LGS Foundation

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LGS Foundation

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from LGS Foundation, Nonprofit Organization, 6030 Santo Road, Suite 1, Unit 420878, San Diego, CA.

Nonprofit organization dedicated to improving the lives of individuals impacted by Lennox-Gastaut Syndrome (LGS) through advancing research, awareness, education, and family support. The LGS Foundation is a nonprofit organization dedicated to improving the lives of individuals living with Lennox-Gastaut Syndrome, a rare and severe form of epilepsy, through research, programs, and education.

10/17/2026

🎃 This October, we’re skipping the tricks and focusing on something that matters: your data.

👀 Your participation helps researchers learn more about the experiences of people living with LGS.

⏱️ Remember: Signing up only takes about 15 minutes, and you can complete all surveys at your own pace. This means you can return to your session any day without losing your progress. It’s completely free!

No tricks. Just one more opportunity to add your voice to LGS research.

🔗 Enroll via the link in our Bio or visit: lgs-core.iamrare.org

10/16/2026

Get ready to show your support this year during International LGS Awareness Day & Epilepsy Awareness Month with brand-new awareness apparel!

👕✨ Wearing LGS awareness gear sparks conversations, raises awareness, and connects you to the LGS community.

✈️ INTERNATIONAL SHIPPING AVAILABLE! 🤩

Every purchase supports the programs, resources, and research our LGS community depends on.

Let’s make this November the most impactful yet!

➡️ Shop the collection: bit.ly/LGSFoundation-Store

10/15/2026

💜 Thank you, BoujieMana Restaurant ! 💜

Throughout September, the amazing BoujieMana Mediterranean restaurant in San Diego invited customers to make a difference simply by dining with them.

Through its Boujie Hearts Always Give initiative, a portion of each purchase supported the LGS Foundation’s mission to improve the lives of individuals and families affected by Lennox-Gastaut Syndrome (LGS).

We’re so grateful to the BoujieMana team and everyone who dined with them and helped make this initiative a success. Your generosity makes a difference for the LGS community!

Thank you for opening your tables to our cause and showing how something as simple as sharing a meal can help advance LGS research. Your support means so much to us! 💜

10/10/2026

Purple and green aren't just colors for us. 💜💚

They start conversations in a grocery store line. It's a way of saying "I see you" to an LGS family having a hard week. It's how a stranger learns the words "Lennox-Gastaut Syndrome" for the first time.

Wearing it is small. What it opens up isn't.

Remember: November is almost here... time to grab your awareness gear and show your support for International LGS Awareness Day™ & Epilepsy Awareness Month! 💜

🆕 New T-shirt designs and styles for 2026
💜 Fan-favorite designs from past years are back in stock!
✈️ INTERNATIONAL SHIPPING AVAILABLE! 🤩

Every purchase supports the programs, resources, and research our LGS community depends on.

Let’s make this November the most impactful yet!

➡️ Shop the collection here: bit.ly/LGSFoundation-Store

10/09/2026

🎃👻 Trick or Treat for LGS! 👻🎃

This Halloween, spread more than candy... spread awareness!

Our ✨FREE✨ About LGS Trick-or-Treat Cards (available in English and Spanish) give families an easy way to introduce friends, neighbors, classmates, and community members to Lennox-Gastaut Syndrome (LGS). Hand one to other trick-or-treaters along the way, or slip one in with the candy when you answer the door. 💜

Halloween looks a little different in our houses. Maybe your kiddo doesn’t say “trick or treat.” Maybe they need help choosing, or the whole night is twenty minutes and then home, and that’s a win. These cards do the explaining for you, because awareness can start with one simple conversation.

👉 Order or download for FREE: bit.ly/lgs-trick-or-treat

10/08/2026

🎉 Are you ready?! Our Peer-to-Peer Fundraising Challenge starts RIGHT NOW!

With International LGS Awareness Day™ and Epilepsy Awareness Month upon us, there's no better time to get involved and make a difference! 💜

Walk, bake, stream, craft, host a dine-to-donate night, or come up with your own idea. Every dollar raised brings us closer to better treatments, stronger support, and breakthroughs for everyone affected by LGS. 💪💜

✨ NEW INCENTIVE: Fundraise and get a coupon for the LGS Foundation Store! ✨
Raise $500 - Get $25 off your LGS Store purchase
Raise $1,000 - Get $35 off your LGS Store purchase
Raise $1,500+ - Get $45 off your LGS Store purchase

Ready to make an impact? Start your Fundraiser here:
🔗 bit.ly/LGS-fundraisingchallenge

Questions? Send us a DM. We are here to help!

The challenge runs through Nov 30 at midnight. Let's DO THIS! 🚀💜

10/07/2026

What does LGS look like over time?
Which treatment works best?
What are families experiencing that researchers need to understand?

Those are the scary questions because there isn’t enough data to answer them. The answers start with data from people living with LGS and their caregivers.

✨ That’s why the LGS-CORE Study matters.

🎃 This October, help us uncover more answers by enrolling in the LGS-CORE Study and completing the surveys.

⏱️ Remember: Signing up only takes about 15 minutes, and you can complete all surveys at your own pace. This means you can return to your session any day without losing your progress. It’s completely free!

Don’t let important questions stay unanswered.

🔗 Enroll today: lgs-core.iamrare.org

10/06/2026

The LGS Foundation store is live!🎉

November is almost here... time to grab your awareness gear and show your support for International LGS Awareness Day™ & Epilepsy Awareness Month! 💜

🆕 New T-shirt designs and styles for 2026
💜 Fan-favorite designs from past years are back in stock!

Every purchase supports the programs, resources, and research our LGS community depends on.

Let’s make this November the most impactful yet!

➡️ Shop the collection here: bit.ly/LGSFoundation-Store

10/05/2026

A very strong El Niño is expected this winter, and for many families that means storms, flooding, and power outages. If you're caring for someone with Lennox-Gastaut Syndrome, planning ahead can make a hard moment easier.

Swipe for a quick prep guide: what to pack, how to plan for a power outage, and where to find help. 💚

Save this for later and send it to another LGS family.

Access all our Disaster Relief Resources: lgsfoundation.org/disaster-relief/

Need help? [email protected]

Address

6030 Santo Road, Suite 1, Unit 420878
San Diego, CA
92124

Telephone

+17183743800

Website

http://www.lgsfoundation.org/

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Contact The Organization

Send a message to LGS Foundation:

Water4Life Ministry
PO Box 23361

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