Rylie's Smile Foundation

06/27/2026

Wow! How time flies!

06/01/2026

On May 30, this past Saturday, we had such a moving SAY MY NAME 5k & 1 mile walk in Lewes, Delaware along the Breakwater Cape Henlopen State Park Trail. This event raised awareness, advocated for the need of DIPG research, remembered the children lost this past year that we’ve had the honor of getting to know. Participants offered up thoughts and prayers to those still battling pediatric cancer. If you participated in our event or even if you’ve walked the trail afterwards we are sure you’ve seen the beautifully painted stones placed there for all to see with children’s names on them. These are children who are currently battling DIPG. The windchimes (now removed since our event ended) along the trail during our event represented ones who’ve left their earthly bodies this past year.

We encourage you to NOT take these stones unless you are going to place them elsewhere along the beautiful nature trail that people will walk by. It’s important for these children to be thought about … to have their names said. These children need all of the prayers we can offer up to discover the research break through they so desperately need and to help them down this difficult road.

One of these rocks along the trail is for sweet little Hadley, better known as Haddie. It is green with little hearts on it. As you pass her painted rock we ask you to send thoughts to her family. Maybe even have a moment of silence. Her family is experiencing an unimaginable loss.


https://www.richardsonfuneralhome.net/obituary/HadleyHaddieB-Boucher?shem=rimspwouoe,&fbclid=IwRlRTSASK4lJleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEe-CCKnUD51_s5pIa9KeJ_LHg6-OlGxJzFjWKWfdAknq55Zu5ShESmQZPtnz8_aem_Yhs90ID1vagpwXEY18mSFg

Celebrate the life of Hadley "Haddie B." Boucher and join others in sharing memories, stories, and condolences.

05/31/2026

Such a memorable event today!! We added a second 5k & 1 miler to our race series. We will now have one the first Saturday after Memorial Day in Lewes AND one Thanksgiving in Rehoboth Beach…YEARLY!!

Today was our first annual SAY MY NAME! We had so many positive comments from participants! Our trail went into the Cape Henlopen State Park where runners and walkers were greeted with the sound of 21 wind chimes along the route. Each wind chime represents a child diagnosed with DIPG, a terminal pediatric brain tumor, that Rylie’s Smile has had the honor to work with and has passed on. Some participants told us that this made them think about what these children endured and pushed them to run harder.

Also along the way were 50 hand painted stones…these also included children’s names who are still facing a tough road ahead. ALL of these families and children need our thoughts and prayers. You may see one of these stones if you walk the Breakwater trail in the coming weeks. Please say their name as you come across them.

Afterwards we all listened to Catch The Drift and had a bite to eat while we discussed how moving the trail was for this event. Thank you to The American Legion Post 17, NKS, Races2Run, Catch The Drift and DPI for helping to make today happen. Mark your calendars for next years Say My Name on June 5th!

Learn more about DIPG and how devastating this childhood brain cancer is. Due to the tremendous lack of funding a majority of DIPG and DMG research is privately funded. Truly it’s these families who fund the research to battle their own child’s killer. When you want to do something to make a difference please think about this. Pediatric cancer is only rare until it happens to someone you love.

05/28/2026

Shout out to our local Rehoboth Beach Croc outlet store who once again donated Jibbitz to give out to the children who participate in our SAY MY NAME 5k & 1 miler this Saturday, May 30th! They also donated items for the silent auction we will have. Please shop & support businesses who support our community!! Crocs

05/28/2026

Gearing up for our event on Saturday! Beer & Seltzers delivered, free apparel for registrants looks amazing, picking up last minute donations for silent auction, band is warming up! Let’s do this! Rylie's Smile Foundation ChadTough Defeat DIPG Foundation