Blast Off Blaise

Blast Off Blaise A place to follow the journey of Blaise’s fight against cancer and to advocate for kids like him. 🎗️

UPDATEWe got the results early!! NO EVIDENCE OF DISEASE!!And the spot on his spine that was being watched has resolved!...
06/05/2026

UPDATE

We got the results early!!
NO EVIDENCE OF DISEASE!!
And the spot on his spine that was being watched has resolved!

GLOOORRRRRYYYYYY TO GOD!!! ❤️🙌🏼🗣️

UPDATEWe are in OKC for Blaise’s MRI. He will have a full brain and spine scan to see how things look post-radiation an...
06/05/2026

UPDATE

We are in OKC for Blaise’s MRI. He will have a full brain and spine scan to see how things look post-radiation and chemo. It will take about 1½ hours because they were able to get him in on the newer, fancier, faster machine. His blood counts are slowly improving, but they’re still holding off on his daily chemo until they improve a little more.

We will back in OKC on Monday to have a follow-up appointment regarding the MRI results with Dr. McNall at Oklahoma Children's Hospital OU Health(we’re not fans of long waits for scan results) and he’ll get his next infusion of Avastin. Then we’ll be back in OKC again on Wednesday to meet with Dr. Chang and his proton radiation team at Oklahoma Proton Center.

These scan days (and the days leading up to them) can be mentally and physically exhausting as we fight scanxiety and travel back and forth. Thank you for standing with us!! We believe he is HEALED and will live a LONG LIFE on the Earth. The good work God started in Blaise He will finish!!!

PRAYER REQUESTS

• peace of mind for all of us
• clear scans of his brain and spine with NO EVIDENCE OF DISEASE
• safe travels during our multiple round trips

❤️🚀🎗️

UPDATEGuess who got discharged EARLY!!Since Blaise’s blood cultures were clear at admission and he was doing so well, th...
05/31/2026

UPDATE

Guess who got discharged EARLY!!

Since Blaise’s blood cultures were clear at admission and he was doing so well, the doctors decided he could GO HOME EARLY! His ANC, platelets, and hemoglobin are still pretty low so we have to be cautious as he continues to fight off the rhinovirus, but he’s feeling great! 💪🏼💪🏼

He will keep taking antibiotics for the next week and will continue to hold his chemo and other medicines until his counts recover.

THANK YOU FOR ALL THE PRAYERS! In our previous post we asked you to pray:
• Blaise’s counts improve (he received blood and his counts are increasing with hopes of resuming treatment in the next week or so)
• the virus runs it course quickly and with no issues (his fever broke on the way to OKC and he never had a fever when they checked his temp)
• no more runny nose and sore throat (he is hardly sniffing or coughing and his throat no longer hurts)
• doctors release us as soon as possible (they told us to plan for a 3 night stay in the hospital BUT HE WAS OUT EARLY after just 36 hours!)

🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼

God answers the FAITH-FILLED PRAYERS OF THE RIGHTEOUS!!! Thank you for continuing to stand with us. The battle has already been won!! We are more than conquerors!

❤️🚀🎗️

UPDATEWell, we had a good run. When chemo patients get very neutropenic due to low white blood cell counts, even the sm...
05/30/2026

UPDATE

Well, we had a good run. When chemo patients get very neutropenic due to low white blood cell counts, even the smallest illness can cause a neutropenic fever due to being severely immunocompromised. A normal ANC is between 1,500 and 7,000 and Blaise’s was at 200. Because of his low blood counts, they have held off on his daily chemo this week to give his body a chance to recover. If a neutropenic patient gets a fever greater than 100.4° it requires an E.R. visit and a 2-3 night stay in the hospital as they treat for possible infections.

In his 4 years of cancer treatment, Blaise has never experienced it…until now. Doctors and nurses exclaim that “it’s a miracle” he hasn’t had to be admitted for a neutropenic fever yet. (That’s because our God is the God of miracles). Blaise got a runny nose and cough and began to run a fever that hovered between 99-100° on Thursday and Friday until about 10 o’clock last night when it creeped up to 101.6°. His doctor instructed us that if it went over 101° that we needed to bring him to the E.R. at OU Children’s Hospital in OKC, so that’s where we are now.

We left home around 11:00pm and arrived at the E.R. about 12:30am. They got us in immediately and accessed his port to rule out an infection there. They drew blood for labs and immediately put him on an all-encompassing I.V. antibiotic. They gave him an all-over physical assessment looking for bruising and rashes due to low blood counts and did a nasal swab. At 4:45am they had us admitted and got us to a room. Once again, they did an all over assessment of his lungs, ears, nose, throat, and skin. His nasal swab tested positive for rhinovirus. — he has a common cold. We finally got to sleep at about 5:45 this morning. 🥱

As of right now, they anticipate him being here until Monday morning as they run tests to rule out any infections that could be hiding, to continue the antibiotics, and possibly give him some blood.

