08/09/2026
The federal government is accepting public comments on the 2026-2028 Autism Strategic Plan right now. The deadline is August 20, 2026.
I submitted ours. And I want every special needs parent, caregiver, teacher, and clinician reading this to do the same.
My name is Shawn Blymiller. I am the founder of Pure Living Family Foundation, a 501(c)(3) nonprofit supporting parents of children with autism, PANDAS/PANS, and other chronic illnesses. I am also the father of an 11-year-old nonspeaking boy with autism named Theo. I testified before the federal Interagency Autism Coordinating Committee in April 2026 and I have been fighting for families like ours ever since.
Here are the six things we asked the federal government to do.
Build real accountability into the plan
Strategic plans without measurable benchmarks are just good intentions. Families who have waited years for action need to know that federal commitments come with teeth and that our voices are actually being heard.
Center profound autism in research and service design
Nonspeaking and profoundly autistic individuals have been left out of most research because they do not fit the convenient participant profiles. The families carrying the heaviest burdens receive the least guidance. That is backwards and it has to change.
Build autism.gov into a real navigation system
Parents of autistic children spend hundreds of hours navigating broken, fragmented, contradictory systems with no map. A centralized resource built with input from families living the most complex presentations would change everything.
Treat caregiver mental health as core infrastructure
You cannot pour from an empty cup. A depleted parent cannot advocate, navigate systems, or show up fully for their child. Caregiver wellness is autism policy. We invited the committee to partner with community organizations like PLF as formal delivery partners for respite and mental health services.
IDEA must fund Spelling to Communicate and Rapid Prompting Method in schools — now
This is the one that keeps me up at night. Theo is 11, nonspeaking, and entering puberty. His aggression is increasing because he cannot communicate. Our family cannot afford $200 per day for this type of education. The Individuals with Disabilities Education Act must recognize Spelling to Communicate and Rapid Prompting Method as legitimate, reimbursable communication methods in every school district in this country. Every year we wait is another year a nonspeaking child sits in a classroom with things to say and no recognized way to say them. This is not a research question. It is a civil rights question.
Recognize wellness coaches as part of the solution to the provider shortage
Psychiatrists and developmental pediatricians have years-long waitlists. Certified functional medicine coaches — trained through programs like the National Board of Health and Wellness Certification — are already filling that gap in communities across the country without federal recognition or reimbursement. That has to change.
Now I am asking you to add your voice.
You do not need to write a formal document. You do not need to be an expert. Two sentences about your experience as a parent, a caregiver, a teacher, or a clinician will be read by the people making these decisions. That is not a small thing. That is democracy working the way it is supposed to.
📧 [email protected]
Subject line: Public Comment on the 2026-2028 IACC Strategic Plan
Deadline: August 20, 2026
Please share this post so it reaches every special needs family who needs to see it. The more voices in that inbox, the stronger the record becomes. And the stronger the record, the harder it is for decision-makers to look away.
Our children are counting on us to be loud. 💙
Shawn Blymiller
Founder, Pure Living Family Foundation
purelivingfamily.com
501(c)(3) Nonprofit · EIN 88-1015327