Kelli and I have set up a foundation in honor of our youngest daughter Erin to provide resources to facilities, institutions and families who treat or have a child with seizures/epilepsy. thE WERTHy Foundation has been set up in honor of Erin Werth and has the following Mission Statement…
"Through our network of family and friends, provide additional resources to facilities and institutions who a
id in seizure/epilepsy care as well as families with a child who is dealing with seizures/epilepsy." While she continues to grow physically, developmentally she never surpassed the 4 month plateau. Erin requires continuous care, is non weight bearing, wheelchair bound and does not speak or sit up. She has a Vagus Nerve Stimulator (VNS) device and is tube fed. She has been through hundreds of tests and to this day, the only diagnosis is Epilepsy. Erin has had numerous hospital stays which have included surgeries, many ambulance rides and even a flight for life helicopter ride when she was less than a year old. We have been lucky that our insurance has covered most of our bills, but we know others are a lot less fortunate. Erin has been blessed by having very dedicated teachers and therapists who spend countless hours working with her to develop a method of simple communication so she can express her basic needs and wants. We have come to understand how much time and effort facilities such as Erin’s school put into therapy, teaching, and adapting ideas that are designed specifically for children like Erin. For that reason, we have created this foundation to assist those who are specifically impacted. thE WERTHy Foundation’s initial goal is to provide some assistance to facilities and institutions that deal in the care of children with seizures/epilepsy with a longer range goal of aiding families who have a child with seizures/epilepsy. Our hope is that we can provide practical items such as wheelchairs, medical equipment, educational tools, or even adaptation equipment within the house vs. We believe that our strong network of family and friends and the communities in which we live and work can make a difference in this endeavor and therefore, the operations of this foundation will be dedicated to making that difference. The foundation is a legal 501(c)3 non-profit organization (EIN # 46-2665790). To make a donation:
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=E2AMWFGPXK85Y
