Team Bentlee

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Team Bentlee Team Bentlee is organized in honor of Bentlee’s ongoing fight against congenital heart disease.

We haven’t updated on B’s page in a while.Long story short- He had his annual check up yesterday and his echo looked sta...
09/03/2026

We haven’t updated on B’s page in a while.

Long story short- He had his annual check up yesterday and his echo looked stable, but his EKG had some abnormal readings on it.

He’s wearing a heart monitor for a couple days, and then we will go from there❤️‍🩹

I think this is one of the worst parts of congenital heart defects. These kiddos can be “fine” for years. Then out of no where, something pops up and isn’t right.

Thankfully Bentlee keeps us all laughing and smiling. He is the best boy & so strong. 🫶🏼

We had so much at HavenHouse St. Louis working on fun stuff for HopeFest 2026!!!🤭🤭
02/22/2026

We had so much at HavenHouse St. Louis working on fun stuff for HopeFest 2026!!!🤭🤭

It’s the little things… like an adaptive backpack from Target allowing him to do all the things while infusing❤️
01/06/2026

It’s the little things… like an adaptive backpack from Target allowing him to do all the things while infusing❤️

Throwback to HopeFest 2025 because some really exciting things are happening for HopeFest 2026🤭We can’t wait to share mo...
12/16/2025

Throwback to HopeFest 2025 because some really exciting things are happening for HopeFest 2026🤭

We can’t wait to share more details at a later time! For now- can you look at this sponsorship level graphic and see if your company, (or maybe you know a business?) has the ability to sponsor at some capacity? Most sponsorship levels include tickets to the event- if you’re unable to make it-no worries! Bentlee has lots of friends he’d love to invite to the gala!

Let me know if you need more info, and I can connect you😊

This guy celebrated his golden 6️⃣th birthday on the 6th- and today we celebrate his 6th Heartiversary!❤️💙 We are so tha...
12/11/2025

This guy celebrated his golden 6️⃣th birthday on the 6th- and today we celebrate his 6th Heartiversary!❤️💙

We are so thankful for your life Bentlee! We will always fight with you💪🏼❤️‍🩹

Thank you On Angels' Wings for Bentlee’s 6 year journey session❤️

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Republic, MO
65738

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