The Hunt to Cure CMT4B3

The Hunt to Cure CMT4B3 We are a global organization dedicated to finding a cure for Charcot-Marie-Tooth Disease Type 4B3. Research and funding for CMT4B3 was virtually nonexistent.

Hunter’s parents, Iris and Brett Schultz were told there are no treatments or cure for CMT4B3, and Hunter would eventually lose his mobility, and potentially go deaf and blind. Not willing to simply watch their son deteriorate before their eyes, they founded “Hunters CMT4B3 Research Foundation” to find a cure for Hunter and all children suffering from CMT4B3 and related neuromuscular diseases. To learn more visit: www.hunterstribe.org

A little recap of our favorite Hunter memories! These photos speak for themselves, but let me key you in on some of his ...
06/18/2026

A little recap of our favorite Hunter memories! These photos speak for themselves, but let me key you in on some of his ✨current obsessions✨ and the BTS fun that made these moments extra special.

Naturally, his dog is his bestie. 🥹 We love watching him get silly and playful with Biggie. Those two are like peas in a pod.

The kid likes his stories with a heavy dose of fandom. He’s been a fanboy of Harry Potter for a while now, and we can’t wait until he develops an opinion on his favorite book and favorite movie (no spoilers!!). ⚡

Also, he has quite the taste for charcuterie. Seriously, sign him up for all things cured meat, aged cheese, and crunchy accoutrement lol.

As a family, we love doing all things Disney together. We’re often cozied up at night watching movies and singing along to the soundtracks. We’ve even been lucky enough to visit with some of his favorite characters.

Let us know in the comments what it is that you’ve got in common with Hunter. Also, your rankings of the HP books 1-7 are welcome haha. 💛

We’re so thankful to everyone who supports our work at Hunter’s Research Foundation. 💛 Every donation helps us continue ...
06/16/2026

We’re so thankful to everyone who supports our work at Hunter’s Research Foundation. 💛 Every donation helps us continue funding research into potential treatments for CMT4B3. All contributions, no matter the size, make a real difference and create more possibilities for Hunter’s future. If you’d like to support our research efforts, you can make a donation at the link below.

https://www.cmt4b3research.org/general-4

Have you ever wondered what treatment for CMT4B3 might look like? At Hunter’s Research Foundation, we are currently fund...
06/11/2026

Have you ever wondered what treatment for CMT4B3 might look like? At Hunter’s Research Foundation, we are currently funding research into two treatment pathways: ocular treatment and gene therapy. These research projects aim to treat Hunter’s vision-related symptoms and address the underlying genetic causes of CMT4B3. 💙

We are exploring both pathways because each has the unique potential to give Hunter a healthier future. Investing in both options means we’re giving Hunter (and all kids living with CMT4B3) the best chance at meaningful treatments.

If you’re interested in supporting this critical research, you’re welcome to donate at the link. 🧬 👏🏻

https://www.cmt4b3research.org/general-4

We want to share a little update on Hunter’s recent wins! He’s often working SO hard to achieve things that come natural...
06/09/2026

We want to share a little update on Hunter’s recent wins! He’s often working SO hard to achieve things that come naturally to other kids his age, and we think he deserves a little recognition for all that hard work. ☺️

We can really see the progress he’s made through working with his physical therapists and other specialists. We are so proud of you, Hunter! 💛

Also, this is a friendly reminder that our foundation is currently funding critical research into treatments for CMT4B3. You can read more about this and donate at the link below.

https://www.cmt4b3research.org/general-4

The fastest way to move CMT4B3 research is to get the patient community involved. 💙That’s why we partnered with Rare-X t...
06/04/2026

The fastest way to move CMT4B3 research is to get the patient community involved. 💙That’s why we partnered with Rare-X to bring you a patient registry. This resource helps improve the understanding of CMT4B3 and increases visibility so more families can receive their diagnosis. Plus, it only takes about 5 minutes to join. You can help spread the word by sharing this post so more families can join the (free) registry!

