12/29/2024
By now most of the people in our community have heard that at the last minute 4 vital pieces of childhood cancer legislation was cut from the end of the year package. We are devastated, and angry! Nancy Goodman described it best; "We have gone backwards. Today, the pediatric priority review voucher program has expired for the first time in 12 years. Now, after yielding 65 new drugs (includes cancer and rare diseases) for kids, there is no incentive for companies to develop drugs expressly for kids with cancer and other life threatening illnesses."
"The Give Kids a Chance Act, which had 235 House cosponsors, had gone through two House hearings, a markup and a House floor vote, is no more. Now, there’s no opportunity for companies to do studies of cocktails of new cancer drugs for kids."
"And now, kids on Medicaid with cancer who need out of state treatment may not be able to get it."
"January begins a new Congress and we will start all over. I hope you will help us get these bills passed into law as quickly as possible."
Please help get attention and awareness by spreading the word by sharing this with all your social media contacts. What can you do? Call and write you Congressman/woman and each of your Senators. It's easy ( https://4sqclobberscancer.com/on-capital-hill/contact-your-legislators/ ), but please be respectful. If you have a X (twitter) account and would be able to use it to help, PLEASE click here: https://4sqclobberscancer.com/reference/fix-it-4-kids-posts-for-x-twitter/
