Aria's Army

Aria's Army Aria's Army is dedicated to fghting Epilepsy in youth. Our Aria has had Epilepsy since birth. We see

05/06/2026

Hey Army!!

It’s me Aria!

Today we got to go to wildlife safari’s day of discovery!!

It turned into the best day!

I invited my cousins to come with me!

I am so thankful that I get to do these adventures and today I even got to ride the train!!!

Hope you enjoy the video mommy put together to highlight some of the many pictures that were taken today!

Love,

💜🧜‍♀️💜Aria💜🧜‍♀️💜

Hi Army! It’s me Aria! Happy Thursday and horse therapy day! I had a great ride today and got to ride outside in the be...
04/30/2026

Hi Army!

It’s me Aria! Happy Thursday and horse therapy day!

I had a great ride today and got to ride outside in the beautiful sunshine ☀️

I am still having seizures. 😞 but they have calmed down a little bit.

I have been on the new med for a week now so we shall see my dr wants to do. We have a follow up on Monday.

Hope you all enjoy the beautiful sunshine!!!

Love,

💜🧜‍♀️💜Aria💜🧜‍♀️💜

Hi Army! It’s me Aria! Happy Thursday!! And horse therapy day! I got to go ride today. I did have a seizure right befor...
04/23/2026

Hi Army!

It’s me Aria!

Happy Thursday!! And horse therapy day!

I got to go ride today. I did have a seizure right before I got on the horse but then I was okay.

I got to ride outside and mommy side walked with me today.

I had a good ride!!

I am doing okay since my hospital stay. My neurologist is adding another medication for my seizures that I will start tonight. 😞 hopefully this helps calm them down🙏

I have 5 days left on my antibiotics for SIBO.

Thank you for continuing to pray and send good mojo my way!

Hope you are all having a wonderful week!

Love,

💜🧜‍♀️💜Aria💜🧜‍♀️💜

Hi Army!! It’s me Aria!! Guess what?!? I am breaking free!! I will be on oxygen overnight until my sleep study in July. ...
04/17/2026

Hi Army!!

It’s me Aria!!

Guess what?!? I am breaking free!!

I will be on oxygen overnight until my sleep study in July. That study will help determine if I need a bipap. My body is not processing and getting rid of gases appropriately when I’m sleeping.

I will continue my antibiotics for SIBO thru the 28th.

I also will be following up with my neurologist, nephrologist, and pulmonologist. Of course my pediatrician as well but they have been updated daily by mommy. 🙂

That’s the short and sweet of it all 🙂

And I wanted to show off all my battle wounds from the week!

Thank you for all the continued prayers and good mojo!!

Love,

💜🧜‍♀️💜Aria💜🧜‍♀️💜

Hey Army. So here’s where we are at currently. Neuro still hasn’t come by. 🤦‍♀️ but shes clearly on the eeg not sure fo...
04/16/2026

Hey Army.

So here’s where we are at currently.

Neuro still hasn’t come by. 🤦‍♀️ but shes clearly on the eeg not sure for how long

The main team apologized for that and said they should be coming by. They said if they havent come by before four they will bug them some more.

They told me they think they were wanting to make sure that they are not missing events happening that would cause her to de-sat.

The pulmonology team came by. They said her blood gas levels are def elevated and that she likely needs to be on oxygen overnight that her body isn’t doing what it should be. 😢

So tonight they will put her on .5 liters and recheck her blood gases tonight and in the morning to compare.

The pulmonologist is also going to call the study center to try to get aria sleep study pushed sooner than July because it is a possibility that aria could need a BiPAP, but that can’t be determined without a proper sleep study.

Right now the main things keeping us inpatient is her desats which if she is okay on .5 liters at night then we can do that at home since we do have oxygen already there.
And then of course the seizure piece to make sure nothing is being missed.

They are not so concerned about her sodium levels even though they are higher than “typical” at this point because she has no signs of dehydration and it could have been caused by the extra stool loss more so than her base line diarrhea from magnesium.

I think that’s everything for now. 😞

This is a lot to process and a lot of moving parts.

Please keep praying for Aria and sending her all the good mojo.

Thank you from the bottom of my heart. 💜

Hi Army! It’s me Aria and I’m still in the hospital. As you can see I am apparently getting an eeg done. The neurology ...
04/16/2026

Hi Army!

It’s me Aria and I’m still in the hospital.

As you can see I am apparently getting an eeg done. The neurology team has not even come by so mommy was a little confused and unsure what is going on there. And now i have all this yucky smelling glue in my hair 😢 sorry mommy you will have to redo it.

