜🧡

https://survey.alchemer.com/s3/8686091/SMA-Stories-Advocacy-Draft?fbclid=PAVERFWATsEkxwZG9mAmZkaWQWUMeES6q6crol30G3QW_NWX2CAom2j2V4dG4DYWVtAjEwAHNydGMGYXBwX2lkDzEyNDAyNDU3NDI4NzQxNAABpyG41pqIIbSavybpsZ7aYFZ3ZRn2tKdEgJsGgzDpy6kaIJvvuLNNx0LyVN0M_aem_UTLJKjLhX6bAUCSBKORf6Q

08/13/2026

Introducing our newest PSA!

Produced by Cure SMA in partnership with Genentech, this PSA features three members of our community living with SMA: Brittany Aguirre, Ryan Cantin, and Felipe Gutierrez. They generously shared their own stories to help others understand what it's really like to live with SMA as an adult.

It's now airing on TV stations nationwide, helping make sure everyone touched by SMA knows treatment options exist.

Watch it and help us spread the word 🧡💜

2026 Summit of Strength Program – Join Us in a City Near You!📣 Join us in a city near you! Cure SMA’s Summit of Strength...
08/12/2026

2026 Summit of Strength Program – Join Us in a City Near You!

📣 Join us in a city near you! Cure SMA’s Summit of Strength is a free educational and networking program that hosts a wide variety of experts who cover topics that are valuable to individuals of all ages and types of SMA, and their caregivers. It is a tremendous opportunity to connect with others in your local area, and to have your questions answered by national and local experts in an intimate setting.

💜🧡 Learn more and find a Summit of Strength near you: https://summit-curesma.donordrive.com/index.cfm?fuseaction=cms.home

Looking for ways to spread SMA awareness? Our Cure SMA awareness kit is just for you! We have combined many of our pop...
08/12/2026

Looking for ways to spread SMA awareness? Our Cure SMA awareness kit is just for you! We have combined many of our popular accessories and packaged them all together into this one-of-a-kind kit sealed up in our reusable canvas zippered pouch! Bracelets, fact cards, temporary tattoos and a variety of stickers are all included in larger quantities so you can share them out with family, friends or even strangers who want to learn more! Order yours today to take advantage of our 25% off awareness month special by using code "Awareness2026" at checkout!

Shop now: www.curesma.org/merchandise

Lenox Hill Hospital Adult SMA Oral Health SurveyWhat: The Adult SMA Multidisciplinary Clinic at Lenox Hill Hospital is w...
08/11/2026

Lenox Hill Hospital Adult SMA Oral Health Survey

What: The Adult SMA Multidisciplinary Clinic at Lenox Hill Hospital is working to improve access to high-quality oral health and dental care for adults living with spinal muscular atrophy (SMA). In collaboration with our adult SMA Patient Advisory Board and Northwell Health dental professionals, we have developed a brief anonymous survey to better understand oral health practices, experiences, and barriers to dental care among adults with SMA.

Who Can Participate: Adults (18 years and older) with SMA

How to participate: https://redcap.northwell.edu/surveys/?s=HH737X4MXYJY8PCE

This study is IRB-approved, and all survey responses are de-identified and anonymous.

If you have any questions or experience issues accessing the survey, please contact:

Dr. Aaron Zelikovich
Lenox Hill Hospital
[email protected]

Address

50 E Commerce Drive, Suite 90
Schaumburg, IL
60173

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+18008861762

Website

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