Sjögren's Foundation

Sjögren's Foundation Committed to Conquering and Improving Lives through Education, Support, Advocacy, Research Let's treat everyone with respect.
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Sjögren’s (“SHOW-grins”) is a systemic autoimmune disease that affects the entire body. Along with symptoms of extensive dryness, other serious complications include profound fatigue, chronic pain, major organ involvement, neuropathies, and lymphomas. As a systemic disease, affecting the entire body, symptoms may remain steady or worsen overtime. There is no one single progression of the disease a

nd this can make it challenging for patients and their physicians. While some people experience mild discomfort, others suffer debilitating symptoms that greatly impair their functioning. Early diagnosis and proper treatments are important as they may prevent serious complications and greatly improve a patient's quality of life. About half of the time Sjögren's occurs alone, and the other half it occurs in the presence of another autoimmune connective tissue disease such as Rheumatoid Arthritis, Lupus, or Scleroderma. In addition, Sjögren's is often misrepresented as a rare disease, however it is estimated that there are four million Americans living with this disease, making it one of the most prevalent autoimmune diseases. The Sjögren’s Foundation is proud to be the first and only national non-profit health organization leading the charge to conquer Sjögren’s. While focused on increasing research, education and awareness for this disease, the Foundation works on behalf of all Sjögren’s patients and is dedicated to conquering the complexities of this life-altering and debilitating disease. The Foundation is committed to supporting all Sjögren’s patients while acknowledging the truly complex nature of this disease. Our initiatives, programs and overall efforts are first and foremost started, advanced and expanded, with the Sjögren's patient in mind. With so many people living with questions about their disease and concerned about their disease progressing, we want to make a difference for patients and provide them with answers as well as a sense of hope, now, and for the future. The Foundation brings the voice of patients to the highest levels – to the halls of Congress, primary agencies of the United States Government, leading medical centers and prominent research institutions. We help patients tell their stories to put a human face on Sjögren's, and address the misunderstanding of this complex disease. The Foundation also serves as the lead organization for Sjögren’s worldwide. The Foundation reserves the right to remove without notice any comments, accounts, photos, videos or graphics that are unlawful, obscene, spam or otherwise offensive. This includes but is not limited to advertising or spam, vulgar or disturbing language or images, posts that may violate the rights of others, are disrespectful to any community member, go against the Facebook Statement of Rights and Responsibilities and Community Standards, or any other Facebook term or policy. Community members that repeatedly violate these guidelines will be blocked. Additionally:
Be Kind and Courteous
We're all in this together to create a welcoming environment. Healthy debates are natural, but kindness is required. No Hate Speech or Bullying
Make sure everyone feels safe. Bullying of any kind isn't allowed, and degrading comments about things like race, religion, culture, sexual orientation, gender or identity will not be tolerated. No Promotions or Spam
Give more than you take to this community. Self-promotion, spam and irrelevant links aren't allowed. Respect Everyone's Privacy
Being part of this community requires mutual trust. Authentic, expressive discussions make communities great, but may also be sensitive and private. What's shared in the community should stay in the community.

Sjögren’s doesn’t just affect the body, it can affect every part of a person’s life, including their ability to work and...
08/24/2026

Sjögren’s doesn’t just affect the body, it can affect every part of a person’s life, including their ability to work and build a career.

According to the Sjögren’s Foundation’s 2025 Living with Sjögren’s®️ Patient Survey, 57% of respondents reported that their job/career or ability to work was negatively impacted by Sjögren’s.

For many people, symptoms like fatigue, brain fog, pain, and sleep disturbances can make it difficult to maintain the same pace, meet work demands, or continue in the career they’ve worked hard to build. The impact of Sjögren’s can extend far beyond physical symptoms, affecting financial security, professional goals, and quality of life.

To learn more about the survey results click here: www.sjogrens.org/survey

 : Use warm, not hot, water when bathing, and limit your use of soap to avoid drying out your skin. After bathing, gentl...
08/18/2026

: Use warm, not hot, water when bathing, and limit your use of soap to avoid drying out your skin. After bathing, gently pat your skin dry and apply moisturizer while your skin is still slightly damp to help lock in moisture.

We encourage you to share this tip on your page and comment below with your experience(s).

Please join us in welcoming Stacie J. Bell, PhD as the Sjögren's Foundation's first Chief Science Officer.This is an exc...
08/17/2026

Please join us in welcoming Stacie J. Bell, PhD as the Sjögren's Foundation's first Chief Science Officer.