The pseudo sleep study was done. They haven’t come by to go over it but of course I behaved a little bit last night. I did drop my oxygen levels though but did not go on oxygen all night.

The doctors have not rounded yet this morning so not 100% sure what’s going on yet or what the plan is. 😞

Please keep sending prayers and good mojo my way!

Love,

💜🧜‍♀️💜Aria💜🧜‍♀️💜

Hey Army! It’s me Aria as you can see I am still in the hospital and I am not a fan. But here we are. So to keep It sim...
04/15/2026

Hey Army!

It’s me Aria as you can see I am still in the hospital and I am not a fan.

But here we are.

So to keep It simple for everyone the update is this….

They are going to do a pseudo sleep study tonight to get some data on my oxygen level since I keep deSating overnight and my sleep study is not until July which is a long time to try to wait to get information as to why I keep dropping my oxygen levels while I’m trying to sleep at night sorry, mommy. 

We really don’t have an answer from the Endocrinology team because apparently they didn’t realize that I’m on a diuretic that helps me absorb my magnesium in my kidneys.  And they were trying to tell mommy that they wanted to take me off of that med to test my levels to see if I really do need a hormone medication replacement. Mommy said no and thankfully the attending doctor Jones agreed with that.  He said we are not going to mess with my home medication.

I am up in my stroller instead of laying down this morning to also try to help with my air movement not being at home in my own element makes things a little tricky, but I know I’m in the best place to get answers to help everyone take better care of me.

Thank you for all the continued prayers you send my way and the good mojo. I feel them all

Love,

💜 🧜‍♀️ 💜 Aria 💜 🧜‍♀️ 💜

Hi Army. It was a rough night. Both Aria and myself are exhausted. She ended up back on oxygen around 430am. She starte...
04/15/2026

Hi Army.

It was a rough night. Both Aria and myself are exhausted.

She ended up back on oxygen around 430am. She started sounding super j***y. For whatever reason they decided to do a nebulizer treatment around 4 and after that she just sounded awful. The worst I have ever heard her.
She did have a few seizures overnight and then had one this morning.

She has been back to room air for about half an hour.

The team has not rounded yet. But I know they are hoping to have an answer from endocrinology about the hormone replacement or what they are thinking.

Her sodium levels did not come down this morning. 😞 with as much extra fluids I’m giving her and pumping free water over night it’s concerning that her sodium levels aren’t changing.

I did also ask about reaching out to her pulmonologist as her respiratory stuff is not normal. Her baseline she uses none. And it’s super concerning that she keeps requiring it after going most the day without it.

She did start the new antibiotics for SIBO last night and will be on that for 2 weeks. 🙏 that is helps with that issue.

Please keep praying for answers and solutions.

Miss Aria hears your prayers and all the good mojo sent her way.

Thank you from the bottom of my heart for keeping her in you daily thoughts.

😞 one tired momma.

Hi Army! Miss Aria got a “bath” and got her hair washed and i was able to redo it. We got her up and sitting in her str...
04/14/2026

Hi Army!

Miss Aria got a “bath” and got her hair washed and i was able to redo it.

We got her up and sitting in her stroller this afternoon. She has been a little more alert today.

She will be starting on antibiotics for SIBO. It’s a 2 week course.

We are still waiting to hear from endocrinology as to what the plan is there.

Keep praying and sending good vibes!

Good Morning Army Let’s start with the good news 🙂 Her stool samples for viral and bacterial infections were all negativ...
04/14/2026

Good Morning Army

Let’s start with the good news 🙂
Her stool samples for viral and bacterial infections were all negative!

Miss Aria went all night on room air and no seizures.

She did have 2 seizures this morning. 😢
She did require a little bit of oxygen assistance but is back on room air.

We are bumping up her RT treatments to every 8 hours. To try to stay ahead of the oxygen issues. 🙏
Because of aria not being able to take really deep breathes to begin with when she has seizues then it causes pockets and can cause her to desat and need more help

We are waiting on a urine sample to come back to see where the levels are there. Depending on that depends on the next course of action.

The endocrinologist does believe it is a possibility that her body is not producing enough of the hormone to help her kidneys do their job and absorb water properly. 😞

So here we are and waiting….
If those labs are similar to yesterday then that means likely will start on a hormone replacement med.

Because her stool was all negative then it is highly likely that she has SIBO (small intestinal bacteria overgrowth) which would be treated with an antibiotic.

So still here hanging on doing the best we can.

Keep praying for Miss Aria and sending all the positive vibes.

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Salem, OR
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