Utah Bleeding Disorders Foundation

08/12/2026

As we prepare for our annual golf tournament, our biggest support for Camp Valor, we want to help golfers understand the cause they're supporting. If Camp has made an impact in your life, please comment below so we can share with our supporters the difference they're making and the amazing experiences they're making possible!

07/02/2026

It is with heavy hearts that we share news from the Gibson family. Their son, JP, passed away after a life-long battle with acute lymphoblastic leukemia. JP's sister, Elsie, and brother, Theo, have been Camp Valor campers for several years. JP wanted to attend Camp Valor with his siblings but, unfortunately, was never well enough to do so.
Our love and support goes out the the Gibson family. May JP's courage be a strength to us all.

If you are able, please consider donating to the Go Fund Me account, set up in JP's honor.

https://www.gofundme.com/f/unbreakable-jp

06/30/2026

We’re glad so many families could join us (28 families!) for a fun filled weekend. A special thanks to Debbie De La Riva and Matt Barkdull for their help facilitating incredible sessions on men’s and women’s mental health. A big shout out to our Industry sponsors who made the weekend possible!

06/09/2026

High school teens — this one's for YOU. 🙌

Primary Children's Hematology is back with our 2nd Annual Transition to Adult Care Event, and we want you there!

📅 June 25, 2026 | 6–8 PM
📍 Utah Parent Center, 5296 Commerce Drive #302, Murray, UT 84107

A night to connect with peers who get it, swap tips and experiences, and gear up to own your healthcare journey. Because taking charge of your bleeding disorder management starts now — and you don't have to figure it out alone.

💬 RSVP to [email protected] today and save your spot!

05/30/2026

Attention teens of the bleeding disorders community — the moment you've been waiting for is HERE. Summer Teen Retreat registration is officially OPEN. Lock in your spot for a weekend packed with real connections, good times, and skills that actually matter. Don't sleep on this one.

Register here- https://docs.google.com/forms/d/e/1FAIpQLSfPnNaB8s7Ys7HHXwx6HdRJUclRDv5F1FeSC0jSHO29N0EnlQ/viewform?usp=header

05/27/2026

We may have gone a little overboard planning this year's Northern Utah Family Education Weekend. Zero regrets.

Join us June 26–27 at Embassy Suites by Hilton in South Jordan for a weekend packed with connection, learning, and fun your whole family will love.

Here's what's waiting for you:
🎁 Surprise gift card for every attending family (full weekend required — trust us, you want to stay for ALL of it)
🪩 DJ & glow stick dance party
🎉 BINGO with real prizes
🛍️ UBDF swag to win and keep
🎮 Fun kids activities all weekend
📚 Education on bleeding disorder products & services + face time with Utah Center for Bleeding and Clotting Disorders staff
👨‍👩‍👧‍👦 A room full of families who just *get it*

All for just $15/person or $50/family. Fee waivers available — just ask! ⏰
Registration closes June 12. Don't wait!

(Register here-https://forms.gle/AKM7B3ipXdnYxCSe)

Questions? Contact Jan Western: 801-484-0325 or [email protected]

05/20/2026

You won't want to miss out on this amazing weekend! We're going to have an epic dance party Friday night for the whole family - core memories right there! We have amazing education and group discussion time so we can spend time together as a community while the kids do some fun activities and learn some awesome things too! Register today!

05/15/2026

Please join Primary Children's Hematology in their 2nd annual transition to adult care event. This is event is geared towards high school aged teens. RSVP today!

05/13/2026

Another amazing opportunity for those in our community going to school. Submissions are due June 10, so don't wait to apply!

Applications are available at this link: https://docs.google.com/forms/d/e/1FAIpQLSdoPi0IqQCfUJU9WK7euBYQJsk1QLwx10SUykGQJ2TgveANQg/viewform?usp=header

04/27/2026