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A Blind Journey: Finding Hope in the Darkness

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A Blind Journey: Finding Hope in the Darkness

Welcome to headquarters, also home of ! Come learn a little about the life and happenings of a sweet boy named Keegan!! It is isolating.

A goal of mine is to raise awareness about Keegan's rare disorder. He was diagnosed with Septo-Optic Dysplasia days after being born. We are sharing our story on our blog: www.ablindjourney.com

I also want to raise awareness for children with various rare disorders. As well as to help families find support when they have a child severely impacted by various disorders rare or not. It is extremely

difficult to raise a child with special needs. It is expensive. It is misunderstood. I would like for that to change. That change starts with you and I am I am so thankful you are interested in being a part of it! Let's just say the list of things I would like to do is long! For more info on Septo-Optic Dysplasia, OR if you have ANY concerns about your child's growth visit the Magic Foundation website: ww.magicfounation.org

07/07/2026

Can y’all believe Keegan turned 20 about two weeks ago?! Me neither.
It’s also been 11 weeks since scoliosis surgery and the struggle is real. Follow up with Ortho this week and we’re hoping to get better support in place for him because he’s been in a LOT of pain and our efforts to help have been unsuccessful.
Haven’t updated in a while but thought everyone would appreciate seeing Keegan in his space… oh yeah cause he’s had his own room for a year now! && to show off the latch key rug his grandma made for him! Isn’t it rad?

11/14/2024

Keegan Update: Getting another infusion for bone strength. Hopefully he doesn’t feel too yucky afterward. Getting to the infusion center early was a feat but we did it! Keegan was bright eyed and fired up until the Benadryl kicked in and infusion started… but I can’t think of a better way to pass the time than a little nap! Good job being an example of 💙

11/13/2023

in full effect… something about that fall sun shining in the window makes me imagine Keegan melted like a snowman into a peaceful slumber.

06/28/2023

Always happy when I can catch this guy rocking out!
💜 Extra happy he’s feeling good today

06/24/2023

Happy Birthday KEEGAN!!! Hard to fathom the fact that you are 17 years old today!! What a wild ride it’s been loving and fighting for you. This year has been a doozy but you still find the joy in being greeted by loved ones in the morning, and laugh and squeal when dad carries you upstairs. You’ve pushed through some miserable unknown health issues and your willingness to do what we ask of you is pretty amazing… walking on the treadmill despite your legs shaking uncontrollably? I’m in awe of your strength resilience and determination.
All our love to you today and always sweet Keegan!!! ❤️

02/28/2023

It’s been a rough few months for Keegan mostly because he is rare and it’s difficult to figure out what’s wrong. Today we raise our voices and show their faces so that those that are rare can be seen and heard.
Take a moment to today for Rare Disease Day 2023!

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