PRAYER REQUESTS
• Blaise’s blood counts recover
• the virus runs its course quickly and without issue
• no more runny nose and sore throat
• doctors release us as soon as possible

❤️🚀🎗️

We spent the day in Stillwater helping Oklahoma State University Cowboys vs Cancer and the Eddie Sutton Foundation raise...
05/19/2026

We spent the day in Stillwater helping Oklahoma State University Cowboys vs Cancer and the Eddie Sutton Foundation raise money to help families fighting cancer! It was the biggest day of fundraising at the annual Cowboy Classic Golf Tournament with $225,000 raised!!! 🤠🧡🎗️

“We do a lot of things, but this is THE BEST thing we do as Oklahoma State University athletics.” — Chad Weiberg, Athletic Director

📹: Video of a shootout between Blaise and Pistol Pete in the comments! 👇🏼👇🏼

👨🏻‍⚕️🧑🏼‍⚕️ HAPPY NURSES DAY 👩🏾‍⚕️🩺We want to give a huge shout out to the countless nurses, techs, and physical therapis...
05/07/2026

👨🏻‍⚕️🧑🏼‍⚕️ HAPPY NURSES DAY 👩🏾‍⚕️🩺

We want to give a huge shout out to the countless nurses, techs, and physical therapists that have helped us along the way during our 4-year fight against brain cancer. There are WAAAAAYYYYYY too many to try to name. We are forever grateful for all of the help, comfort, laughs, answers, insight, snacks, meds, encouragement, hope, … EVERYTHING you all have given us!

There’s a special place in Heaven for medical staff who go above and beyond….especially for pediatric patients. ❤️🚀🎗️

We LOVE you all!!!

Blaise was a guest of honor at the Oklahoma State Cowgirl Softball game today! He got the VIP tour, an autographed soft...
05/03/2026

Blaise was a guest of honor at the Oklahoma State Cowgirl Softball game today! He got the VIP tour, an autographed softball, a pitching lesson, and threw out the first pitch! Thank you to Oklahoma State University Cowboys vs Cancer and The Eddie Sutton Foundation for inviting us. We had a BLAST!!! 🧡🥎

🎥: videos in comments👇🏼
📸: family photo creds to Larry Reece

UPDATEDoctor McNall has decided to hold off on the chemo for a week or two because Blaise’s platelets and blood counts h...
03/18/2026

UPDATE

Doctor McNall has decided to hold off on the chemo for a week or two because Blaise’s platelets and blood counts haven’t recovered enough yet. We will start the cocktail of antiangiogenics today though.

PRAYER REQUEST

• Blaise’s bone marrow recovers from the temozolomide and begins to crank out platelets, red blood cells, and white blood cells.

🩸💪🏼 🦴

Blaise was asked to represent Make-A-Wish Oklahoma today at the The University of Tulsa basketball game. The Chi Omega ...
03/08/2026

Blaise was asked to represent Make-A-Wish Oklahoma today at the The University of Tulsa basketball game. The Chi Omega Epsilon Gamma at The University of Tulsa sorority does fundraising for Make-A-Wish every year to help grant wishes. Their philanthropy helped send Blaise on his wish trip to Walt Disney World.

As the guest of honor, Blaise got to join the girls on the court as they announced their upcoming fundraising efforts for Make-A-Wish Oklahoma. (video in comments) 👇🏼👇🏼👇🏼

We would love it if you would help out the girls of Chi Omega by donating what you can to their fundraiser. $1? $5?? $20??? $100???? Anything!

Their goal is $7500.

Click the link below or scan the QR code to donate! They’re great supporters of Blast Off Blaise, so let’s be great supporters of them!!! ❤️🚀🎗️

Please LIKE and SHARE this post to get it out there to all of the Blast Off Blaise fans!

⬇️ Click here to be a generous GIVER!! ⬇️

https://secure2.wish.org/site/TR?pg=team&fr_id=7463&team_id=58288&s_src=nuclavismobile&s_subsrc=Nucl_Web_TmsQRC

UPDATEPeople have been asking about Blaise’s MRI results, and until today we hadn’t met with doctor’s about it or heard ...
02/26/2026

UPDATE

People have been asking about Blaise’s MRI results, and until today we hadn’t met with doctor’s about it or heard any in-depth results except “the scans look good!”

Today we met with Dr. McNall. She said the scans “look wonderful.” The two lesions in his brain that they were concerned about are gone from the MRI scan. There is currently NO EVIDENCE OF ACTIVE DISEASE. 🙌🏼

Some doctors believe we *could* move forward without any kind of treatment, but with the aggressiveness of group 3 medulloblastoma we feel like we should be more proactive to avoid having to be reactive. Blaise is scheduled to begin a modified MEMMAT protocol in a week or two.

MEMMAT is an antiangiogenic and metronomic chemotherapy protocol (which means it blocks his body from growing new blood vessles that would feed tumors) and is used to treat recurrent or progressive pediatric brain tumors like medulloblastoma. It combines low-dose daily oral drugs (thalidomide, celecoxib, fenofibrate, etoposide, cyclophosphamide) along with IV bevacizumab to target tumor blood vessels. This protocol has been shown to be well-tolerated by patients for years. He would take the medicine daily alternating between the two types of chemo every 21 days and receive the IV bevacizumab every 21 days as well. He would be on it for a maximum of about 2 years because medulloblastoma recurs quickly so 2 years clear would pretty much ensure that it is gone.

As of right now, those are our next steps. We appreciate all of the prayers and support everyone offers. It is all very needed and very appreciated. We continue to fight while putting our trust fully in God and continuing to live our life. We couldn’t do it all without Him and without y’all. ❤️🚀🎗️

PRAYER REQUESTS:
• Insurance approves all medications requested
• Blaise’s hemoglobin and platelets continue to improve
• Cancer is gone for GOOD
• MEMMAT protocol is well-tolerated with no side effects or reductions in dosages

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OK-97
Sand Springs, OK
74063

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