Lilah’s Lemonade

08/17/2026

Change of plans this week!

With Lilah entering 6th grade this year, she is having a transition day on Wednesday and really excited to participate in Cheer Camp on Thursday… SO….

FRIDAY (8/21) WILL BE THE LAST LEMONADE STAND OF 2026!

🤞 hope for a dry and sunny day!! ☀️ 🍋

08/13/2026

We will not be setting up Lilah’s Lemonade stand today. The chance of rain plus Lilah feeling extra tired at the moment has us calling it a rest day for her infusion today.

08/12/2026

We are squeezing with high hopes! Hopefully the rain holds off and it’s a nice day to enjoy some time outside!

Only 2 home infusions left before school starts. Stop by and say Hi!

All money raised during Lilah’s Lemonade stand goes directly to National MPS Society to help families like ours and fund research for cures and treatments for Mucopolysaccharidosis.

Lilah has Mucopolysaccharidosis type VI and during her weekly enzyme replacement therapy infusions, she opens her lemonade stand to raise awareness and funds for a cure for MPS.

07/29/2026

OPEN Today from 11:30-1:00!
Then, only 3 dates left before school starts!

Infusion day is TODAY so she’s hanging out at her stand. After her infusion, we are off to Ohio for National MPS Society Family Conference and we’re brining Lilah’s Lemonade stand with us!

She’s made such a huge impact with this little idea. 8 seasons of Lilah’s Lemonade, thousands of dollars raised for the National MPS Society, more lemons squeezed than we can fathom and so many proud people behind her.

When life gives you A LOT of lemons, open a lemonade stand.

07/23/2026

Lilah’s Lemonade will be OPEN TODAY starting at 11 am!

Stop by during Lilah’s weekly Enzyme Replacement Therapy infusion and enjoy a glass of her homemade, freshly squeezed lemonade. All money raised goes directly to National MPS Society!

11 year old Lilah has MPS-VI or Mucopolysaccharidosis Maroteaux-Lamy. Her body is missing an enzyme needed to break down waste so it builds up throughout all systems in her body causing irreversible damage. Her weekly infusions are not a cure but a treatment to slow the progression of the disease.

We will be out there starting at 11 (until we run out or her treatment is done), raising awareness and funds for research for a cure for her disease.

07/16/2026

We won’t be setting up the lemonade stand today. Hoping for an end to this soon so we can be outside safely (next week)!

07/09/2026

Can’t wait to be reunited with our MPS friends later this month! 🙌

One of the greatest gifts of the Annual Family & Scientific Conference is the people you meet.

Many lifelong friendships begin with a simple conversation over breakfast, during a session, or while waiting for an activity to begin.

This year, challenge yourself to introduce yourself to someone new. You never know—you might leave with a lifelong friend who truly understands your journey.

Community starts with connection. Join us in Columbus: tinyurl.com/mpsfamily2026

07/09/2026

Lilah’s Lemonade is back for her 8th season! Open Thursdays during her weekly infusion, Lilah’s Lemonade is a fundraiser and awareness stand with the best homemade lemonade.

All money raised goes to National MPS Society to fund research for Lilah’s rare disease and fund support programs for families like ours.

07/02/2026

🌧️ Rain, rain… go away, we have lemonade today! 🍋

Today was supposed to be the first lemonade stand of Lilah’s 8th season supporting the National MPS Society. Unfortunately, Mother Nature had other plans, and with the rain, we won’t be opening today.

While we’re disappointed, we’re also incredibly grateful for everyone who continues to support Lilah’s mission. Every cup of lemonade helps raise awareness and funds for research and support for families affected by MPS.

Thanks to those that have been looking forward to this day as much as we have been! We’ll be back next Thursday during Lilah’s weekly infusion, ready to kick off another season with lots of lemonade, smiles, and hope. 💜

We can’t wait to see you next week! 🍋

07/02/2026

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Every family's journey with MPS or ML is unique—but no one should have to walk it alone.

Our Family & Scientific Conference brings together individuals living with MPS and ML, caregivers, researchers, clinicians, industry partners, and advocates from across the country. Together, we learn, connect, and build hope for the future: tinyurl.com/mpsfamily2026

If you've been thinking about joining us, there's still time. We would love to see you in Columbus!