This is an exciting time for the Sjögren's community. As research advances and new treatment emerge, we're continuing to invest in the people and expertise that will help move our mission forward. Dr. Bell will drive the Sjögren’s Foundation's scientific and research strategy, healthcare provider education, and will oversee the expansion of a network of Sjögren’s-trained professionals to further advance clinical trials and care.

Learn more about Dr. Bell and help us welcome her to the Foundation: https://sjogrens.org/news/2026/sjogrens-foundation-welcomes-dr-stacie-bell-as-first-chief-science-officer

We are making important progress in the fight for more Sjögren's disease research! We recently met with NIH Director Dr....
08/13/2026

We are making important progress in the fight for more Sjögren's disease research!

We recently met with NIH Director Dr. Jay Bhattacharya to advocate for Sjögren's disease to be designated as an NIH Highlighted Topic, a designation that encourages more researchers to pursue Sjögren's disease studies and helps increase the visibility of research opportunities across the NIH.

We're excited to share that Dr. Bhattacharya agreed to move our request forward.

This milestone comes at a critical time. Despite affecting millions of Americans, Sjögren's disease continues to receive far less NIH research funding than many other autoimmune diseases.

Read our latest blog to learn what this means for the future of Sjögren's disease research, who participated in the meeting, and how this effort could help drive new discoveries in diagnosis, treatment, and care.

https://sjogrens.org/blog/2026/sjogrens-foundation-advocates-for-highlighted-topic-with-nih-director

 : Use a physical journal or digital app to keep a daily record of your symptoms and their severity. A consistent log ca...
08/11/2026

: Use a physical journal or digital app to keep a daily record of your symptoms and their severity. A consistent log can help you spot trends, identify triggers, and better understand your disease activity.

We encourage you to share this tip on your page and comment below with your experience(s).

People with one autoimmune disease are at greater risk of developing another. In fact, more than 20% of people with scle...
08/10/2026

People with one autoimmune disease are at greater risk of developing another. In fact, more than 20% of people with scleroderma also have Sjögren's disease, making it one of the more common overlap conditions.

Understanding the signs, symptoms, and relationship between these two diseases can help support earlier recognition and better care.

Learn more about Scleroderma and Sjögren's Disease, including symptoms, diagnosis, and treatment considerations:
https://sjogrens.org/understanding-sjogrens/overlapping-diseases-associated-conditions/scleroderma-and-sjogrens-disease

Two sisters. One Sjögren's disease diagnosis. A shared mission to turn their experience into action.After being diagnose...
08/07/2026

Two sisters. One Sjögren's disease diagnosis. A shared mission to turn their experience into action.

After being diagnosed with Sjögren's, these sisters found a way to come together, raise awareness, and make a difference for others in the community through the Walk for Sjögren's.

From taking steps for a cause to building connections with others who understand the journey, their story shows the power of community and the impact we can make when we move forward together.

Read their story and see how two sisters are using their voices to support a brighter future for everyone affected by Sjögren's disease.

Read the full blog: https://sjogrens.org/blog/2026/two-sisters-with-sjogrens-walk-together-to-support-others

Sjögren’s affects every patient differently, and symptoms can show up in many ways. What works for one person may not wo...
08/06/2026

Sjögren’s affects every patient differently, and symptoms can show up in many ways. What works for one person may not work for another, and sharing experiences can help others feel less alone.

Tell us how sun and Sjögren's affects you and what strategies have helped you manage it in your daily life by commenting below.

Every person living with Sjögren's disease deserves an earlier diagnosis, better treatments, greater access to resources...
08/05/2026

Every person living with Sjögren's disease deserves an earlier diagnosis, better treatments, greater access to resources, and healthcare professionals who understand this complex autoimmune disease. Achieving that future requires continued investment in research, education, and advocacy.

Join the Sjögren's Foundation at our National Town Hall on August 11 at 7:00 p.m. ET to hear updates on this year's Foundation research investments, expanding healthcare professional education initiatives, and the progress being made to advance the mission.

You'll also learn about the impact we've made together, current Foundation priorities, and what's ahead for the Sjögren's community.

We hope you'll join us for this important conversation. Register today: https://sjogrens-org.zoom.us/webinar/register/WN_Eqo8sdh5T4qUKNUkP0jQYg #/registration

 : Consider trying oil pulling with coconut or olive oil to help soothe and moisturize the tissues in your mouth. To do ...
08/04/2026

: Consider trying oil pulling with coconut or olive oil to help soothe and moisturize the tissues in your mouth. To do this, swish the oil gently in your mouth for several minutes, then spit it out.

We encourage you to share this tip on your page and comment below with your experience(s).

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10701 Parkridge Boulevard , Suite 170
Reston, VA
20191

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