WPI

09/02/2026

Thank you Bateman Horne Center for reminding us about your free resources!
Download for free: https://bit.ly/432YdzF
Order on Amazon: https://www.amazon.com/dp/B0G3CNDDSB

The BHC Clinical Care Guide is freely available to download at any time; and for those who prefer a printed copy, it is also available for purchase on Amazon.

This evidence-informed resource offers practical guidance for the assessment and management of ME/CFS, Long COVID, and other infection-associated chronic conditions.

Download the guide for free, order a printed copy for yourself, or consider sharing it with a clinician.

👉 Access both options using the link in our first comment below.

08/24/2026

ME/CFS in children, adolescents, and young adults is an often overlooked demographic. With the rise of ME/CFS diagnoses after Covid and Long Covid, many more young people are facing the detrimental effects of this chronic illness, especially with difficulties in educational accommodations and social isolation.
The WPI hopes that this informational post will help you or your child in navigating ME/CFS, receiving the accommodations you need, and finding a medical practitioner that suits your needs.

08/17/2026

In our mission to support our allied organizations, we gathered an ME/CFS resource guide catered to any needs you might be searching for!

We want to thank Bateman Horne Center, The Network, Nova Southeastern University & Dr. Nancy Klimas, and Health Rising by Cort Johnson, and many more!

Visit for more info:
https://www.iacfsme.org/
http://www.batemanhornecenter.org
https://www.meaction.net/
https://www.healthrising.org/

08/07/2026

Tomorrow is Severe ME Day. We are grateful for the efforts of our friends at for bringing awareness to those who suffer from the most severe form of ME and for honoring those who have passed. Learn more about MEAction at https://www.meaction.net/

08/05/2026

Thank you Bateman Horne Center for this amazing lineup of speakers!

Five organizations. One conversation.

Join the collaborative for a special "Coffee" with a Clinician in recognition of Severe ME/CFS Awareness Month.

Wednesday, August 12 | 10:00 a.m. MDT

Representatives from Bateman Horne Center, The Network, Open Medicine Foundation, Solve MECFS Initiative, and the WIMEL Writers (What Is Myalgic Encephalomyelitis Like?) will come together to discuss the unique considerations of severe ME/CFS, recognizing the importance of lived experience, continuing education, accessible research, and patient advocacy.

Register here: https://bit.ly/3JCHAFq

07/29/2026

LOVE seeing the progress in ME?CFS research and advocation happening! Keep fighting the good fight!

We have some positive updates to share!

- We are closer than ever to getting the ME/CFS Research Roadmap funded.

Building on the Congressional relationships we developed in May through our partnership with , met with six offices of members of the Labor-HHS Appropriations Subcommittee over the last two weeks to request $50 million in dedicated funding for the ME/CFS Research Roadmap. We have received a commitment from a key office that the entire Labor-HHS Subcommittee will review our language on the Roadmap. We do not have a guarantee, but this is absolutely our best shot, and we are staying in close contact with the offices that still have the power to make it happen.

None of this would be possible without the volunteers who have built contact lists, shared their stories in meetings, and helped strategize every next step. You know who you are. Thank you.

- The Office of the Surgeon General is ready to work with us.

Last week, we met with the Office of the Acting Surgeon General as a direct result of our advocacy. The meeting was genuinely positive! The office is tasked with developing public health communications and they are open and receptive to developing communications on ME/CFS and other infection-associated chronic illnesses alongside us. This is a significant opening and we are following up with urgency.

- The fight for Medicaid protections continues.

We are actively developing our next steps to protect our community from Medicaid work requirements. We are not letting up.

TAKE ACTION: (all links here: https://www.meaction.net/post/a-week-of-wins-the-roadmap-congress-the-surgeon-general)
-Leave a public comment about Medicaid work requirements. You can use our template.

- Join our advocacy working group, which meets on Wednesdays.

-Do na te & ask others to as well.

No matter what you do, you are an important and valued part of the community. We are fighting for you and with you every single day.

07/29/2026

The distinction is very important. Thank you for posting!

"Why it's important that PEM is not fatigue"

https://mecfs.substack.com/p/why-its-important-that-pem-is-not

"*PEM is post-exertional malaise, also known as post-exertional symptom exacerbation. It is a symptom of ME/CFS and is also found in many people with "

07/29/2026

Amazing insight to Bateman Horne Center resources! Thank you for bringing attention to some FAQs for patients!