Aplastic Anemia and MDS International Foundation

Aplastic Anemia and MDS International Foundation Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH
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The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

AAMDSIF Support Groups are VIRTUAL, so you can join from anywhere!Whether you have Aplastic Anemia, MDS, or PNH, or any ...
08/27/2026

AAMDSIF Support Groups are VIRTUAL, so you can join from anywhere!
Whether you have Aplastic Anemia, MDS, or PNH, or any combination of these conditions, you can find others with the same condition as you!
Never joined? You'll be welcomed!
Find the group that suits you best here: https://www.aamds.org/support/patient-family-virtual-support-groups
Need help deciding? Email [email protected] for more information.

08/26/2026

Transplantation has come a long way since its beginning and the science continues to advance today.
Are you facing a bone marrow transplant or a stem cell transplant? What do you know about GVHD, Graft VS Host Disease, and its treatment?
Find out up-to-date information from Dr. Corey Cutler in this recent recording: https://www.aamds.org/share/webinar/789

Dr. Sumithira Vasu discusses the diagnosis, treatment, and impact of transplant-associated thrombotic microangiopathy (T...
08/24/2026

Dr. Sumithira Vasu discusses the diagnosis, treatment, and impact of transplant-associated thrombotic microangiopathy (TA-TMA).
Find out what you want to know about this condition here: https://www.aamds.org/share/webinar/2806


"I survived on blood transfusions and panicked hope, along with a wretched determination to live as normal a life as pos...
08/23/2026

"I survived on blood transfusions and panicked hope, along with a wretched determination to live as normal a life as possible, despite being at continuous high risk of spontaneous and fatal bleeding without platelets that could adequately clot blood."

Then, "Several years in, a bone marrow biopsy showed my condition had evolved from aplastic anemia into the highest-risk form of myelodysplastic syndrome (MDS); the stark truth was that I now had a three- to six-month life expectancy."

From shock to despair to joy, find Dianne's story here: https://www.aamds.org/patient-chronicles/dianne-witter

What is my Diagnosis?Dr. Bart Scott provides an overview of aplastic anemia, myelodysplastic syndromes (MDS), myeloproli...
08/22/2026

What is my Diagnosis?
Dr. Bart Scott provides an overview of aplastic anemia, myelodysplastic syndromes (MDS), myeloproliferative neoplasms (MPN), and paroxysmal nocturnal hemoglobinuria (PNH). He explains the diagnostic tests and criteria used to make an accurate diagnosis.
Learn what you want to know in this recording: https://www.aamds.org/share/webinar/2888


Considering Transplant?For MPN (Myeloproliferative Neoplasms) or Myelofibrosis?Dr. Rachel Salit provides an overview of ...
08/20/2026

Considering Transplant?
For MPN (Myeloproliferative Neoplasms) or Myelofibrosis?
Dr. Rachel Salit provides an overview of transplantation for myeloproliferative neoplasms (MPN), including Myelofibrosis, when a transplant may be recommended, the transplant process, potential risks and benefits, recovery, and long-term follow-up in this session recording: https://www.aamds.org/share/webinar/2894

Dr. Naveed Ali provides an overview of transplantation for myelodysplastic syndromes, (MDS), when a transplant may be re...
08/18/2026

Dr. Naveed Ali provides an overview of transplantation for myelodysplastic syndromes, (MDS), when a transplant may be recommended, the transplant process, potential risks and benefits, recovery, and long-term follow-up.
Watch now: https://www.aamds.org/share/webinar/2892

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