National Gaucher Foundation

National Gaucher Foundation The National Gaucher Foundation (NGF) is an independent nonprofit serving U.S. patients with Gaucher

The NGF grants financial assistance, promotes education and awareness, supports legislation and provides vital patient programs, such as the Optimal Health Initiative. Through our CARE programs, we extend critical financial assistance to individuals with Gaucher disease. Supporting medical and lay-community outreach, our national and regional marketing programs promote ongoing awareness of Gaucher

disease. We publish monthly e-newsletters with blogs and podcasts highlighting thought leadership from the Gaucher medical community, provide access to carrier screenings and diagnostic testing with no out-of-pocket costs, host annual patient forums and provide valuable support to patients and their caregivers.

Some stories stay with you. This is one of them.A reflection on loss, progress, and how far we've come in the fight agai...
05/01/2026

Some stories stay with you. This is one of them.

A reflection on loss, progress, and how far we've come in the fight against Gaucher disease. From a time when there was no treatment, to life-saving breakthroughs that changed everything—this is a reminder of the power of hope, progress, and gratitude.

Thank you to Charles for allowing us to share his story, and to every family in our community whose journey continues to inspire us.

Gratitude, in itself, is truly healing.

University of Michigan Health System is a Treatment Center that treats adults with Gaucher disease.Patients can receive ...
02/26/2026

University of Michigan Health System is a Treatment Center that treats adults with Gaucher disease.

Patients can receive appointments with a Gaucher specialist and biweekly infusions.

Learn more about University of Michigan Health System, including their specialists and counselors, and other Treatment Centers at gaucherdisease.org/treatment-finder

In the NGF Facebook Community, there's so many good conversations taking place and so many connections being made. Have ...
02/24/2026

In the NGF Facebook Community, there's so many good conversations taking place and so many connections being made.

Have you joined?

Gaucher disease affects bone function in several ways. Bone crises—excruciating pain in the bone—are the most severe. Fo...
02/19/2026

Gaucher disease affects bone function in several ways. Bone crises—excruciating pain in the bone—are the most severe. Fortunately, the complications can be significantly lessened and even prevented with the right care.

In honor of , our partners at Bionews are offering two $2,500 Community Connection Scholarships to help rare disease pa...
02/18/2026

In honor of , our partners at Bionews are offering two $2,500 Community Connection Scholarships to help rare disease patients and caregivers attend the advocacy or medical conferences that matter most to them.

📅 Deadline to apply: March 6, 2026

🔗 How to apply: Visit https://bionews.com/community-scholarship/

02/17/2026

In this final edition of Developing Enzyme Replacement Therapy: An Insider's Perspective, learn where ERT stands today.

02/12/2026

Since the start of NGF's Global Diagnostic and Treatment Initiative, Dr. Robin Ely – Founder of NGF and Director of the NGF Global Diagnostic Treatment Initiative – has traveled the world to meet with doctors, researchers, patients, and pharmaceutical companies to help diagnose and educate on Gaucher disease.

02/10/2026

This fourth edition of Developing Enzyme Replacement Therapy: An Insider's Perspective covers some of the setbacks and issues researchers dealt with while developing ERT.

Artist Ted Meyer live with Gaucher disease for years before Enzyme Replacement Therapy was approved, so if you're growin...
02/05/2026

Artist Ted Meyer live with Gaucher disease for years before Enzyme Replacement Therapy was approved, so if you're growing up with Gaucher disease, he shares his words of advice.

02/03/2026

In this 3rd part of Developing Enzyme Replacement Therapy: An Insider's Perspective, learn about the missing enzyme behind Gaucher disease and how researchers learned how to produce it.

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5410 Edson Lane, Ste 220
Rockville, MD
20852

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Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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