Daystar Kids

03/19/2026

Join us in supporting Seviyn and her family 💜

Seviyn, a child that attends Daystar, was born with heterotaxy, a rare condition that impacts how vital organs develop and function. Her journey has required ongoing medical care, strong advocacy, and incredible resilience. While she’s home and making progress, her path continues to include long-term care and uncertainty, something many families navigating rare conditions understand all too well.

On Sunday, May 24th at 10 AM, her family invites our community to come together for the Sevyn Strong Heterotaxy Awareness Walk.

This walk is about more than one day. It is about building awareness, supporting families facing complex medical journeys, and creating a community where no one feels alone.

We walk for Seviyn and her strength.
We walk in honor of the children whose stories continue to inspire change and understanding.

Show up, stand together, and be part of something meaningful.

Learn more and get involved:

A community walk raising awareness for heterotaxy and supporting families navigating rare and complex diagnoses.

03/11/2026

It was a great day at the Festival of Inclusion! Thank you to everyone who stopped by to say hello! It was so nice seeing so many familiar faces, including current families and alumni.

It was wonderful to see so many agencies come together in one place. Our community truly shows up for families and the level of support available is something really special. We are so extremely grateful to be part of such a strong network of support.

A big thank you as well to the wonderful staff who represented our program at the event. We’re so grateful for the heart and dedication you bring every day. 💙

Thank you The Golisano Foundation and Best Buddies International for hosting such a wonderful event!

12/01/2025

Tomorrow, December 2nd is Giving Tuesday, we invite you to support Daystar Kids — New York’s only Pediatric Complex Care and Learning Center for children ages 4 months to 5 years old.
Medical advances are helping more children survive life-threatening illnesses than ever before, but long hospital stays and ongoing treatments can delay learning during the most important years of early development.
At Daystar Kids, we embrace these challenges. Our multidisciplinary teams of early childhood and special education experts, rehabilitative therapists, and pediatric healthcare providers work together to give every child the individualized care and specialized resources they need to learn, thrive, and shine.
Your Giving Tuesday gift helps empower children with complex medical needs with the skills, strength, and confidence they need for a bright and happy future.
Thank you for helping our children grow stronger every day.
Link: United Ways ROC The Day - United Way of Greater Rochester and the Finger Lakes Lakes : https://unitedwayrocflx.org/roc-the-day/causes/DaystarKids