The Chromosome 18 Registry & Research Society

The Chromosome 18 Registry & Research Society Chromosome 18 U.S.A. Our mission is to defeat the challenges of those born with chromosome 18 conditions so they can lead healthy and productive lives.

🌟Power of 18 starts August 1st!❗Support vital Chromosome 18 research and have fun at the same time! Challenge yourself, ...
06/24/2026

🌟Power of 18 starts August 1st!

❗Support vital Chromosome 18 research and have fun at the same time! Challenge yourself, see how much you can grow in 18 days, and support chromosome 18 research all at the same time. Join us from anywhere in the world and let’s take on the 18-day challenge to raise $30,000 together!

❓Learn more about the challenge here: https://www.chromosome18.org/events/power-of-18/

👉Get ready to start your challenge: https://secure.givelively.org/donate/chromosome-18-registry-and-research-society/2026-power-of-18-challenge

Our 2026 Member Survey is live, and we want to hear from you! Just 9-12 minutes of your valuable time makes a lasting im...
06/23/2026

Our 2026 Member Survey is live, and we want to hear from you!

Just 9-12 minutes of your valuable time makes a lasting impact that guides our support, resources, and research to better serve YOU!

Your responses are anonymous and confidential. US/Canada members have the chance to win a $100 Amazon gift card!

Survey closes on Sunday, July 19th at midnight CT (US). Click below to take the survey now!

US/Canada Survey: https://forms.gle/z5Y6ehALwgFCzF916

International Survey: https://forms.gle/1td95P3tbHZGYVZn7

Register our 2026 Annual Family Conference Nights out in San Antonio!Join Chromosome 18 in San Antonio, TX for an incred...
06/23/2026

Register our 2026 Annual Family Conference Nights out in San Antonio!

Join Chromosome 18 in San Antonio, TX for an incredible series of evenings out! Take in the sights and spend time relaxing and enjoying the company of other Conference attendees after the day’s sessions. Nights Out are optional activities that you can choose to participate in if you so desire.

❗REGISTER NOW: https://pci.jotform.com/form/261325974826163

*Registration for Nights Out will be separate from Conference registration. All event registration must be completed online, prior to the conference. There will be NO on-site events registration this year.

You can find more information about Nights Out and Conference on our website here: https://www.chromosome18.org/.../2026-conference-extras/

💜We invite our families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next...
06/22/2026

💜We invite our families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Wednesday, August 12th, 2026 at 7:00pm Central Time (US).

This is a great way to meet several key people in our organization, learn more about Chromosome 18, ask questions and feel connected right away.

Register here: https://www.chromosome18.org/event/new-family-resource-intro-zoom-call-3/

Happy Father's Day from the Chromosome 18 Registry & Research Society! 💙We're thankful for all of the Chromosome 18 fath...
06/21/2026

Happy Father's Day from the Chromosome 18 Registry & Research Society! 💙

We're thankful for all of the Chromosome 18 fathers, grandfathers, stepfathers, and father figures who provide love, strength, and encouragement in our community. Thank you for everything you do and for the difference you make in the lives of your loved ones.

Happy Juneteenth from the Chromosome 18 Family! 🩷
06/19/2026

Happy Juneteenth from the Chromosome 18 Family! 🩷

06/18/2026

Welcome to our June Facebook Live!

Hear from Rebekah, an 18p- self-advocate, as we recognize 18p- Awareness Day! Rebekah is an inspiring Chromosome 18 self-advocate who will share her personal journey of living with 18p-. Rebekah will talk about her diagnosis story and growing up with 18p-. Viewers will also hear about her many accomplishments and passions, including therapy horseback riding, entrepreneurship, college graduation, blogging, poetry writing, and independent living.

Thank you to everyone who is joining us for this special 18p- Awareness Day/Facebook Live. Please, if you can, wear your pink today in support of 18p- Awareness Day. As you watch, feel free to say hello in the comments, tell us where you’re joining from, or ask any questions for Rebekah. And we encourage you to share out this live and comment below what this day means to you too. Please continue spreading awareness and celebrating individuals with chromosome differences—not just today, but every day.

If you’d like to learn more about Chromosome 18 conditions or connect with our community, please visit our website: www.chromosome18.org or follow us right here on Facebook!

📺Tune in live at 6:00pm CT today to hear about Rebekah, an 18p- self-advocate, as we recognize 18p- Awareness Day today!...
06/18/2026

📺Tune in live at 6:00pm CT today to hear about Rebekah, an 18p- self-advocate, as we recognize 18p- Awareness Day today!

🩷Rebekah is an inspiring Chromosome 18 self-advocate who will talk about her diagnosis story and growing up with 18p-. Viewers will also hear about her many accomplishments and passions, including therapy horseback riding, entrepreneurship, college graduation, blogging, poetry writing, and independent living. Rebekah has built a life centered around determination, creativity, and community.

🌟Join the conversation in the comments, share the live, and wear pink today to help us spread awareness for 18p- Awareness Day.

🩷Today is 18p- Awareness Day! 🌟Tune in live to our page at 6pm CT today for a special Facebook Live from Rebekah Van Der...
06/18/2026

🩷Today is 18p- Awareness Day!

🌟Tune in live to our page at 6pm CT today for a special Facebook Live from Rebekah Van Der Kuur, an 18p- Self-Advocate, as we recognize 18p- Awareness Day! Join the conversation in the comments, share the live, and wear pink to spread awareness.

On May 9th, our Great Lakes Coordinator, Carrie Connolly, tabled for Chromosome 18 at the 2026 WindSwell Disabilities Ex...
06/16/2026

On May 9th, our Great Lakes Coordinator, Carrie Connolly, tabled for Chromosome 18 at the 2026 WindSwell Disabilities Expo in Fort Wayne, Indiana.

Thank you to Carrie and her daughter, Amy, for raising awareness and providing resources in the local area. And thank you to everyone who attended! 💚

Address

7155 Oakridge Drive
San Antonio, TX
78229

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12106574968

Website

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