Jordan's Guardian Angels

09/28/2026

💙 We loved seeing 130+ JGA families come together for our Family Virtual Conference this past weekend! 💙
A HUGE thank you to everyone who joined us, shared your time, asked questions and trusting the process as we move forward.
There is something incredibly special about bringing our JGA community together, supporting one another and continuing to move forward together. 💙 🫶✨ POWERED BY HOPE & UNITED FOR THE FIGHT!!

09/24/2026

💙💙💙 You can feel blessed and still have hard days. Both can exist at the same time. 💗 Be gentle with yourself!

09/22/2026

Thankful to be part of REN alongside so many other rare diseases. Together we are strong!

09/15/2026

💙 We couldn’t be more proud to have Dr. Wendy Chung as the lead investigator for Jordan’s Guardian Angels!
Congratulations, Dr. Chung, on being named the 2027 American Society of Human Genetics (ASHG) President-Elect! 🎉
Dr. Chung has been a true champion for our children and families, and her dedication to advancing research and creating a brighter future for those living with Jordan’s Syndrome and so many others means so much to our entire JGA community.
We are incredibly grateful to have her leading the way and couldn’t be more excited to see the impact she will continue to make in this new leadership role.
Congratulations, Dr. Chung! We are so proud to call you part of the JGA family and oh so thankful for you! 💙🧬

Congratulations to our Principal Investigator, Dr. Wendy Chung, on being named the 2027 American Society of Human Genetics (ASHG) president-elect!

A dedicated champion for families across the rare genetic and neurodevelopmental disorder communities, we’re excited to see her impact continue in this new leadership role. 🎉👏

🔗 https://www.ashg.org/publications-news/press-releases/ashg-announces-2027-president-elect-and-newly-elected-board-members/

09/08/2026

💙 Wise Words from the legend herself! 💙

09/02/2026

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08/31/2026

💙🚌🍎 Back to School! Go Be Great! Love seeing all@their smiling faces! 💙💙💙

08/17/2026

💙 Power of Positivity 💙


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08/10/2026

✨ Summer Spotlight: Our Kids in Action! ✨. A series highlighting what our JGA kids are doing, loving, learning, and celebrating all summer long.
Cameron doing wheelbarrows during his Conductive Education session! 👏👏👏

08/04/2026

✨ Summer Spotlight: Our Kids in Action! ✨. A series highlighting what our JGA kids are doing, loving, learning, and celebrating all summer long.
Priscilla Campos 🧿🇧🇷 small win are the best! 🪥🦷🪥😍