American End of Endo Project

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American End of Endo Project American End of Endo Project is a 501c3 nonprofit located in California. AEEP provides resources for people with endo, encouragement, and empowerment.

Founded in 2017, AEEP is "removing barriers and renewing hope for people who have endometriosis”. American End of Endo Project is a nonprofit organization based in California. AEEP's goal is to "remove barriers and renew hope for people with endometriosis. If you are interested in learning more about the organization or would like to apply to be a volunteer, please contact Holly at: [email protected]

10/09/2026

This started with the “time to legislate” clip and turned into an homage to Elle Woods (definitely have been called that a few times!)

It’s kind of all of us though- underestimated, been the subject of eye rolls, and been made to think we can’t possibly know what is going on. But the Elle way is to remain true to yourself and to prevail.

Don’t get me wrong- I’m obsessed with a good tweed and get a new lease on life when I get my hair done, but this Elle lesson goes far beyond the superficial just as she did too. This encouragement is about owning your story and the truth of your experience despite those who seek to judge or gaslight you. It’s the gracious acceptance that “no, they aren’t going to ‘get’ me, but they don’t NEED to.”

Keep being you, keep standing up for you, and let’s band together to get things done. Let’s be the generation that ends endo as we know it.

And when we’re done, I’m totally making us some sangria. It’s like, totally delish. 💛 Holly

Today I had the pleasure of tabling at the SUNY Orange health fair, my local SUNY college in New York, on behalf of Amer...
10/07/2026

Today I had the pleasure of tabling at the SUNY Orange health fair, my local SUNY college in New York, on behalf of American End of Endo Project 🎗️ Endometriosis Advocacy Nonprofit 💖 I was surrounded by incredible organizations who do such valuable work in the community and I left feeling inspired, determined and confident in my mission of advocacy 💪🏼

Thank you to everyone who stopped by to learn more, ask questions and share your stories. It meant the world to me to be able to support you because I know how lonely the journey of Endometriosis can be.

BONUS ✨: My therapy dog, Desert, came along for support too 🤭

I look forward to attending more events, educating more people and affecting REAL change in the community. THIS is my why 🎗️💛

Cute? Not at all. Important? The MOST important.Endometriosis is a chronic, systemic, full body inflammatory disease. No...
10/05/2026

Cute? Not at all. Important? The MOST important.

Endometriosis is a chronic, systemic, full body inflammatory disease. Nothing about that is cute and makes you want to zoom in and say “aw!”

When something cute pops up while scrolling, it’s bound to get a like, comment, share or re-post. It can be a little fuzzy animal, a puppy, a newborn, flowers, a beach - or whatever it is that you find “cute.”

Posts about endometriosis, surgery, lesions, information, etc tend to get scrolled past unless there’s something appealing tied to it. Consider this the cutest endometriosis post you’ve seen today!

Let’s normalize making it cute to react to Endo posts the way we do when it’s a cute little fuzzy animal 🥰

Stay tuned for our new series ✨Endometriosis IS and ISN’T✨

📖Today’s Subject: Economics📝Today’s Lesson: The Cost of Endometriosis$1,000,000,000,000That’s the POTENTIAL annual boost...
09/26/2026

📖Today’s Subject: Economics
📝Today’s Lesson: The Cost of Endometriosis

$1,000,000,000,000

That’s the POTENTIAL annual boost to the global economy by 2040 if the investment gap in women’s health is closed. Yet in 2020, just 5% of global health R&D funding went to women’s health research and only 1% went to women-specific conditions outside of cancer.

The consequences of underinvestment extend far beyond healthcare. In the United States, the economic burden of endometriosis is estimated at $78–$119 BILLION annually.

For employees, endometriosis has been associated with:
💼 $10,000+ in annual lost productivity
📉 6.3 hours of lost productivity per week
📊 Lower salaries and slower salary growth
⏰ Greater risk of work loss, leave, and short-term disability

In one study, 40% of women with endometriosis believed the disease negatively affected their career growth.

Takeaway?
Endometriosis doesn’t just cost patients. It costs employers, healthcare systems, and economies.

Investing in women’s health is an investment in economic growth

*mic drop* 👋🏼🎤

📣 OPEN CALL FOR VOLUNTEERS!!! 📣⭐️ serious inquiries only ⭐️Are you feeling like you need to turn your pain into passion?...
09/26/2026

📣 OPEN CALL FOR VOLUNTEERS!!! 📣
⭐️ serious inquiries only ⭐️

Are you feeling like you need to turn your pain into passion? We can help with that!

American End of Endo Project is a ✨patient led✨501c3 dedicated to removing barriers and renewing hope for endometriosis patients. They NEED access to treatment without difficulty or monetary. They NEED to be diagnosed earlier than 7-10 years.

In order to achieve these things, we need all hands on deck to continue the work that we started. We’ve laid the foundation with our work in DC but there’s still SO much work to do. Our strength comes in numbers and who better to have by your side than your fellow Endo warriors?

