Haleys Heroes Foundation

03/30/2026

💙 “Rare is More Than You Can Imagine” 💙

This powerful message reminds us that rare diseases impact more lives than many people realize—and every story matters.

Join us on June 14, 2026 for the Haley’s Heroes Run for the Rare as we come together to support the over 300 million people worldwide living with rare diseases. Registration Open, https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

🏃‍♀️ Whether you run, walk, or cheer, you’re helping:
✨ Raise awareness
✨ Support families
✨ Advocate for research and hope

Events like this bring our community together to show that even though diseases may be rare… our strength is not.

💙 Be part of something meaningful.
💙 Be part of the movement.
💙 Be part of the rare community.

03/30/2026

🌍 Rare Disease Day 2026 | February 28

More than 300 million people worldwide are living with a rare disease—and every story matters.

Rare Disease Day is a global movement to raise awareness, support research, and advocate for better access to care for individuals and families affected.

This year’s theme, “More Than You Can Imagine,” reminds us that while each condition may be rare, together they impact millions of lives every day.

Join us in spreading awareness, showing support, and making a difference. 💙

03/30/2026

🙌 Community Partner Spotlight Hollie J Vanek Insurance Agency, Inc.-Serving all of Oregon for sponsoring our June 14, 2026 Run for the Rare! 🌟

💙 Register Here
https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

We’re so grateful for your support in helping make this day unforgettable. Because of you, we get to bring our community together for a morning full of energy, purpose, and heart—all while supporting those living with rare diseases.

From the starting line to the finish, your partnership helps turn miles into meaning and moments into impact 💙

It truly takes a village, and we’re lucky to have you in ours. THANK YOU for being part of something so special—we couldn’t do it without you!

03/30/2026

Rare Disease Day is a global movement raising awareness and supporting those living with rare diseases. Since 2008, it has united a worldwide community with a shared purpose.

In 2026, we continue that mission at Run for the Rare on June 14, 2026—coming together to support, honor, and advocate for the rare disease community. 💙

03/30/2026

🏃‍♀️🎉 Save the Date – June 14, 2026! 🎉🏃‍♂️

Join us for the annual Run for the Rare hosted by Haley's Heroes Foundation 💙💚

Get ready for a powerful day of community, purpose, and FUN as we come together to support those affected by rare diseases—especially Batten disease. Whether you run, walk, or cheer, every step makes a difference.

👟 10K | 5K | 1-Mile options
☀️ Beautiful summer race day vibes
💜 A meaningful cause that matters

Bring your friends, your family, and your heart—this is more than a race, it’s a movement.

👉 Registration Open Now! https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

Let’s show up strong, loud, and united for the rare 💥

03/30/2026

🙌 Community Partner Spotlight Gallagher Fitness Resources, locally owned and operated by John and Susan Gallager, thank you for hosting our packet pick-up this year! We’re grateful for their continued support and commitment to our community and this important cause.

Join us for Packet Pick-Up for the Haley’s Heroes Run for the Rare (HHR4R) 5K/10K/1M!

📍 Location: Gallager Fitness
📅 Date: Saturday, June 13th
⏰ Time: 2:00 PM – 4:45 PM

Get race-ready the day before and avoid the lines on race day! Swing by, grab your packet, and get excited for an incredible event supporting Haley’s Heroes 💙

🏁 Race Day: Sunday, June 14th
✨Register Here https://runsignup.com/Race/OR/Salem/HALEYSHEROESRUNFORTHERARE

We can’t wait to see you there—let’s run for a great cause! 💪

03/02/2026

Calling all businesses!!! We are looking for sponsors for This is a fun run raising money for rare disease research.
YOUR SUPPORT is needed now more than ever!

02/26/2026

https://www.facebook.com/share/p/1Aj9cviU2T/

01/23/2026

Janeen Gilbert-Baker

Just finished a call with Circumvent Pharmaceuticals to discuss the results of the research funded by Haley's Heroes - funded by you!

It is very exciting news. They learned more than anticipated and the results were positive! I will be sharing more specifics soon.

We are a couple of days before the anniversary of Haley's death. The legacy of Haley lives on 💕. Real progress towards a viable treatment is happening.

Our journey is not over, however. We will need the support of all you over the next couple of years to push this treatment from research to clinical trial

Thank you Haley's Heroes community
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

01/23/2026

Just finished a call with Circumvent Pharmaceuticals to discuss the results of the research funded by Haley's Heroes - funded by you!

It is very exciting news. They learned more than anticipated and the results were positive! I will be sharing more specifics soon.

We are a couple of days before the anniversary of Haley's death. The legacy of Haley lives on 💕. Real progress towards a viable treatment is happening.

Our journey is not over, however. We will need the support of all you over the next couple of years to push this treatment from research to clinical trial

Thank you Haley's Heroes community
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

12/02/2025

🖤💜 Black Friday reminder! 💗✨
As the shopping carts settle and the deals wind down, take a moment to think about the causes that matter most.

While everyone is grabbing gifts today, your gift to Haley’s Heroes goes even further — funding critical research for CLN1 Batten Disease and Alzheimer’s, and bringing real hope to families who need it.

If Black Friday is about getting,
then Giving Tuesday (Dec 2) is about giving back.

💜 Donate or learn more: haleysheroesfoundation.org
Every dollar. Every share. Every act of kindness moves us closer to our $62K goal.


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