Carly's Cause

Carly's Cause "Carly's Cause is dedicated to providing technology, therapeutic services, and financial assistance t

01/21/2026

Autism and affection:
From the time Carly’s sensory processing disorder started to kick in regarding touch and tactile input, she became uncomfortable with affection. As a mother who is already on high alert trying to protect and nurture a child who cannot care for themselves, this is a very difficult thing to accept. But over the years, Little consistent amounts of affection become acceptable. For example, as a parent, you can create a routine that includes tactile stimulation. In the morning when she wakes up, she spends five minutes or more in mommy‘s bed on her iPad, me on my cell phone. But we are together. Then over the years she starts taking over my side of the bed, seeking affection. In the evening we do a foot soak together. After drying her feet, she expects me to put lotion on them. And eventually moves closer to me for more affection. If you have a child with autism start to incorporate very small moments into their routine. They like everything to be done at the same time of day. And that Emptiness you might feel from their initial rejection of touch, will slowly be replaced by loving tender moments. Have a great day parents. 

01/02/2026

Q: I’m a special needs mom. My daughter is 16 now and I’ve been through so many stressful and traumatic situations with her that I have lost a good portion of my emotions. I feel stable but emotionally numb. My brain is high functioning and I’m even in a doctoral program.But I noticed that it’s very difficult to elicit an emotional response from me. Only once in a while, do i cry during a sad movie. What do you think this might be?

A: First, I want to say this very clearly: what you’re describing is understandable and common in people who have lived for a long time under chronic stress and trauma, especially caregivers of children with significant needs. There is nothing about this that suggests weakness, lack of empathy, or something “wrong” with you as a person.

What you’re noticing—feeling emotionally stable but numb or muted—can happen for several reasons. I’ll outline the most common possibilities, not as diagnoses, but as frameworks that clinicians often use to understand this pattern.



1. Emotional numbing from chronic stress or trauma

When someone has spent years in high-alert mode—advocating, protecting, problem-solving, managing crises—the nervous system sometimes adapts by turning down emotional intensity.

This is often described as:
• Feeling calm and functional
• Thinking clearly and performing well cognitively
• Reduced access to strong emotions (both painful and joyful)
• Emotions showing up only occasionally (like crying at a movie)

This isn’t your emotions disappearing—it’s more like the brain saying, “We’ve had to survive for a long time; let’s conserve energy.”



2. A protective nervous system response

From a neuroscience perspective, this can be related to a freeze or shutdown response (different from panic or fight-or-flight).

Key point:
This response is adaptive, not pathological. It often develops in people who had to stay composed and capable no matter what was happening around them—something many special-needs parents experience.

Your high cognitive functioning alongside emotional flattening fits this pattern very well.



3. Caregiver burnout or compassion fatigue

Long-term caregiving—especially when it includes trauma, unpredictability, or fear—can lead to:
• Emotional blunting
• Reduced reactivity
• Feeling “neutral” most of the time
• Difficulty accessing sadness, joy, or tenderness

Burnout doesn’t always look like exhaustion or depression. In high-functioning people, it often looks exactly like what you’re describing.



4. This does not necessarily mean depression

Many people assume emotional numbness equals depression, but that isn’t always true.

Depression usually includes:
• Loss of motivation or meaning
• Hopelessness
• Low self-worth
• Persistent sadness or emptiness

You’re describing stability, clarity, and function, which suggests something different—more about emotional access than emotional loss.



5. Why emotions still show up sometimes

The fact that you do cry occasionally—like during a movie—is actually a good sign. It suggests:
• Your emotional system is still there
• It may just need safety, space, or resonance to come forward
• Strong, contained stimuli can bypass the “guard” your nervous system has built



What often helps (gently, over time)
• Trauma-informed therapy (especially somatic, EMDR, or parts-based approaches)
• Practices that work with the body, not just the intellect
• Environments where you don’t have to be “the strong one”
• Patience—this kind of numbness usually softens gradually, not suddenly

Importantly: trying to force emotion often backfires. The nervous system reopens when it feels safe enough.

Giving Tuesday! A day to make a difference. Carly's Cause has been serving families affect by having a child with a disa...
12/02/2025

Giving Tuesday! A day to make a difference. Carly's Cause has been serving families affect by having a child with a disability for 11 years. Our next step is to expand across the nation to share the lessons that were "hard learned" and bring to new families who might be struggling - Family Quality of Life (FQOL). We ask that you share whatever you can spare today! Can you help?

Hi, I'm Sandi Shaner, and I'm reaching out to you today to support Carly's C… Sandi Shaner needs your support for Donate to Carlys Cause: Make a Difference

Please support us this Giving Tuesday!
11/29/2025

Please support us this Giving Tuesday!

Hi, I'm Sandi Shaner, and I'm reaching out to you today to support Carly's Caus… Sandi Shaner needs your support for Donate to Carlys Cause: Make a Difference

10/16/2025

Broad Coalition of Disability, Civil Rights, and Education Organizations Call for Reversal of Layoffs at Department of Education

October 14, 2025, Washington, D.C. – A broad coalition of national, state, and local disability, civil rights, and education organizations is sounding the alarm over sweeping layoffs at the U.S. Department of Education. These cuts have gutted key offices—including the Office of Special Education Programs (OSEP), the Rehabilitation Services Administration (RSA), the Office for Civil Rights (OCR), and the Office of Elementary and Secondary Education (OESE)—threatening decades of progress in protecting students with disabilities.

These wholesale terminations place fundamental education laws in peril and place millions of children with disabilities at risk who receive services under the Individuals with Disabilities Education Act (IDEA), Section 504 of the Rehabilitation Act, and Title IV of the Workforce Innovation and Opportunity Act. These layoffs circumvent the will of Congress and dismantle 50 years of precedent upholding rights for students with disabilities. Without personnel to oversee these laws, the Department cannot provide essential leadership, oversight, guidance, or support to states and schools—jeopardizing students’ access to a free, appropriate public education and hampering the ability of states and localities to serve all students. In addition, the terminations also threaten the vocational rehabilitation system that helps youth and adults with disabilities become employed.

This year marks the 50th anniversary of IDEA, a law that has enjoyed strong bipartisan support for five decades. Rather than celebrating progress, we face a crisis: the dismantling of the very infrastructure Congress created to ensure children with disabilities could reach their full potential, potentially catapulting them back to a time of segregation and refusal to provide educational opportunities.

The undersigned organizations urge the Administration – and call on Congress to do the same – to reverse course immediately and restore staffing and transparency at the U.S. Department of Education. Strong federal leadership is not optional—it’s a moral and legal obligation for our nation’s children with disabilities.

**Signed:**

Carly’Cause

Hi Everyone We currently have 29 people confirmed for Saturday and have 19 more spots available. We will be looking into...
09/11/2025

Hi Everyone
We currently have 29 people confirmed for Saturday and have 19 more spots available. We will be looking into stuff like sound healing, pediatric massage for children with autism, how to get what you want at an IEP meeting, sustainable caregiving techniques to help avoid burnout, special needs trusts, conservatorships, and all the important stuff. You are welcome. sign up. We are providing lunch. 🙂

Finally -  An action plan at the point of diagnosis. This was never available to me when I was given the 15 diagnoses th...
08/29/2025

Finally - An action plan at the point of diagnosis. This was never available to me when I was given the 15 diagnoses that Carly has! Please forward this to every Special Needs parent!

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