Here’s a HUGE thank you to everyone who has supported our most recent CMT4B3 gene therapy research. 🥹 Because of you, we...
06/02/2026

Here’s a HUGE thank you to everyone who has supported our most recent CMT4B3 gene therapy research. 🥹 Because of you, we recently had the opportunity to showcase this study at the annual ASGCT meeting! It was incredibly meaningful to share all the exciting details with those of you who stopped by our poster presentation! Special thanks to all of the researchers and collaborators helping move this work forward. 💛

The results of this research demonstrate a promising framework for the development of gene therapy treatments for CMT4B3, and it’s all because of you. Thanks to your generosity, we are able to fund this science that gives our son, Hunter, a real shot at a healthier future. We are endlessly grateful. 🙏🏻

If you’d like to continue supporting this critical research, you can give today at the link in our bio!

Before Hunter was diagnosed with CMT4B3 in 2020, we never imagined how important this community would become in our live...
05/28/2026

Before Hunter was diagnosed with CMT4B3 in 2020, we never imagined how important this community would become in our lives. Over the years, we’ve been lucky enough to connect with incredibly loving moms and dads who understand first-hand what it means to raise a child with a rare disease. Even across different diagnoses, I always appreciate the shared understanding we have for one another. 🥹

Many of you support the work we do at Hunter’s Research Foundation in myriad ways. We are so grateful. If you are able to make a donation to help fund research for Hunter’s future, you can give at the link below. 💙

https://www.cmt4b3research.org/general-4

Update from ASGCT 2026! 🧬 Hunter’s Research Foundation was honored to present a poster at this year’s meeting, where we ...
05/27/2026

Update from ASGCT 2026! 🧬 Hunter’s Research Foundation was honored to present a poster at this year’s meeting, where we showcased our research regarding gene therapy pathways for CMT4B3.

Attending ASGCT was an exciting opportunity to learn more about the rapidly evolving field of genetic treatments and connect with researchers and industry leaders who may be able to move us closer to a gene therapy option that avoids invasive brain surgery for Hunter.

We were also so grateful for the chance to reconnect with friends and colleagues across the rare disease community who are doing such meaningful work. Thank you to everyone who contributed to this research and to all of you who took the time to connect with us at the meeting. 💙

We’ve got a newsletter going out today with more from ASGCT, plus a few other things we’re excited to share. If you’d like to get occasional updates from us, you can sign up for free at the link below!

https://www.cmt4b3research.org/general-4

Did you know that birthday fundraisers are one of the ways to support our mission without spending anything out of pocke...
05/21/2026

Did you know that birthday fundraisers are one of the ways to support our mission without spending anything out of pocket? Plus, they only take a few minutes to create. 💛 If you have a birthday coming up, consider dedicating it to Hunter’s Research Foundation. Let us know if you have any questions via DM. 😊

One of the ways CMT4B3 impacts Hunter’s daily life is through accessibility in the classroom. As part of living with CMT...
05/19/2026

One of the ways CMT4B3 impacts Hunter’s daily life is through accessibility in the classroom. As part of living with CMT, Hunter experiences muscle weakness and nerve degeneration in his hands. This affects how he is able to approach certain tasks in school. For example, activities that involve holding a pencil for extended periods often need to be adapted to fit his needs.

Luckily, Hunter attends the IDEAL school, which specializes in inclusive learning environments. At school, he often utilizes adaptive technologies, such as tablets and other interactive learning tools, that make assignments more accessible.

Accommodations are an extremely powerful way to help children living with disabilities thrive in the classroom. We are so grateful for all of Hunter’s teachers at the Ideal School and the many creative techniques they use to support their students’ education.

If you’re also passionate about supporting Hunter, feel free to donate to our Research Foundation to help give him the best shot at a joyful and full life. The link to give is below:

https://www.cmt4b3research.org/general-4

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