Hairy Cell Leukemia Foundation

06/11/2026

👍 More options. More knowledge. More hope.

One message from the updated HCL consensus guidelines is clear: care continues to move forward.

Today, patients have more treatment options, more personalized approaches, and a better understanding of HCL than ever before.

Every person's journey is unique, and these advances are helping patients and healthcare teams make more informed decisions together.

👉 You can find the updated guidelines on our published research page:
https://www.hairycellleukemia.org/published-research

06/10/2026

🟢 Completing your Hairy Cell Leukemia (HCL) treatment can be a huge relief. Still, upcoming blood draws, scans, or the anniversary of your diagnosis may bring anxiety about the possibility of HCL returning.

Memorial Sloan Kettering Cancer Center—a recognized HCL Center of Excellence—addresses this topic. Remember, fear of recurrence is common and does not mean there is anything wrong with you.

The article explains why blood draws, monitoring, and anniversaries can feel especially difficult. It also suggests ways to build a care team that supports your emotional needs and offers practical tools to help manage anxiety.

This article offers valuable insights for survivors.
👉

After completing treatment for cancer, the fear that it will come back is normal — and something that can be managed.

06/08/2026

🟢 Bill’s story shows that even after several relapses, there are still effective treatment options. He stays in touch with his care team, keeps up with the research, and watches his health. This helps him handle any side effects or setbacks as he moves forward.

If you are facing a relapse right now, there is hope. Research is moving forward, and new treatments are being studied.

Read real stories from other patients!

Visit: https://www.hairycellleukemia.org/stories

Your journey could help someone else. Share your story with us!

06/07/2026

June 7th is National Cancer Survivors Day. Today, we celebrate the hairy cell leukemia community, united by strength and hope. Together, we honor the battles fought, the treatments endured, and the resilience that keeps us moving forward.

We want to hear from you. No matter if you were diagnosed last year or many years ago, your story matters. It could be just what someone newly diagnosed needs to hear today.

Share your story with us and help show the world what it means to be an HCL survivor.

You can share your story at the link below:
https://www.hairycellleukemia.org/share-your-story

06/07/2026

On National Cancer Survivors Day, we celebrate every patient who has faced hairy cell leukemia. Your strength, support, and stories are what make this community special.

Do you have an HCL story to share? We would love to hear it, and someone out there may need to hear it right now, too.

You can share your story at this link: https://www.hairycellleukemia.org/share-your-story.

06/05/2026

🚨 MAÑANA 🚨

Sábado 6 de junio, 2026

11:00 AM a 12:00 PM (hora del este de los Estados Unidos)

¡No te la pierdas! Únete a nosotros para conectar, compartir experiencias y apoyarnos mutuamente. Todos están invitados.

Puedes registrarte a través del enlace a continuación:

https://www.hairycellleukemia.org/calendar/2026/6/6/mesa-redonda-en-espaol-roundtable-for-spanish-speakers

06/04/2026

When patients have the right information, they often feel more prepared, confident, and informed.

The updated HCL consensus guidelines are not just a scientific update. They show ongoing progress in how hairy cell leukemia is diagnosed, treated, and monitored.

For patients and their families, this means:
👍 A better understanding of treatment options
👍 More informed conversations with your healthcare team
👍 Greater awareness of testing, monitoring, and how to manage relapse
👍 Ongoing progress toward more personalized care

Every question is important. Every patient’s journey matters.

You can find the updated guidelines on our published research page: https://www.hairycellleukemia.org/published-research

06/03/2026

🟢 Do you have questions about hairy cell leukemia (HCL)? Hear directly from an expert and get the answers you need.

Join us on Wednesday, June 17, from 2:00 to 3:00 PM ET for a free webinar with Dr. James Blachly from The Ohio State University, an HCL Center of Excellence. He will discuss diagnosis, standard treatments, and the latest research, and will answer your questions live.

This event is for patients and families. Feel free to bring any questions you have.

Register here: https://www.hairycellleukemia.org/calendar/2026/6/17/webinar-understanding-hairy-cell-leukemia-hcl

06/02/2026

"My oncologist had been practicing for over 40 years, and I was patient number 4."

This is the reality for many people with hairy cell leukemia. The disease is so rare that doctors at major hospitals might have seen only a few cases. Still, there are experts who truly understand it.

One patient with HCL found this expertise by traveling to the Ohio State University twice a year for care. He says the knowledge at an HCL Center of Excellence is on a different level.

When it was time to think about treatment, his team explained all his options and the pros and cons of each. They let him decide. Both choices were good, and he felt confident in choosing the one that worked best for him.

He was able to choose because he had the right team supporting him.

If you or someone you care about has just been diagnosed with HCL, getting a second opinion from a specialist can really help. You deserve a team that truly understands this disease, and those teams are out there.

The Hairy Cell Leukemia Foundation has identified hospitals across the country with real expertise in HCL, so you know where to go for help.

Explore our Centers of Excellence: https://www.hairycellleukemia.org/centers-of-excellence

06/01/2026

We invite you to join us tomorrow for the Hairy Cell Leukemia Foundation's Community Roundtable. This is a welcoming Zoom space for patients and families to connect, share their stories, and support each other.

📅 Tuesday, June 2nd

⏰ 9:30 AM PT | 11:30 AM CT | 12:30 PM ET

📍 Online via Zoom

Please note, this is a peer-to-peer forum and there will not be any doctors present.

Everyone is welcome to join!

👉 Sign up here: https://www.hairycellleukemia.org/calendar/2026/6/2/community-roundtable-open-to-everyone