LGS Foundation

LGS Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from LGS Foundation, Nonprofit Organization, 6030 Santo Road, Suite 1, Unit 420878, San Diego, CA.
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Nonprofit organization dedicated to improving the lives of individuals impacted by Lennox-Gastaut Syndrome (LGS) through advancing research, awareness, education, and family support. The LGS Foundation is a nonprofit organization dedicated to improving the lives of individuals living with Lennox-Gastaut Syndrome, a rare and severe form of epilepsy, through research, programs, and education.

06/17/2026

✨ Unique, amazing, adventurous, and for the whole family!

This year, we're bringing something truly special to the 10th International Family & Professional Conference: Camp Small Steps. 🌲💜

Designed especially for LGS families, this experience offers a sensory-aware, welcoming environment with gentle activities, creative play, and space to relax side by side. It’s not about doing everything, it’s about being together, at your own pace, one small step at a time.

And that’s just one part of what makes this conference so meaningful. From education to connection, you’ll be surrounded by a community that understands your journey.

If you weren’t able to join us this year, know that you are missed and that we will be thinking of you. Sessions will be recorded and shared on our YouTube channel after the conference, so you won’t miss a thing.

📅 July 9-11, 2026
📍 Caribe Royale Orlando, FL

See you in Orlando! ☀️

🌟 A big thank you to for making this event a reality! Your support strengthens our community and brings us all together.

💡 Did you know that joining the LGS-CORE Study is completely free?There is no cost to patients or families to participat...
06/12/2026

💡 Did you know that joining the LGS-CORE Study is completely free?

There is no cost to patients or families to participate, and you won't be asked for payment at any point.

Your only investment is your story, and that story has the power to change the future of LGS care. 💜

⏱️ Remember: Signing up only takes about 15 minutes, and you can complete all surveys at your own pace. This means you can return to your session any day without losing your progress.

👉 Learn more and register: https://www.lgsfoundation.org/lgs-registry/

Swipe to meet the Family and Professional Conference Speakers - Part 2! ➡️Clinicians at the top of their field and voice...
06/11/2026

Swipe to meet the Family and Professional Conference Speakers - Part 2! ➡️

Clinicians at the top of their field and voices that carry the full weight of lived experience with LGS.

This is what makes the LGS Conference different. It’s not just lectures and slides. It’s the right people, all in one place.

📅 July 9-11, 2026
📍 Caribe Royale Orlando, FL

See you in Orlando! ☀️

🥼🩺 Do you know a doctor who understands Lennox-Gastaut Syndrome (LGS)?Finding the right care for LGS can feel overwhelmi...
06/10/2026

🥼🩺 Do you know a doctor who understands Lennox-Gastaut Syndrome (LGS)?
Finding the right care for LGS can feel overwhelming, and families often rely on each other to find providers who truly understand the complexity of this diagnosis.
If you had a positive experience with a doctor who treats LGS, you can help another family by sharing their information. Your recommendation could make all the difference to someone seeking knowledgeable, compassionate care.
💜 Together, we can strengthen the LGS community and help families connect with the support they need.
🔗 Recommend a physician and explore our growing directory here: https://www.lgsfoundation.org/find-a-doctor/

06/08/2026

Connection. Education. Community. 💜
The International Family & Professional Conference brings the LGS community together for three days of learning, support, and meaningful connections.
Families like Jordan Bradley’s are attending because being surrounded by people who share your journey truly matters.
📍 Orlando, FL
📅 July 9–11, 2026
Remember: Registration will close as soon as spots are filled, and only a limited number of rooms remain at the Caribe Royale Orlando.
👉🏼 Children 17 and under, including individuals diagnosed with LGS, attend at no cost but must still be included during registration.
🔗 Register here: bit.ly/conference2026-registerhere
🙋🏻‍♀️ Want to learn more before registering? Please visit: lgsfoundation.org/lgs-conference
Questions? Reach the team at [email protected]
See you in Orlando! ☀️💜
🌟 A big thank you to Neurelis, Harmony Biosciences, and Cosette Pharmaceuticals for making this event a reality! Your support strengthens our community and brings us all together.

