Aplastic Anemia and MDS International Foundation

Aplastic Anemia and MDS International Foundation Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH
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The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

From the 2026 AAMDSIF International Bone Marrow Failure Disease Scientific Symposium Dr. Namrata Chandhok reviews the hi...
06/19/2026

From the 2026 AAMDSIF International Bone Marrow Failure Disease Scientific Symposium Dr. Namrata Chandhok reviews the highlights of this symposium session, including how quality of life in MDS can be measured, ways to improve psychological well-being for MDS patients, and the importance of palliative care.
Watch now: https://youtu.be/V-fG4uqwinM

When Kelsey's bloodwork came back, her platelets measured at 1. More testing, then the diagnosis: Severe Aplastic Anemia...
06/18/2026

When Kelsey's bloodwork came back, her platelets measured at 1. More testing, then the diagnosis: Severe Aplastic Anemia.
She became platelet refractory after a week of transfusions. Then, a brain bleed.
Terrified, she prayed. The next day, 3 donors had been found for her transplant, so she and her family started the 900-mile journey to the transplant center.
Read Kelsey's journey to survivorship:https://www.aamds.org/patient-chronicles/kelsey-proutey

Patients with MDS, MPN, or MDS/MPN Overlap: What do you know about this condition and its treatment?Watch this recordin...
06/17/2026

Patients with MDS, MPN, or MDS/MPN Overlap: What do you know about this condition and its treatment?
Watch this recording for a thorough explanation of MDS/MPN Overlap: https://www.aamds.org/share/webinar/802
/MPN -MPN

"I started to gradually feel unlike myself. Gradually, I would feel off balance. I would feel super fatigued and tired. ...
06/16/2026

"I started to gradually feel unlike myself. Gradually, I would feel off balance. I would feel super fatigued and tired. I was just always exhausted."
PNH was the surprise diagnosis. Shquilla describes her experiences, from diagnosis, through treatments, to today in this episode.
Listen on our website here: https://www.aamds.org/podcast/long-hard-road-diagnosis-shaquillas-story or find it on your favorite podcast app, find AAMDSIF Podcast for Patients.

If you missed the live webinar, the time is now to watch!The American Society for Hematology has issued Guidelines for t...
06/15/2026

If you missed the live webinar, the time is now to watch!
The American Society for Hematology has issued Guidelines for the treatment of Aplastic Anemia. Watch this webinar to understand how these guidelines will help determine treatment for patients with Aplastic Anemia.
View this now: https://www.aamds.org/share/webinar/2701

By Patients, for Patients, no matter your age or experience: The AAMDSIF Global PNH Patient Registry is for you! Why joi...
06/14/2026

By Patients, for Patients, no matter your age or experience: The AAMDSIF Global PNH Patient Registry is for you!
Why join? "I can share my experience and information with other patients to support each other and face the challenges of the disease together." For more information, please visit https://pnh.iamrare.org today.

-patients-for-patients

Thanks to Diamond Sponsor Novartis for sponsoring the AAMDSIF Seattle Patient and Family Conference!
06/13/2026

Thanks to Diamond Sponsor Novartis for sponsoring the AAMDSIF Seattle Patient and Family Conference!

Thanks to Diamond Sponsor Gamida Cell Inc. for supporting the AAMDSIF Seattle Patient and Family Conference!
06/13/2026

Thanks to Diamond Sponsor Gamida Cell Inc. for supporting the AAMDSIF Seattle Patient and Family Conference!

Thanks to Diamond Sponsor, Apellis Pharma for supporting the AAMDSIF Seattle Patient and Family Conference!
06/13/2026

Thanks to Diamond Sponsor, Apellis Pharma for supporting the AAMDSIF Seattle Patient and Family Conference!

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20850

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