Rare Birds Foundation

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Rare Birds Foundation The mission of Rare Birds Foundation is to support families living with Adenylosuccinate Lyase Deficiency Disorder (ADSLD) and related purine disorders.

If you aren’t able to donate, can you help us raise funds? Host a walk, a dance, or put it on the Jumbotron at your favo...
10/05/2026

If you aren’t able to donate, can you help us raise funds? Host a walk, a dance, or put it on the Jumbotron at your favorite game! We can help you plan and execute a fundraiser for gene therapy!

Funding an AAV-9 Gene Therapy for ADSL Deficiency Disorder

Friends, this summer, Rare Birds Foundation is raising $250,000 towards our gene therapy treatment for ADSL Deficiency. ...
06/17/2026

Friends, this summer, Rare Birds Foundation is raising $250,000 towards our gene therapy treatment for ADSL Deficiency. Can you help by donating, sharing, or becoming a fundraising team? We're so close to getting REAL help for our birds...

Funding an AAV-9 Gene Therapy for ADSL Deficiency Disorder

On June 3, 2026 Rare Birds Foundation hosted Dr. Xin Chen, the scientist developing an AAV-9 Gene Therapy for the treatm...
06/05/2026

On June 3, 2026 Rare Birds Foundation hosted Dr. Xin Chen, the scientist developing an AAV-9 Gene Therapy for the treatment of ADSL Deficiency at UT Southwestern.

Gene Therapy Horizons for ADSL Deficiency with Dr. Xin Chen, 6/3/26This meeting focused on updates from Dr. Xin about the development of a potential gene therapy for people living with ADSL deficiency, an ultra-rare metabolic disorder affecting approximately 163 individuals worldwide.Dr. Xin shared....

Our Strong Wings Caregiver Respite Retreat Application is live and open until June 2nd!
05/19/2026

Our Strong Wings Caregiver Respite Retreat Application is live and open until June 2nd!

You are not alone. Learn ways to connect with other families living with ADSL Deficiency.

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701 Pleasant Grove Boulevard #209
Roseville, CA
95678

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