We are looking for individuals that are dedicated to the mission, can meet weekly and perform 1-3 tasks per week. If this is something you are interested in, head to the linked in our bio and fill out our Volunteer form! Don’t see your expertise? Let us know on the form and we can place you with the right team! 🫶🏼

We look forward to hearing from you 💛🎗️

💖Love,
The team at American End of Endo Project

📖Today’s Subject: English📝Today’s Lesson: Sunk Cost FallacyThe more time, money, work, reputation, or identity we invest...
09/24/2026

📖Today’s Subject: English
📝Today’s Lesson: Sunk Cost Fallacy

The more time, money, work, reputation, or identity we invest in an idea, the harder it can become to reconsider it—even when new information gives us a reason to.

Endometriosis is no exception.

Changing your mind when the evidence changes isn’t an admission that everything you believed before was foolish. It’s what critical thinking is supposed to look like.

The question isn’t, “How much have I already invested in this belief?”
It’s: “Given what we know now, what deserves another look?”

Being willing to ask that question costs less than staying committed to an idea simply because we’ve already paid for it.

💛 THIS TEAM!!!! 🎗️💪
09/23/2026

💛 THIS TEAM!!!! 🎗️💪

09/23/2026

On Monday, the American End of Endo Project went to Capitol Hill. 🏛️🎗️

We walked the halls of Congress carrying more than policy priorities. We carried lived experience, the realities of navigating endometriosis care, the voices of patients who could not be in the room, and a determination to help build a future where those affected by this disease have a meaningful role in shaping what comes next.

Our advocates came from California, Tennessee, Colorado, Maryland, Virginia, and Pennsylvania. Together, we met with congressional offices to discuss barriers to care, research priorities, and the changes patients need.

Our teams carried the names of Susan B. Anthony, Elizabeth Cady Stanton, and Lucretia Mott—women who helped build the organized movement for women’s rights in the United States and challenged systems that excluded women’s voices from public life.

Their history is not without complexity. Black women, including Sojourner Truth, Frances Ellen Watkins Harper, Ida B. Wells, and Mary Church Terrell, also led the fight for equality while confronting both racism and sexism, and the women’s suffrage movement did not include or serve all women equally. That full history matters.

But so does the lesson their collective work left behind:

People affected by a system deserve a voice in changing it.

That is why we were on Capitol Hill.

Endometriosis patients have spent far too long navigating systems, policies, research gaps, and standards of care that profoundly affect their lives.

On Monday, patients entered federal offices carrying their own stories, their own expertise, and their own ideas for change.

We were not there to have our lives explained by someone else.

We were there to speak for ourselves.

And we made sure Congress HEARD US🎗️

📖Today’s Subject: Social Studies📝Today’s Lesson: Thomas Stephen Cullen & Endometriosis HistoryBefore endometriosis had i...
09/22/2026

📖Today’s Subject: Social Studies
📝Today’s Lesson: Thomas Stephen Cullen & Endometriosis History

Before endometriosis had its modern name, Dr. Thomas Stephen Cullen (1868–1953) was helping medicine understand the disease.

A Canadian-born gynecologic surgeon, pathologist, and professor at Johns Hopkins Hospital, Cullen became one of the earliest pioneers in endometriosis research. At the time, the disease was poorly understood and described under different names, including “adenomyoma.”

Cullen devoted decades to studying these lesions clinically and under the microscope. His work helped demonstrate that abnormal tissue found beyond the uterine cavity contained endometrial glands and stroma. He also recognized connections among uterine adenomyomas, ovarian lesions, and deep pelvic disease—helping establish an early understanding of endometriosis as a distinct disease process.

In 1908, Cullen published his landmark work, Adenomyomas of the Uterus, documenting the disease’s pathology, anatomy, and symptoms. His observations included severe pelvic pain, heavy bleeding, bowel involvement, ureteral obstruction, nerve involvement, and the “frozen pelvis” seen with advanced disease.

Importantly, Cullen recognized that hysterectomy did not always eliminate symptoms because disease could exist outside the uterus.

John A. Sampson would later popularize the term “endometriosis” and propose the theory of retrograde menstruation, but Cullen’s earlier work helped lay critical groundwork for understanding the disease’s pathology and clinical identity.

🎓 SOCIAL STUDIES TAKEAWAY:
Endometriosis existed long before it had a name—and its severity has been documented for more than a century.

Understanding where we’ve been helps show just how much further we still need to go.

📚✏️

09/22/2026

Sending love to the other half of the OG Ocean’s 4 team 💛 Thank you Aubrey for your remote support today and thank you Hannah for the incredibly important work you are doing as well. Things aren’t the same without you, we love you, and we carry you and your contributions with us.
🎗️💛

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1501 Farmers Lane
Santa Rosa, CA
95404

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