HLH Heroes Foundation

11/09/2026

Thankful doesn't even begin to cover it.

This November, our hearts are overflowing with gratitude for the extraordinary families who share their journeys with us. Your strength, courage, and resilience inspire everything we do at the HLH Heroes Foundation every single day. 💙

Thank you all for letting us in and letting us be a small part in your story.

11/07/2026

HLH Heroes 5th Annual Trivia Night is next Saturday (the 14th).

Here’s a sneak peek of one of the silent auction baskets that was generously donated by Stray Rescue and brings “A Little Holiday Cheer for You & Your Furry Friends!”

11/06/2026

Did you know there are several resources linked to our website?

Here you can find:
📖 info about HLH
👨🏿‍⚕️ physician finder to find one who specializes in HLH
💭 questions to ask your care team
📕 information on clinical trials
❤️bone marrow transplant info
🧬 how you can help advance HLH research
💗info on support groups for histiocytic disorders
👩‍🎓 scholarship opportunities for HLH warriors

Go see for yourself:
https://www.hlh-heroes.org/resources

11/05/2026

A HUGE thank you to the Webster Groves Fire Fighters for once again helping us out! We welcome them as a Bronze Sponsor this year for HLH Heroes 5th Annual Trivia Night and appreciate their support throughout the years.

This sponsorship helps us support more families in the HLH Community in order for us to fulfill our vision of No One Fights Alone!

11/04/2026

We are thrilled to announce our fundraising partnership with Minted this holiday season!

Please support HLH Heroes by using our unique promo code FUNDRAISEHLHPTSA to purchase your holiday cards and gifts from Minted.

You’ll receive 20% off your order and 10% of each purchase will be donated back to us at the end of the year. We are hoping that, with your help, we can further fulfill our vision of No One Fights Alone!

11/03/2026

If you are looking for a patient support group, check this one out!

💬 You’re Not Alone! Join Us Tonight at 7:15pm (ET)

Living with histiocytosis can feel overwhelming, isolating, and heavy at times. You don’t have to walk this path alone.

Tonight, we’re holding our Peer Support Group call for patients, a welcoming and compassionate space to connect with others who truly get it.

This group is lovingly led by Doris Dahdouh, MSW, LCSW, a licensed social worker who brings deep empathy, experience, and a gentle presence to our community. Doris creates a space where everyone is respected, supported, and heard.

🗓 1st & 3rd Tuesday of each month

💻 Virtual | Registration required to receive the link

Whether you feel like sharing, listening, or simply being present, you are welcome exactly as you are.

✨ Please register at the link below to receive the Zoom link ✨

Questions? You’re welcome to reach out to Doris directly at 📧 [email protected]
We would love to see you there 💙

11/02/2026

Did you know that our board has never been all in the same place at once? That may all change this week as our team is gathering in St. Louis to be one of 30 nonprofit partners in Thinksgiving 2026!

Our team will work with a St. Louis business on a challenge to help us better serve the HLH Community and keep our foundation thriving for years to come!

This matters to our mission because we want this foundation to carry on for as long as needed so that No One Fights HLH Alone.

Learn more about Thinksgiving here: https://youtu.be/ESrHt5W-Sg0?si=w9VAnmciSZ-jSFTC

11/01/2026

Shout out to First Community Credit Union in St. Louis for being a Round Sponsor this year for HLH Heroes 5th Annual Trivia Night!

Your sponsorship helps us make an impact to the HLH Community.

Trivia in St. Louis is on 11/14 and we sold out back in September! We are SOOO excited to start putting items together in preparation for trivia night. There are some amazing silent auction items!

Stay tuned for a list of businesses that have donated we have so far!

10/31/2026

Happy Halloween from HLH Heroes!!! 🎃

We would love to see Halloween photos of your warriors and family, doesn’t matter if it’s from this year or in the past! 🦸🏽 🧟

Drop them below and have a wonderful Halloween! 👻

10/30/2026

Trivia is SOOOO close and we are excited to announce a Round Sponsor for this event!

This sponsor came to us at an unexpected moment. Some family members that have been impacted by HLH were asking a local business about a donation for our Trivia Night/Silent Auction and Jedediah at Red Bird Heating & Cooling overheard their story and wanted to donate.

We truly appreciate this sponsorship as it will help us to assist more individuals and families impacted by HLH and help us work towards our vision of: No One Fights Alone!