The Hunt to Cure CMT4B3

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The Hunt to Cure CMT4B3 We are a global organization dedicated to finding a cure for Charcot-Marie-Tooth Disease Type 4B3. Research and funding for CMT4B3 was virtually nonexistent.

Hunter’s parents, Iris and Brett Schultz were told there are no treatments or cure for CMT4B3, and Hunter would eventually lose his mobility, and potentially go deaf and blind. Not willing to simply watch their son deteriorate before their eyes, they founded “Hunters CMT4B3 Research Foundation” to find a cure for Hunter and all children suffering from CMT4B3 and related neuromuscular diseases. To learn more visit: www.hunterstribe.org

10/29/2026

As rare disease parents, we’re so often told all the limitations that come with a diagnosis. All the things our children may not be able to experience “normally.” Let this be your reminder to allow yourself to be surprised by your child and to learn from them! In the world of rare disease, so little is truly known and it’s ok to take one day at a time. 💙⁠
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We couldn’t fund groundbreaking research into CMT4B3 to cure Hunter without you; your continued donations are the backbo...
10/22/2026

We couldn’t fund groundbreaking research into CMT4B3 to cure Hunter without you; your continued donations are the backbone of our foundation and we’re hugely grateful for you!

Since Hunter was 3, we’ve been striving to strike a balance between therapies that help him live life to the fullest and...
10/21/2026

Since Hunter was 3, we’ve been striving to strike a balance between therapies that help him live life to the fullest and the regular old play that he deserves! NAPA Center has been an enormous part of this journey for us; they ensure that his time spent in therapy isn’t just effective, but fun. Thank you, NAPA, for all you do!

Considering giving to Hunter’s Research Foundation this month? Here’s a quick breakdown of where your generosity goes! 1...
10/15/2026

Considering giving to Hunter’s Research Foundation this month? Here’s a quick breakdown of where your generosity goes!

1️⃣Understanding disease mechanisms: In order to cure a disease, we need to know how it works. We’ve funded the work of incredible researchers like Professor Henry Houlden & Dr. Jim Dowling to learn more about how CMT4B3 works.

2️⃣ Creating a cure: Armed with this knowledge, we’ve funded the work of researchers like Dr. Stephan Zuchner and Dr. Scott Harper to find inventive ways of introducing functional gene copies into patients living with the disease.

3️⃣ Target symptoms & test therapies: Dr. Jefferson Doyle and Dr. Robert Burgess are among the wonderful researchers we’ve funded who are focused on learning about how particular symptoms of CMT4B3 respond to gene therapy.

Curious to learn more? Head to the link below to learn more about our research projects!

https://www.cmt4b3research.org/general-4

Hunter lives with CMT4B3, which is a rare neurodegenerative condition; this means that as Hunter grows, his disease cont...
10/13/2026

Hunter lives with CMT4B3, which is a rare neurodegenerative condition; this means that as Hunter grows, his disease continues to progress, causing low muscle tone, nerve wasting and the loss of motor skills. Still, Hunter is now 9. He’s got boat loads of motivation, sass, and that good ole pr***en s***k 😅. He deserves to learn skills he can use independently alongside his peers, and we hold out hope that we can halt his disease progression in time as we fight to find a cure for him.

We love sharing our research with you! Especially when we can highlight some of the interconnected pieces of research th...
10/08/2026

We love sharing our research with you! Especially when we can highlight some of the interconnected pieces of research that are helping us better understand CMT4B3 and work toward new treatment possibilities for the future. 💙

All of this research is possible because of people like you who help support this research. 🫶 You can read more about the science we’re funding at the link below! 🤓

https://www.cmt4b3research.org/general-4

We can’t believe it's already autumn! 🍂 We’ve been settling back into the busyness of the school year, and we thought we...
10/06/2026

We can’t believe it's already autumn! 🍂 We’ve been settling back into the busyness of the school year, and we thought we’d share a few of the little things that have been making our mornings easier. ☕

We usually start by giving Hunter extra time to ease into the day. That means slowing down and maybe snuggling with our sweet dog or letting him watch a little show while getting his leg braces on. This is part of his daily morning routine, which helps support his mobility throughout the day, and it’s usually a little uncomfortable.

We also build in extra time for Hunter to get dressed and get ready for his day as independently as possible. We’ve found that starting our days a little earlier helps avoid any feelings of being rushed.

Feel free to share any school morning rituals that you’ve been loving! We’re always looking for new fun breakfast ideas or little shows to watch during brace time. 😊

10/05/2026

Hunter’s dedication to his therapy intensives is truly inspiring; performing seemingly simple tasks can be extremely challenging for him due to the nerve wasting and muscle atrophy caused by CMT4B3, but he never fails to show up, give it his all, and build new skills that keep him mobile and active during each day of the intensive 💙. His effort and grit show us what true strength looks like, and we’re so grateful for his example as we continue to fight his disease.⁠
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Address

77 Garden Road
Scarsdale, NY
10583

Telephone

+19174532319

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