Joey's Wings Foundation

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Joey's Wings Foundation Joey's Wings' mission is to support cutting edge research that focuses on kidney cancers affecting c

Joey's Wings aims to hasten and advance the development of new effective treatment options for children and young adults who are dealing with a kidney cancer. 100% of all donations made will be used towards research and treatment options.

10/12/2026

Join us for the 12th Annual Joey’s Wings 5K in Gainesville, Florida! Run or walk, bring your friends, and help turn compassion into action. 🏃‍♀️🪽
Sign up today: https://runsignup.com/Race/28147/RaceInsurance

Join us in Gainesville, Florida, for the 12th Annual Joey’s Wings 5K!For 12 years, this community has come together in J...
10/10/2026

Join us in Gainesville, Florida, for the 12th Annual Joey’s Wings 5K!

For 12 years, this community has come together in Joey’s memory to bring hope to other families. Whether you run, walk, or cheer, bring your family and friends and help us make every step meaningful. Together, we can honor the children we have lost, encourage those in treatment, and help move research forward.

We’re excited to invite you to join us for the 2026 Joey’s Wings 5K in Gainesville, Florida on Saturday November 14th!Th...
09/30/2026

We’re excited to invite you to join us for the 2026 Joey’s Wings 5K in Gainesville, Florida on Saturday November 14th!

This year the run will benefit 12 year old Joseph, who was just diagnosed last month in August with Burkitt lymphoma, a rare and extremely aggressive form of non-Hodgkin lymphoma. Within four days of discovering the mass, Joseph had undergone extensive testing, received his official diagnosis, and started chemotherapy at Shands Children's Hospital.

Thank you for continuing to stand beside Joey’s Wings and the families we serve. We can’t wait to see you at the starting line!

Sign up at: https://runsignup.com/Race/FL/Gainesville/joeysrun

This week, Joey’s Wings advocates walked the halls of Capitol Hill with KidneyCAN carrying more than talking points and ...
09/24/2026

This week, Joey’s Wings advocates walked the halls of Capitol Hill with KidneyCAN carrying more than talking points and funding requests. We carried the stories of kidney cancer patients and families—those still fighting, those desperately waiting for better treatments, and those we have lost far too soon.

The Kidney Cancer Research Program (KCRP), part of the Department of Defense’s Congressionally Directed Medical Research Programs (CDMRP), received $50 million annually from FY2021 through FY2024. In FY2025, that funding fell to $0. Funding was restored for FY2026, but at only $15 million—less than one-third of its FY2024 level.

For FY2027, we are asking Congress to restore KCRP funding to $50 million—back to the FY2024 level.

We walked into those Congressional offices with one shared message: we cannot afford to lose the momentum of kidney cancer research.

Behind every research dollar is a scientist searching for an answer. Behind every study is a patient waiting for one. And behind every request we make to Congress are families hoping that the next discovery comes in time.

Keep the research moving. Keep hope alive.

CureFest was both an advocacy event and a place for connection, remembrance, and healing. Grief and hope existed side by...
09/21/2026

CureFest was both an advocacy event and a place for connection, remembrance, and healing. Grief and hope existed side by side; so did tears and strength.

Flew to DC midnight for the Childhood Cancer Data Initiative symposium today — an NCI effort launched in 2019 to collect...
09/19/2026

Flew to DC midnight for the Childhood Cancer Data Initiative symposium today — an NCI effort launched in 2019 to collect, harmonize, and share clinical, genomic, and imaging data from pediatric cancer patients across institutions.

CCDI helps turn information from individual children’s cancer journeys into shared knowledge that may help future patients. For rare cancers such as Joey’s, inclusion in CCDI is especially important because meaningful discoveries require data to be combined across many hospitals and research networks.

We left encouraged by the progress, but also reminded that rare cancers must be intentionally included. Children like Joey—and every child diagnosed with a rare cancer—deserve to be represented in the databases that will shape the future of pediatric cancer research.

09/18/2026

We are deeply grateful to the San Diego City Council for proclaiming September as Childhood Cancer Awareness Month.

Special thanks to Council President Pro Tem Kent Lee for helping make this proclamation possible and for giving David the opportunity to speak and share why this recognition matters.

We are also especially thankful to Councilmember Jennifer Campbell, a family physician, for reminding our community of the importance of early detection, compassionate care, and continued childhood cancer research.

And thank you to Councilmember Henry Foster and to every member of the City Council for standing with our children and families.

For families affected by childhood cancer, a proclamation is more than a piece of paper. It means our children are seen. Their stories are heard. The children we have lost are remembered. And the urgent need for better treatments and cures is recognized by our city.

Thank you, San Diego, for standing with us. 💛

09/17/2026

Look up when you walk into The New Children's Museum in San Diego.

Above you, 2,000 colorful origami cranes are spreading their wings—each one representing a child whose life is lost to cancer in the United States each year. Hung down from the ceilings are the yellow stripes with names of childhood cancer survivors.

From a distance, they are beautiful: thousands of colors floating overhead, gently turning with the air as if they are about to take flight.

But behind that beauty is a heartbreaking reality.

Each crane represents a child who had a name, a family, a laugh, a dream, and a future that should have been much longer.
Together with the display are the arts created by pediatric cancer patients treated at Rady Children’s Health.

And as the 2,000 cranes turn gently above them, they remind us of the children who should still be here—playing, creating, laughing, and dreaming too.

3-year-old Reign is at the very beginning of a difficult medical journey after being diagnosed with Wilms tumor in the s...
09/10/2026

3-year-old Reign is at the very beginning of a difficult medical journey after being diagnosed with Wilms tumor in the spring of 2026 at UF Health Shands. She has already undergone surgery to remove the upper right lobe of her lung due to a mass, and doctors have also identified a large tumor on her right kidney along with spots on both lungs. Reign is now in the midst of six weeks of active chemotherapy, requiring weekly treatments every Tuesday, each involving a long round trip of over an hour and a half each way. After chemotherapy, she is expected to undergo surgery to remove her right kidney, followed by radiation to address the remaining spots in her lungs.

Despite everything she has already faced at such a young age, Reign continues to fight with incredible strength. We are inspired by her bright smile and hope for her recovery.

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San Diego, CA
92130

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