05/31/2025
Celebrating our Undiagnosed Rare Disease Awareness Ribbon, created by Ava Szajnuk and designed by Erica Braymen in 2016!
Rare & Undiagnosed Network RUN's and Undiagnosed Network (RUN)'s first was on April 29th, 2016! We created the Undiagnosed Awareness ribbon from Ava Szajnuk’s drawing. Ava was eight years old at the time and an undiagnosed rare disease patient. Her brother, Oskar, and her sister, Lucy, are also undiagnosed rare disease patients.
Since zebras represent the rare community, we envisioned having a zebra ribbon like the Rare Disease Awareness ribbon but added baby blue and baby pink colors to it.
Erica Braymen designed the ribbon at Ecosyse. Together, we brought it to life!
It has been celebrated all over the world on !
Learn more about the history of the ribbon and how it has been shared globally: https://lnkd.in/gV6Q6VgF
Much Love,
Gina Zanik
