Grace Science Foundation

Grace Science Foundation We are changing how scientific research is done by working to find a cure for NGLY1 Deficiency. Like many stories of hope, ours begins with struggle.

In 2013, Grace Wilsey was diagnosed with a rare genetic disorder called NGLY1 Deficiency. Her parents, Matt and Kristen, quickly discovered the incredible challenges they faced. At the time, Grace was one of only six known patients worldwide. Diseases that rare weren’t on the radars of big labs or pharmaceutical companies. Funding for research was virtually nonexistent. The world wasn’t set up to

save Grace. So Matt and Kristen did what any good parents would do — they set out to change the world. And so Grace Science Foundation was born. We are dedicated to pioneering approaches to scientific exploration that are faster, less expensive and more collaborative. Our advances aren’t just bringing us closer to a cure for NGLY1 Deficiency, they are being used to discover and treat countless other diseases. In this way, our work doesn’t just help the few — it impacts the lives of billions.

Celebrating the universal themes of freedom, resilience, and renewal. Wishing a meaningful Passover to those that celebr...
04/01/2026

Celebrating the universal themes of freedom, resilience, and renewal. Wishing a meaningful Passover to those that celebrate!

Today on , we stand with the millions living with epilepsy and the rare disease heroes who fight hidden battles every s...
03/27/2026

Today on , we stand with the millions living with epilepsy and the rare disease heroes who fight hidden battles every single day.

Celebrating all the love and joy that these kiddos bring to the world. Happiest of birthdays! 🎉
03/26/2026

Celebrating all the love and joy that these kiddos bring to the world. Happiest of birthdays! 🎉

Have a lucky day! 🍀
03/17/2026

Have a lucky day! 🍀

May this season of colors fill your life with happiness, harmony, and joyful moments.
03/04/2026

May this season of colors fill your life with happiness, harmony, and joyful moments.

Rare is resilient. Behind every statistic is a story. A family. A child who inspires us to work faster, think bigger, an...
02/28/2026

Rare is resilient. Behind every statistic is a story. A family. A child who inspires us to work faster, think bigger, and push harder. Today, we honor the "rare" community. The warriors who navigate the unknown with more courage than most will ever know.

Happy birthday to all NGLY1 February birthdays! Cheers to another trip around the sun. Wishing you a year as wonderful a...
02/28/2026

Happy birthday to all NGLY1 February birthdays! Cheers to another trip around the sun. Wishing you a year as wonderful as you are!

To the hands that hold, the hearts that listen, and the spirits that never waver: Happy . 💙
02/20/2026

To the hands that hold, the hearts that listen, and the spirits that never waver: Happy . 💙

Wishing a blessed and peaceful Ramadan to all in our community. May this month of reflection inspire us all to lead with...
02/18/2026

Wishing a blessed and peaceful Ramadan to all in our community. May this month of reflection inspire us all to lead with compassion and generosity. 🌙✨

Galloping into the Year of the Fire Horse! 🐎🔥 A year that will be defined by high energy and a passion for change, we wa...
02/17/2026

Galloping into the Year of the Fire Horse! 🐎🔥 A year that will be defined by high energy and a passion for change, we want to wish you a Happy Lunar New Year!

Happy President's Day! 🇺🇸
02/16/2026

Happy President's Day! 🇺🇸

To the community that makes our work so rewarding: Happy Valentine's Day. We’re grateful for you!
02/15/2026

To the community that makes our work so rewarding: Happy Valentine's Day. We’re grateful for you!

Address

San Francisco, CA

Website

Alerts

Be the first to know and let us send you an email when Grace Science Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Grace Science Foundation:

Shortcuts

Share

Category