Haleys Heroes Foundation

06/08/2026

🚨🏃‍♀️ DON’T MISS SALEM’S MOST INSPIRING SUMMER EVENT! 🏃‍♂️🚨

💙 7th Annual Haley’s Heroes Run for the Rare
📅 June 14, 2026

Whether you’re a seasoned runner, casual walker, or simply want to support an amazing cause, this is an event for the whole family!

✨ Join hundreds of community members as we come together to raise awareness and support for individuals and families impacted by rare diseases. Every step makes a difference.

🎉 What to Expect:
✅ Fun for all ages
✅ Community spirit and local heroes
✅ Race swag and event shirts
✅ Family-friendly atmosphere
✅ Supporting an incredible cause

A huge thank you to our presenting sponsors Blue Box Storage and Storage 4 Less, along with our many generous community sponsors helping make this event possible.

📍 Salem, Oregon
📅 Sunday, June 14, 2026

🎟️ Register today and secure your spot!
👉 https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

💙 Run. Walk. Support. Make a Difference.

FamilyFun RaceDay SupportTheRare RunSalem MakingADifference

06/08/2026

Only 7 DAYS LEFT until the 7th Annual Run For The Rare! 💖🏃‍♀️🏃‍♂️

The countdown is on and we can’t wait to see our amazing community come together for a day full of energy, hope, fun, and support for families affected by Batten disease. Whether you run, walk, cheer, volunteer, or donate — every step truly makes a difference! 💜💚💙

Bring your friends, family, coworkers, kids, and even your pups 🐾
All ages. All abilities. All paces. Everyone welcome!

📍 Riverfront Park | Salem, Oregon
📅 June 14, 2026

Sign up today before race day arrives!
🌟 haleysheroesfoundation.org/events

SalemOregon CommunityStrong RareDiseaseAwareness

06/08/2026

06/08/2026

Volunteer Link in Bio…

We are looking for amazing volunteers to help make this event a success! Our greatest need is for race marshal volunteers along the course—cheering runners and walkers on and making sure they take all the right turns.

🕘 Volunteer timing:
Volunteers should arrive between 8:30–9:00 AM. We will be marking the course and placing signs on the way to your volunteer location. Some roles may require an earlier arrival.

🏁 Event details:

Start time: 10:00 AM
All participants expected to finish by 1:00 PM (at the latest)
🚲 Getting around the course:
If you have a bike, scooter, or skateboard, we’d love for you to bring it to help you get to your volunteer location more easily. You can also volunteer with a buddy—just let us know who you’d like to be paired with!

👟 Bring your support crew!
Family and friends are welcome to participate in the event while you volunteer. They can sign up to run or walk here (this is not the volunteer sign-up):
Haley’s Heroes Foundation Events
Event registration includes a food coupon for corndogs and ice cream, a photo booth, and a t-shirt!

🤝 Volunteer sign-up:
To sign up, please Click the Link in Bio…and our volunteer coordinator Carole Astley will be in touch with you.

Proudly supporting Haley’s Heroes Foundation 💛

06/03/2026

🎉👟 RUN TOGETHER. MAKE AN IMPACT TOGETHER. 👟🎉

Gather your coworkers, teammates, friends, family members, neighbors, or local business crew and join us for the 7th Annual Run for the Rare! 🦓💜

Whether you create a company team, family team, walking group, or virtual team, every step helps support the effort to find a cure for Batten Disease while bringing our community together for an unforgettable day at Riverfront Park! 🌈✨

🏃‍♀️ 10K
🏃 5K
🚶 1-Mile Walk
💻 Virtual Option Available

There’s nothing better than showing up together for a cause that matters. Matching shirts, team photos, cheering each other on, and making memories — that’s what Run for the Rare is all about! 🙌

📅 June 14, 2026
📍 Riverfront Park | Salem, Oregon

💜 Sign your group up today:
Haley’s Heroes Foundation Registration

SalemOregon EveryStepCounts RunWalkTogether SupportLocal FamilyFunRun

06/03/2026

🎶💖 Shoutout to NW Mobile DJ Service for supporting this year’s Run for the Rare! 💖🎶

Thank you for bringing energy, fun, and community spirit to Haley’s Heroes! Support from local businesses like yours helps make this event possible and keeps our mission moving forward. 🦓✨

We appreciate your 7 years of partnership and commitment to giving back to the community in such a meaningful way!

👟 Join us on June 14th and sign up today:
https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

BattenDiseaseAwareness SalemOrego

06/03/2026

💜✨ A big THANK YOU to NW Rose Events for supporting the 7th Annual Run for the Rare! ✨💜

We are so grateful for amazing community partners who help make this event special year after year. Your support helps us continue raising awareness and supporting the effort to find a cure for Batten Disease. 🦓

Thank you for being part of the Haley’s Heroes family and helping us create an unforgettable event for our community!

🏃‍♀️ Register today:
https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

BattenDiseaseAwareness

06/01/2026

💖🏃‍♀️ 13 DAYS TO GO! 🏃‍♂️💖

The countdown is officially on for the 7th Annual Run for the Rare — and we can’t wait to come together to honor Haley, celebrate our incredible community, and continue the effort to find a cure for Batten Disease. 🦓✨

What started with one little girl’s bright spirit and love for life has grown into a movement filled with hope, purpose, and people who care deeply about making a difference. Haley continues to inspire every mile, every step, and every person who joins this event. 💜

Whether you’re running the 10K, 5K, walking the 1-Mile, cheering from the sidelines, or participating virtually, YOU are part of something bigger.

📅 June 14, 2026
📍 Riverfront Park | Salem, Oregon

Let’s fill the park with love, color, community, and determination as we Run for the Rare together. 🌈👟

Register today:
https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

RareDiseaseAwareness SalemOregon CommunityStrong RunWalkForACause

05/31/2026

🍦💜 A HUGE thank you to On Any Sundae for supporting this year’s Haley’s Heroes Run for the Rare! 💜🍦

There is something incredibly special about a local business stepping up to support a local cause — especially one that holds such sweet memories for Haley’s family.

On Any Sundae wasn’t just an ice cream stop… it was one of Haley’s FAVORITE places growing up. From rainbow sprinkles to summer treats after long days, it became part of so many happy childhood memories. 🌈✨

Now, seeing them support Haley’s Heroes and help us continue the effort to find a cure for Batten Disease means more than words can express.

Thank you for showing our community what it means to give back, spread joy, and make a difference one scoop at a time. 🍨🦓

Be sure to show them some love and support this amazing local business that continues to pour into our community!

LocalBusinessLocalCause BattenDiseaseAwareness SalemOregon EveryStepCounts

05/31/2026

🎉 ONLY 14 DAYS LEFT! 🎉

The countdown is ON for the 7th Annual Haley’s Heroes Run for the Rare! 🦓💜

Join us on June 14th at Riverfront Park in Salem, Oregon for a day full of fun, community, movement, and purpose! Whether you run, walk, cheer, roll, or bring your furry best friend along — EVERYONE is welcome! 🐶👟☀️

✨ 10K
✨ 5K
✨ 1-Mile Walk
✨ Virtual Option

Every step we take together helps support the effort to find a cure for Batten Disease.

Bring your family, your friends, your dogs, your strollers, and your team spirit — let’s make this the biggest and most inspiring Run for the Rare yet! 🙌

📅 June 14, 2026
📍 Riverfront Park | Salem, OR

Register today:
https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

SalemOregon RunWalkRoll RareDiseaseAwareness CommunityStrong 14DaysLeft