National Scleroderma Foundation West Coast Chapter

National Scleroderma Foundation West Coast Chapter A relentless force in improving the lives of people affected by in CA, HI & NV. Your donations to our chapter help to support these efforts.

The Scleroderma Foundation Northern California Chapter provides support, education and fundraising efforts to help patients with scleroderma and their families and caregivers in the Northern California area.

10/02/2026

"When I was first diagnosed with scleroderma, the uncertainty was overwhelming. Facing a
rare disease often feels isolating, but finding a community dedicated to support, research,
and advocacy completely transformed my perspective." - Leah Smith

Through support groups, trusted resources, advocacy, and research, Leah found connection, purpose, and a path forward.

Today you can help light the way and ensure people like Leah can find the resources, support, and community when they need it most.

Make your gift today and help create a future where no one faces scleroderma alone. https://scleroderma.org/together-we-light-the-way


10/02/2026

You won't want to miss this webinar led by the Upper Great Lakes Chapter's Cami Novachek!
Cami will lead a conversation about how people living with scleroderma can move from patient to partner in their healthcare journey through self-advocacy.

Join us October 7 at 2:00 p.m. ET. Register at scleroderma.org/self-advocacy.

10/02/2026

At one time or another, 90% of people living with systemic scleroderma experience Raynaud Phenomenon. During the month of October, we stand with the Raynaud's Association in raising awareness about Raynaud’s and sharing tips for how you can manage these symptoms.
Visit raynauds.org and scleroderma.org to learn more!

09/02/2026

🔗: https://ow.ly/E2Pb50ZFFCy

Living with scleroderma can mean navigating pain and fatigue that impact everyday life.

In this recorded session, Zsuzsanna McMahan, MD, MHS, shares practical strategies for managing these symptoms and offers helpful guidance for those living with scleroderma.

09/02/2026

The HOPE Line is the best way to connect with our team for any questions you might have! 💬

This free service offers information, resources, and support for people living with scleroderma, caregivers, families, and the public.

📞 Call (800) 722-4673 (Mon–Fri, 8:30 am–5 pm ET) or email [email protected].

Our trained team will ensure you get the answers and help you need!

06/18/2026

We’re deeply grateful to Boehringer Ingelheim for their generous sponsorship during Scleroderma Awareness Month!

Their commitment enables us to amplify awareness, strengthen our community, and drive research forward.

Together, we are building momentum toward a brighter future for everyone affected by scleroderma. 💙

06/04/2026

Today marks the start of Scleroderma Awareness Month! 💙

Throughout June, we celebrate the unwavering courage and hope of the scleroderma community.

Our 2026 theme, Beacons of Hope, shines a light on the power of unity, support, advocacy, research, and the shared strength that lifts us all.

Thanks for helping us shine bright and spread awareness this month! ✨

06/04/2026

🔗: https://ow.ly/Zlho50Z5LWY

You're invited to a special Book Club event! ✨

Join us for a reading of our new children's book and learn how this resource is helping children and families better understand scleroderma.

We look forward to sharing this meaningful story with you!

06/04/2026

🔗: https://ow.ly/gbpm50Z6nBR

We're honored to launch our 'Stories of Hope' series with a poem from a member of our community!

Barbara's words offer a personal reflection on life with scleroderma and the moments that have shaped her journey. 💙

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Sacramento, CA
95860

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+18007224673

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