The Sparkle of Tinnley Organization

The Sparkle of Tinnley Organization Sparkle: shine brightly with flashes of light; be vivacious and witty. Spreading sparkle everywhere

02/10/2025

Despite the commercial featured on the Super Bowl which featured a child ringing the bell and Knocking Out Cancer.

Appears that the research efforts listed on their site for Knocking Out Cancer are breast cancer; colorectal cancer; lung cancer; prostate cancer; multiple myeloma and not childhood cancer.

There are an occasional child with one of these “adult” cancers but that is not the usual situation.

Pfizer is studying drugs for CML which is not one of the typical childhood leukemias like ALL or AML. There is occasional when a child is diagnosed with CML but that is a small minority of leukemia cases in children.

12/16/2024

♥️Give the gift of life! Join us at City Hall, for a Blood Drive.

📆 Friday, December 20, 2024
⏰ 10:00 a.m. - 4:15 p.m.
📍City Hall - 23920 Valencia Blvd

✏️Schedule your appointment at www.chladonateblood.org.

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♥️ Dona sangre, ¡salva vidas! Únete a nosotros en City Hall para una campaña de donación de sangre.

📆 Viernes, 20 de diciembre de 2024
⏰ 10:00 a.m. - 4:15 p.m.
📍City Hall - 23920 Valencia Blvd

✏️ Programa tu cita en www.chladonateblood.org.

Address

Santa Clarita, CA

Telephone

661-210-3181

Website

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Tinnley Reese- our sparkle

Tinnley was a happy, goofy, normal 1 1/2 year old until it seemed like very suddenly she wasn’t. She had what seemed like a cold and teething, plus some toddler bruising, until she started to seem very lethargic on a family vacation and got some red spots so we took her to the emergency room. Over the course of the next week we learned that Tinnley had pediatric AML leukemia, and a more rare/difficult form at that. Tinnley underwent 3 rounds of incredibly strong chemotherapy before also receiving a bone marrow transplant that ultimately didn’t work to stave off her complex disease. After this, we worked with her team of doctors to try every possible thing to manage her disease and give her as much time as possible. Tinnley passed away October 22, 2018 after over 170 days in hospital, 77 blood tranfusions and many tests, procedures, meds and pokes- all of which she did with her goofy smile and so much love. She impacted so many with her energy and smile. Throughout all those hospital days she didn’t get much opportunity to dress-up, which was one of her favorite things to do at home. So in an effort to keep her light, memory and the things that she loves alive many people that love her came together to create this special organization in her honor.