Hope for Jackson

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"Hope for Jackson" was started to share Jackson’s life journey w/ a terminal rare genetic disorder called Tuberous Sclerosis Complex, Type 2, Epilepsy, Autism + ADHD.

Jackson is home and resting! Thank you all for the love and prayers. đź’™Picture from recovery room.
27/06/2025

Jackson is home and resting! Thank you all for the love and prayers. đź’™

Picture from recovery room.

UPDATE: Jackson is out of surgery and in recovery. ❤️💙 Please keep sweet Jackson in your thoughts today as he heads into...
26/06/2025

UPDATE: Jackson is out of surgery and in recovery. ❤️

💙 Please keep sweet Jackson in your thoughts today as he heads into oral surgery. We’re sending all the love, prayers, and positive vibes for a safe procedure and a smooth, speedy recovery! 🙏✨

Let’s also wrap his amazing mama, Rayna, in love and support as she waits—your encouraging words will mean the world to her right now. 💕

You’ve got this, Jackson! 💪💙

We will keep you updated when we receive more info.

As most of you know, Jackson was recently in the hospital for an extended stay, and since he’s been home, it’s been a bi...
13/06/2025

As most of you know, Jackson was recently in the hospital for an extended stay, and since he’s been home, it’s been a bit of a rollercoaster. He’s experiencing a lot of lethargy right now as his body isn’t responding well to some of his prescribed medications. We’re taking things day by day and doing our best to manage everything.

He has a dental procedure coming up at the end of the month, so please continue to pray for his health and wellness—and for his amazing mama, Rayna. Your support means everything. 💛

Great news—Jackson’s test results have improved twice now, and we’re just one more good result away from heading in the ...
20/04/2025

Great news—Jackson’s test results have improved twice now, and we’re just one more good result away from heading in the right direction toward discharge! Keep those good vibes coming—this kid is making progress and we’re so hopeful! 🥰🥰🥰

An Update on Our Sweet JacksonRayna has been quiet the last couple of weeks but wanted to take a moment to share what’s ...
19/04/2025

An Update on Our Sweet Jackson

Rayna has been quiet the last couple of weeks but wanted to take a moment to share what’s been going on behind the scenes with her warrior boy.

Post-surgery, Jackson was doing incredibly well—eating, drinking, smiling, and clapping. We were so hopeful. But shortly after, a medication was administered in a way it should not have been via G-tube—and it triggered a cascade of complications that we’re still trying to untangle.

Since then, Jackson’s ammonia levels have been dangerously unstable—spiking as high as 105 (normal is in the 40s) and then dropping without warning. It’s been a rollercoaster of extreme lethargy, vomiting, and concerning metabolic shifts. At one point, two neurologists came running to inform us that he was at risk of needing intubation and a PICU transfer.

This is day 15 in the hospital. What was meant to be a step forward—managing seizures and easing medication delivery with a G-tube—has instead turned into a daily struggle to stabilize his system. His medical team is doing their best, but communication has been inconsistent, and at times, it feels like our questions are being met with more defensiveness than transparency.

Rayna hadn’t planned to share this publicly. But the weight of it all—watching Jackson go from his happy post-op self to long stretches of exhaustion and discomfort—has been heavy. And her sweet boy deserves to have his story heard.

This hospital has been their medical home for 13 years. They need it to feel like home again—safe, collaborative and focused on healing.

Please keep Jackson in your thoughts and prayers as we continue fighting to get him back to himself. We’re so grateful for all the love and support—we feel it deeply, and we love you all right back.

With gratitude
GoFundMe link:
https://www.gofundme.com/f/hope-for-jackson-rayna-jacksons-medical-expenses

UPDATE: TODAY, Jackson has been experiencing leg and arm tremors. He’s been reassessed by Neurology and is now waiting o...
17/04/2025

UPDATE: TODAY, Jackson has been experiencing leg and arm tremors. He’s been reassessed by Neurology and is now waiting on the next steps. We could really use all the prayers right now as we try to figure out what’s going on. Thank you for your love and support—it truly means the world.

GoFundMe:
https://www.gofundme.com/f/hope-for-jackson-rayna-jacksons-medical-expenses

17/04/2025

Jackson, Ray, and her family still have a long road ahead of them, but let’s bask in this happy clapping, loving Jack’s moment for a few. These little wins are big. And never underestimate the fierceness of a mama’s intuition—trust that gut feeling, it’s there for a reason. Rayna Marie Bell

https://www.gofundme.com/f/hope-for-jackson-rayna-jacksons-medical-expenses

Please continue to keep sweet Jackson in your prayers. His health journey has kept him in the hospital for nearly two we...
17/04/2025

Please continue to keep sweet Jackson in your prayers. His health journey has kept him in the hospital for nearly two weeks, and it’s been incredibly tough on both him and Ray. He’s currently being assessed by the pediatric ICU doctor, and we’ll share an update as soon as we’re able. We’re praying for strength, healing, and a little peace in the midst of it all. Your love and support mean everything right now.

GoFundMe link:
https://www.gofundme.com/f/hope-for-jackson-rayna-jacksons-medical-expenses

16/04/2025

A big THANK YOU to Paula and the amazing students from Caleb Greenwood’s 4th R After School Program for the sweetest bunny basket for Jackson! We absolutely LOVE it. Your thoughtful gesture made our day—hoppily ever after starts with kindness like yours! Rayna Marie Bell

15/04/2025

Jackson’s got a new fashion statement—this big ol’ bandaid! 🩹
He’s been tugging at his G-tube, so this was a necessity. Fingers crossed it stays put! 💙

We can’t thank you enough for the outpouring of love, prayers, and support for Jackson and Rayna. Every donation, messag...
14/04/2025

We can’t thank you enough for the outpouring of love, prayers, and support for Jackson and Rayna. Every donation, message, and kind thought has truly lifted them up—and all of it is being felt deeply. 🤍💙

Rayna so badly wants to thank each and every one of you personally (believe me, she really does!). But right now, being in that hospital room requires 110% of her—physically and mentally. Jackson has been trying to pull out his G-tube almost every other minute, so she has to keep constant watch to protect him from unnecessary pain or injury. As of today, there’s no attendant—so it’s all on mama.

When they’re finally discharged (whenever that may be), she promises to reach out. But until then, please know your love, prayers, and encouragement are carrying her through these incredibly tough days.

From the bottom of our hearts—thank you.🙏

GoFundMe to help with medical and living expenses:
https://www.gofundme.com/f/hope-for-jackson-rayna-jacksons-medical-expenses

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