National Scleroderma Foundation West Coast Chapter

06/04/2026

Today marks the start of Scleroderma Awareness Month! 💙

Throughout June, we celebrate the unwavering courage and hope of the scleroderma community.

Our 2026 theme, Beacons of Hope, shines a light on the power of unity, support, advocacy, research, and the shared strength that lifts us all.

Thanks for helping us shine bright and spread awareness this month! ✨

06/04/2026

🔗: https://ow.ly/Zlho50Z5LWY

You're invited to a special Book Club event! ✨

Join us for a reading of our new children's book and learn how this resource is helping children and families better understand scleroderma.

We look forward to sharing this meaningful story with you!

06/04/2026

🔗: https://ow.ly/gbpm50Z6nBR

We're honored to launch our 'Stories of Hope' series with a poem from a member of our community!

Barbara's words offer a personal reflection on life with scleroderma and the moments that have shaped her journey. 💙

05/07/2026

🔗: https://ow.ly/f5wi50YV45u

Hope shines brightest when we share it together.

Is it a support group, a friend, or a special moment that lifts your spirits? 💙

This Scleroderma Awareness Month, your story could inspire someone else.

Let’s be Beacons of Hope for one another!

05/07/2026

🔗: https://ow.ly/F17R50YV0Un

We’re launching a new support group for a community that’s often overlooked.

Scleroderma and endometriosis can intersect in complex ways, impacting pain, diagnosis, and daily life.

If you’ve been navigating both, this space was created with you in mind!

04/14/2026

04/02/2026

April is Volunteer Appreciation Month! 💙

We’re so grateful for the amazing leaders who lift up the scleroderma community every single day.

Your selflessness and dedication bring hope and connection to so many and make our mission possible!

We are deeply thankful for all that you do. 🌟

02/27/2026

02/25/2026

Thinking about securing a proclamation or light-up for Scleroderma Awareness Month? 🩵

We have a step-by-step training video that walks through the process - from who to contact to what to say. 💡

It’s a great resource to watch now or bookmark for later as you start planning!

Watch now at: https://ow.ly/C9yb50YinH8

02/25/2026

There is so much progress yet to be made into researching treatments for rare diseases. 🔬

That’s why we support National Organization for Rare Disorders, Inc. (NORD) on , February 28!

Learn what you can do to help: https://rarediseases.org/rare-disease-day/