06/16/2026
Advances made possible through funded research continues to help our community understand that epilepsy is NOT a monolith. Please join us in raising awareness of CDKL5, SynGap1, and Dravet Syndrome during their upcoming awareness days—
💜 June 17 is CDKL5 Awareness Day! First identified in 2004, CDKL5 stands for cyclin-dependent kinase-like 5, and its location is on the X chromosome. CDKL5 deficiency disorder is a developmental epileptic encephalopathy caused by mutations in the CDKL5 gene, which can manifest in a broad range of clinical symptoms and severity. Learn more about CDKL5, including treatments, clinical trials, and resources by visiting cdkl5.com.
💜 June 21 is SynGAP1 Awareness Day! First identified in 2009, the SYNGAP1 gene is located in the brain and provides instructions for making a protein called SynGAP that plays a vital role in nerve cells in the brain. More than 80% of individuals with SYNGAP1 mutations have generalized epilepsy, with focal seizures occurring only in a minority of cases. For more information, including research resources and SynGAP patient stories, visit www.syngap1foundation.org.
💜 June 23 is International Dravet Syndrome Awareness Day! Dravet syndrome is a rare, intractable developmental and epileptic encephalopathy. Over 90% of those diagnosed with Dravet syndrome have an SCN1A mutation, which can lead to a spectrum of disorders ranging from migraines, childhood epilepsy, or more severe and life-long epilepsy syndromes. Visit dravetfoundation.org for more information, including available treatments, family networks and support groups, and Dravet stories.
