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Hairy Cell Leukemia Foundation

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Hairy Cell Leukemia Foundation

Official FB of the Hairy Cell Leukemia Foundation, a nonprofit 501c3 organization. We fund leading research and support patients and families around the world.

08/28/2026

Today's treatment advances are possible because of years of clinical research and the participation of patients, physicians, and researchers working together to improve care.

The Hairy Cell Leukemia Foundation's Clinical Trials page brings together actively recruiting clinical trials, research participation opportunities, and educational webinars featuring the investigators leading important HCL studies.

Whether you're looking to learn about current research or prepare for a conversation with your healthcare team, trusted information is the first step.

Visit our new Clinical Trials page to explore the latest research and educational resources for people living with HCL and HCLv.
https://www.hairycellleukemia.org/clinicaltrials

08/26/2026

🟢 Many people with HCL worry about their risk for infection. But as Dr. James Blachly shared in our recent 'Understanding Hairy Cell Leukemia' webinar, an HCL diagnosis doesn’t mean you have to stop living your life.

Dr. Blachly suggests using common sense and taking reasonable precautions: Stay up to date on vaccines, be careful in places where you might get sick, and keep in touch with your care team. Importantly, keep doing the things that matter to you.

You can be careful and still stay connected with friends and family, and engage in the healthy activities that uplift and empower you.

🔗 Watch the full webinar at hairycellleukemia.org/june-2026-understandinghcl-webinar

08/25/2026

⏰ Don't forget! Our HCL Community Roundtable is tomorrow, August 26th, at 10 a.m. PT / 1 p.m. ET / 12 p.m. CT.

HCL Community Roundtables are a free, peer-to-peer forum for individuals with HCL or HCL variant and their families to connect and support each other. Sessions are conducted via Zoom and facilitated by HCLF staff and volunteers.

After a brief welcome from HCLF, participants will join small breakout groups of approximately 5 to 6 people. This format allows everyone to ask questions and connect with others who share similar experiences.

Anyone affected by HCL is welcome, no matter where you live.

We hope to see you there: https://www.hairycellleukemia.org/calendar/2026/8/26/hcl-community-roundtable-open-to-everyone

08/24/2026

💚 Going through HCL treatment can feel lonely.

After Lisa started treatment, she stayed home except to see her doctor. Her friends and family brought healthy meals, and daily phone and video calls helped her feel connected when she couldn’t see them in person.

Her experience reminds us that support takes many forms. It might be a home-cooked meal, a twenty-minute phone call - simply being there for someone, even if you can’t be in the same room.

If you want to read more stories about support and coping, or if you’d like to share your own, visit our website: https://www.hairycellleukemia.org/patient-stories-support-and-coping

If you’re helping someone through treatment, your support matters.

08/21/2026

Everyone’s experience with Hairy Cell Leukemia (HCL) is different. Some people have just been diagnosed, while others are thinking about treatment after a relapse. There are also people living with HCL variant (HCLv), which may need different treatment options.

Clinical trials are created to answer different research questions for each patient’s situation.

Our Clinical Trials page helps you find studies based on your treatment history, treatment type, and HCL subtype. This can help you see which research opportunities might be worth discussing with your healthcare team.

Take a look at our new Clinical Trials page to learn more about research that supports every stage of the HCL journey.
https://www.hairycellleukemia.org/clinicaltrials

08/19/2026

Many people diagnosed with HCL do not have any symptoms. This is known as being asymptomatic.

Other patients do have symptoms.

A common issue is anemia, which means having a low red blood cell count. Anemia often leads to fatigue. For example, someone who is usually active might suddenly feel exhausted doing things that used to be easy. They might play tennis regularly or walk every day, but now find it hard to keep up.

While anemia can cause fatigue, some patients feel tired likely because of the leukemia itself, even if their hemoglobin levels are normal.

If you are feeling unusually fatigued, you should think about sharing your symptoms with your medical team.

🔗 Watch a recording from our June 2026 webinar to learn more: hairycellleukemia.org/june-2026-understandinghcl-webinar

08/17/2026

🟢 Everyone deserves to understand their diagnosis, no matter what language they speak.

Patricia, who is part of our Spanish-speaking Hairy Cell Leukemia community, told us how having resources in Spanish has helped her. She has been able to join webinars and roundtables and connect with others living with HCL who also speak her first language.

Having a supportive community and clear information can make a big difference when facing a diagnosis. That’s why we’re committed to strengthening our series of Spanish-language roundtables and webinars, so every patient has access to helpful resources and support.

You can find our Spanish-language resources here: https://www.hairycellleukemia.org/hispanicoutreach

08/14/2026

Staying informed today helps you feel more prepared for tomorrow.

Learning about clinical research ahead of time can help you feel ready and confident when talking with your healthcare team about treatment choices.

We designed our new Clinical Trials page to help you find studies more easily. You can search by treatment type, treatment history, or HCL subtype.

Take a look at our new Clinical Trials page to find current studies, research opportunities, and helpful resources.
https://www.hairycellleukemia.org/clinicaltrials

08/13/2026

📬 Stay informed with the Hairy Cell Leukemia Foundation's latest news!

Subscribe to our monthly newsletter for exclusive updates, inspiring stories, and the latest advances in HCL care.

Each month, you'll get vital information about upcoming events, expert insights, patient resources, and leading-edge research in Hairy Cell Leukemia.

Don't miss out—join our community today: https://lp.constantcontactpages.com/sl/zXgaTYb/linktree

08/12/2026

🟢 Why do some people with Hairy Cell Leukemia (HCL) get unusual infections?

During our June 2026 webinar, Dr. James Blachly from Ohio State University explained that a key feature of HCL is having fewer monocytes, which are a type of white blood cell. People with untreated HCL often have low monocyte counts. This probably raises their risk for unusual infections before treatment. Sometimes, doctors find HCL because a patient develops an infection.

Dr. Blachly also stressed that having a higher risk for infections does not mean you need to isolate unnecessarily or stop living your life. Instead, he recommends using common sense, keeping up with vaccines, and staying in touch with your care team.

You can find the webinar recording and Q&A summary at the link below.
hairycellleukemia.org/june-2026-understandinghcl-webinar

Address

77 Van Ness Avenue Ste 101 #1617
San Francisco, CA
94102

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+12243557201

Website

https://linktr.ee/hairycellleukemia, https://www.hairycellleukemia.org/

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