08/10/2026
The August 2026 edition of RSDSA's digital newsletter, In Rare Form, is now available: https://bit.ly/4w4yl37. This edition of In Rare Form is sponsored by Abbott.
As always we are focused on Research, Education, Support, and Community updates! A brief summary of this jam packed newsletter is below:
🔬 Research + Education 📚
RSDSA would love to learn more about our community members so we can better serve you. Please take a few minutes to complete our short demographic survey (and help us spread the word!): https://bit.ly/3Rhym5l
The Complex Regional Pain Syndrome-Relief and Improvement Study for Efficacy (CRPS-RISE) trial by Ambros Therapeutics now has 19 sites across the country. New sites are being added regularly! Click through to learn how the trial works and to see if you qualify: https://crps-rise.com
A list of additional CRPS research studies can be found on pages 3 and 4, including a paid virtual opportunity from the University of Bath.
We have two livestreams coming up! On Friday, August 14th at 7PM Eastern we have our Facebook and YouTube Live with Joshua Prager MD, MS and Salim Hayek MD, PhD focused on CRPS and surgery. This event will be recorded and available for replay if you can't make it to the livestream! Comment below with the surgery-related questions you would like them to answer.
On Tuesday, September 22nd we’ll host a livestream with Abbott on the difference between Dorsal Root Ganglion (DRG) Therapy and Spinal Cord Stimulation (SCS). More details to come!
🫂 Support + Community 🎗️
The CRPS Warriors of Florida Support Group is meeting today, Wednesday, August 5th at 4PM Eastern on Zoom. RSVP in the Facebook event to receive the Zoom link.
Fight the Flame is hosting their August CRPS Support Group Meeting this Saturday, August 8th at 1PM Eastern. To RSVP and receive the meeting link, email [email protected].
Horry & Brunswick Counties CRPS/RSD Support Group & Surrounding Area’s is hosting the Myrtle Beach Pelicans vs. Fayetteville Woodpeckers Game Fundraiser on Sunday, August 23rd. Fight the Flame is also hosting their Fight the Flame 5k and 1k Family Roll & Stroll on Sunday, September 27 in Charlotte, North Carolina.
The CRPS Connection: RSDSA's Adult Weekend Retreat (Join the Waitlist) event is sold out and currently has a waitlist. Email us at [email protected] to join the waitlist.
The 6th Annual Picklin' for a Cure Awareness and Fundraising Pickleball Tournament will take place at Udall Park in Tucson, Arizona from October 16-18, 2026.
As always, you can find a link to all of our current in-person, Zoom, Facebook, and peer support groups on page 12.
If you are interested in sponsoring a future issue of In Rare Form, please contact us at [email protected].
