Bleeding Disorders Council of California

08/21/2026

Once you turn 18, your health care is now YOUR responsibility, but don’t panic- take some tips from our webinar speakers! Join BDCC for our August webinar “You’re Leaving Home for College - Now What? Health Care Access Tips for Young Adults.” Find out how to manage this new change and keep your health on track while at college! Register TODAY at https://www.bdcouncilca.org/event/bdcc-august-webinar/

Are you starting or returning to college this fall? Does taking charge of your health care while on campus seem overwhelming? Join BDCC for our August 26th webinar about the…

08/21/2026

Yesterday BDCC and CRDAC hosted our August Health Care Access Forum and CA Rare Disease Access Coalition Meetings. Thank you to all of our guests, speakers and participants who contributed to wonderful discussions of health access for the bleeding disorders and rare disease communities!

08/17/2026

ICYMI Monday: BDCC's Fall Advocacy Days are coming around again this October! Curious to find out more? Read Jack Russek's reflections on his experience last year at

Participating in BDCC’s Fall Advocacy Days this year was a meaningful reminder of why I first stepped into advocacy within the bleeding disorders community. Even as my life has grown…

08/17/2026

¡La comunidad de personas con desórdenes sanguíneos LE NECESITA como defensor! No hace falta que viaje a Sacramento para participar: ¡inscríbase en los “Días de la defensa en otoño”! Organizaremos reuniones en persona en una oficina cerca de donde vive usted con sus representantes políticos.
Hay oportunidades de aprender más acerca de la defensa sin salir de casa, también.

¡Inscríbase hoy en los “Días de la defensa en otoño” para participar en la defensa durante el otoño!
Para más información, visite bdcouncilca.org/dias-de-la-defensa/ o para inscribirse hoy https://tinyurl.com/DiasdelaDefensaInscripcion

08/15/2026

The bleeding disorders community needs YOU as an advocate! You don’t have to travel to Sacramento to get involved - sign up for Fall Advocacy Days! We will arrange meetings where you can speak with your legislators at an office close to where you live!
For more information, visit https://www.bdcouncilca.org/fall-advocacy-days/

As part of Fall Advocacy Days, we have a series of advocacy activities for you this October: Advocacy Lunch N’ Learn webinar, Advocacy Dinners, advocacy training webinars, and of course meetings in your legislators’ district offices. Those meetings take place the week of October 26th at dates and times that fit your schedule!

We are facing critical changes to health care access. Will you stand up for the bleeding disorders community? Sign up today for Fall Advocacy Days!

To sign up today, visit https://bit.ly/2026FADRegistration

08/14/2026

Busy first day at . Time to learn and connect with community members from around the country!

Themes of partnership, advocacy and collaboration. And great to see Board Members Shellye, Meredith and Mosi.

08/13/2026

Meet our board member Z Taniguchi!  He participated in one of BDCC's first Future Leaders Days in the early 2000s, and through his years of involvement, Z has seen firsthand how mentorship, connection and shared experiences help young people build confidence and form lifelong relationships. See his interview above-

08/13/2026

Meet our board member Z Taniguchi! For more than 30 years, Z has been a dedicated leader, advocate and supporter within the bleeding disorders community, working to strengthen programs, expand opportunities and support individuals and families affected by bleeding disorders.

Today, Z's commitment is also deeply personal. He and his wife are raising their daughter, who has von Willebrand disease, giving him a unique perspective on the challenges and opportunities facing the next generation of bleeding disorders families.

Watch the full video interview on our YouTube!
https://youtu.be/jSWzbKW9-qM?si=DIZOwVHqmOszy12g

08/12/2026

Our Executive Director Lynne Kinst is heading to Orlando for the National Bleeding Disorders Foundation Bleeding Disorders Conference today.

Let us know if you will be there! Looking forward to the collaboration with so many friends and colleagues from across the country.

08/12/2026

Es posible que haya oído hablar de la reciente actualización de la norma federal sobre "carga pública". Es muy importante que
los pacientes con desórdenes sanguíneos sigan cumpliendo su plan de tratamiento aprobado por su médico y se mantengan en contacto con él. Si tiene alguna duda sobre los cambios en la norma federal sobre "carga pública", puede hablar con su médico.

También hay recursos legales donde puede consultar con organizaciones no lucrativos cualificadas que le ayudarán a
resolver sus dudas sobre las leyes de inmigración y la "carga pública".

Lea más en nuestro blog:
https://www.bdcouncilca.org/declaracion-conjunta-sobre-la-nueva-norma-federal-relativa-a-la-carga-publica/