🚨 Almost sold out 🚨Only 10 spots remain for the 10th International Family & Professional Conference!Join families, careg...
06/05/2026

🚨 Almost sold out 🚨

Only 10 spots remain for the 10th International Family & Professional Conference!

Join families, caregivers, professionals, and advocates for three days of learning, connection, and community.

📍 Orlando, FL
📅 July 9–11, 2026

Remember: Registration will close as soon as these spots are filled, and only a limited number of rooms remain available at the Caribe Royale Orlando.

👉🏼 Children 17 and under, including individuals diagnosed with LGS, attend at no cost, but must still be included during registration.

🔗 Register here: bit.ly/conference2026-registerhere

🙋🏻‍♀️ Want to learn more before registering? Please visit: lgsfoundation.org/lgs-conference

See you in Orlando! ☀️💜

Questions? Reach the team at [email protected].

🌟 A big thank you to UCB USA, Neurelis, GeneDx, Jazz Pharmaceuticals, SK Life Science, Inc., Lundbeck, Harmony Biosciences, and Cosette Pharmaceuticals for making this event a reality! Your support strengthens our community and brings us all together.

Swipe to meet the Family and Professional Conference Speakers - Part 1! ➡️Clinicians at the top of their field and voice...
06/04/2026

Swipe to meet the Family and Professional Conference Speakers - Part 1! ➡️

Clinicians at the top of their field and voices that carry the full weight of lived experience with LGS.

This is what makes the LGS Conference different. It’s not just lectures and slides. It’s the right people, all in one place.

📅 July 9-11, 2026
📍 Caribe Royale Orlando, FL

🚨 We only have 10 spots left to register! 😱

🔗 Register Here: bit.ly/conference2026-registerhere

🙋🏻‍♀️ Want to learn more before registering? Please visit: lgsfoundation.org/lgs-conference

See you in Orlando! ☀️

🌟 A big thank you to UCB USA, Neurelis, GeneDx, Jazz Pharmaceuticals, SK Life Science, Inc., Lundbeck, Harmony Biosciences, and Cosette Pharmaceuticals for making this event a reality! Your support strengthens our community and brings us all together.

06/04/2026

✨ Camp Small Steps is for the whole family!

A space to connect, unwind, and just be together.

This year, at the 10th International Family & Professional Conference, we’re introducing something new and truly special: Camp Small Steps. 🌲💜

Designed especially for LGS families, this experience offers a sensory-aware, welcoming environment with gentle activities, creative play, and space to relax side by side. It’s not about doing everything, it’s about being together, at your own pace, one small step at a time.

And that’s just one part of what makes this conference so meaningful. From education to connection, you’ll be surrounded by a community that understands your journey.

📅 July 9-11, 2026
📍 Caribe Royale Orlando, FL

🚨 The conference is filling up fast!
If you’re planning to attend, now is the time to register and book your room before spots are gone.

🔗 Register here: bit.ly/conference2026-registerhere

🙋🏻‍♀️ Want to learn more before registering? Please visit: lgsfoundation.org/lgs-conference

See you in Orlando! ☀️

🌟 A big thank you to UCB USA for making this event a reality! Your support strengthens our community and brings us all together.

📅 Mark Your Calendars and Join Us!💜 June 09 @ 8:00 pm - 9:00 pm ETLGS: Standing Together. Stronger Together. Support Gro...
06/01/2026

📅 Mark Your Calendars and Join Us!

💜 June 09 @ 8:00 pm - 9:00 pm ET
LGS: Standing Together. Stronger Together. Support Group

💜 June 16 @ 8:00 pm - 9:00 pm ET
Dad to Dad Support Group

💜 June 18 @ 8:00 pm - 9:00 pm ET
LGS Grupo de Esperanza Support Group

💜 June 22 @ 8:00 pm - 9:00 pm ET
Caregiver of Adults with LGS Support Group

These monthly support groups are available to LGS Families who are members of the LGS Foundation Caregiver Support Community.

To join our online community and for login information, please visit our group at Lennox-Gastaut Syndrome (LGS) Foundation Caregiver Support Community.

🔗 www.facebook.com/groups/lgsfoundation

Address

6030 Santo Road, Suite 1, Unit 420878
San Diego, CA
92124

Telephone

+17183743800

Website

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