Neurodegenerative Disease Research, Inc.

05/14/2026

On Monday, May 13th, 2024, Richard Hollis Helms, aviator, CIA operative, entrepreneur, mentor, venture capitalist, caring husband, father, grandfather, brother, and uncle passed away peacefully at age 75 in his home surrounded by family after a courageous battle with ALS. May the research he funded live on.

04/14/2026

https://alsnewstoday.com/news/swallowing-problems-affect-1-3-hospitalized-als-patients-study/

Swallowing problems are a common challenge for people with ALS and may place a major burden on patients during hospital stays, per a study.

04/14/2026

https://alsnewstoday.com/news/scientists-identify-blood-markers-predict-als-progression/

Two blood markers for inflammation and cellular stress may help predict ALS progression patterns and survival outcomes, a study found.

04/14/2026

https://alsnewstoday.com/news/als-caregivers-canada-access-free-professional-counseling/

ALS Canada has expanded its free mental health program nationwide to provide virtual therapy for family caregivers.

04/14/2026

https://alsnewstoday.com/news/advocates-call-congress-reauthorize-act-als/

The ALS Association is urging Congress to pass the reauthorization of the ACT for ALS bill to secure funding for critical research and care.

04/07/2026

https://alsnewstoday.com/news/new-rare-gene-variants-tied-als-risk-factors-genetic-study/

About a quarter of ALS cases may have a genetic contributor, with new rare gene variants highlighting key ALS risk factors, a new study shows.

04/07/2026

https://alsnewstoday.com/news/als-caregivers-patients-prefer-team-based-care-survey-finds/

ALS caregivers and patients in the U.S. prefer team-based care models, with most ranking non-triage visits as their top choice in a survey.

04/07/2026

https://alsnewstoday.com/news/als-partnership-give-6-patients-expanded-access-tre-515/

Up to six people with advanced ALS will be treated with Trethera’s experimental therapy TRE-515 under a collaboration with Mass General.

04/07/2026

https://alsnewstoday.com/news/als-patient-named-advocate-of-year-als-network/

The ALS Network has named writer, speaker, and social media creator Brooke Eby, also a patient, as its 2026 Advocate of the Year.