We now have the ability to donate directly through PayPal at the link below. Thank you for your support! https://www.paypal.com/donate/?hosted_button_id=H45V52SRQ3JUY
Our first baby, Madison Rose, was diagnosed at our 20 week ultrasound with the Congenital Heart Defect(CHD), HRHS (Hypoplastic Right Heart Syndrome). The doctors remained positive and Madison was born on June 17, 2016 at Morgan Stan
ley Children's Hospital at NY Presbyterian. After her first open heart surgery almost 2 weeks after birth she was listed for heart transplant. She was one day shy of her 12 week birthday when she passed away suddenly on September 8, 2016 and sadly never left the NICU while waiting for her new heart. She fought hard and went through more than most people will ever go through in their lifetime during those 2 1/2 months. She had one open heart surgery, 1 cath procedure in addition to countless other procedures, picclines, IVs, ARTlines, echos, EKGs, blood transfusions and daily bloodwork. She is an inspiration for all. We miss her so much but carry her with us everyday in our hearts. We continue to honor Madison and create CHD Awareness with our Madison Strong fundraising, Miracles for Madison Go Fund Me Page and now our new non-profit foundation called The Madison Rose Heart Project. Website coming soon but you can follow updates here, Instagram, Twitter and on our Go Fund Me Page. Thank you for the love and support in honoring Madison and helping the CHD community!
