Remarkable you

02/28/2026

Equity for rare diseases means more representation than you can imagine. ✨
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Imagine a world where rare individuals are equally represented in the media, not only shining a light on these conditions to promote education, but also to encourage empathy and gain recognition from those in power to dedicate funding for research towards treatments and cures.
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Living with PIK3CA-related overgrowth syndrome (PROS) subtype Klippel-Trenaunay Syndrome, I grew up in a world where I needed to explain my condition and my symptoms to everyone, my friends, my teachers, even total strangers. I live with people thinking that my vascular birthmark is simply a cosmetic issue and not just the outward sign of a much more complex condition that will affect me my entire life.
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As an advocate for the rare disease and vascular anomaly community, I want to make a difference in the lives of all individuals born with these conditions. Imagine a world where rare is beautiful. 💕
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zebedee
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12/25/2025

May the joy of the holidays be in your heart today and every day. 🩷
Photography by .laskiewicz
Hair and Makeup by
Dress by
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12/03/2025

Today is international day of persons with disabilities.
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Disabilities come in many forms. They can be visible or invisible; they can affect mobility, sensory, communication or cognitive functioning.
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It is important to understand; however, that disabled does not mean incapable. It means that resources should be made available to those with disabilities that allow them to flourish in society.
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As an individual living with a disability, I invite you today and every day to celebrate diversity, shift mindsets, and advocate for disability inclusion.
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Because what makes you different, makes you reMARKable. 💕✨
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12/02/2025

11/16/2025

Girls on the Run Berks 2025 Memories in Motion Fall 5K! 🏃🏽‍♀️‍➡️🏃🏼‍♀️‍➡️🏃🏿‍♀️‍➡️🩷✨
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Many thanks to for inviting me once again to be a part of the Partner Park for this fabulous event.
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I absolutely love sharing the positive and powerful message of what makes you different makes you reMARKable with these amazing girls. 💕
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I can't wait to partner again with this exceptional organization in the spring!
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Vascular Anomalies Alliance
Miss PA Scholarship Foundation, Inc.
Vascular Birthmarks Foundation Global Ambassadors
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11/12/2025

We are so incredibly grateful for this wonderful day. Thank you so much to everyone who came out to join us in support of the CVAP at Children's Hospital of Philadelphia. It was amazing to see all of the love and support for the vascular anomaly community! 🩷

11/04/2025

From the bottom of our hearts, 💜 we are truly thankful for all of you who made our event a huge success!
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You're Golden.✨
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Many more posts to come, but we just wanted to let everyone know how much you are appreciated!
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With hugs, kisses and purple polka dots,
The Pennsylvania Purple Polka Dot Race Committee
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10/05/2025

Guts and Glory 2025 Digestive and Wellness Expo! 🍎
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I loved being part of this annual event promoting all things wellness, and sharing the mission of ReMARKable you! I even got to do a little remarkable face glitter on peas and carrots. 🫛🥕✨
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As a wellness vendor at this health fair since 2022, it is an honor to be invited back every year to provide education about vascular anomalies and make community connections to share my youth outreach programs and information about the Pennsylvania Purple Polka Dot Race.
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Thank you so much to My Gut Instinct for a wonderful day!
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And never forget, what makes you different makes you ReMARKable! 💕
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PA Purple Polka Dot Race
Vascular Anomalies Alliance
Vascular Birthmarks Foundation Global Ambassadors
Vascular Birthmarks Foundation
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09/21/2025

This is your sign to REGISTER TODAY!✅
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The Pennsylvania Purple Polka Dot Race is coming soon on Sunday, November 2nd and WE NEED YOU to help us raise money for Children's Hospital of Philadelphia. 💜
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Join us today by following the link in our bio, and please share our event with your friends!
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PA Purple Polka Dot Race
Purple Polka Dot Race
Miss PA Scholarship Foundation, Inc.
Children's Hospital of Philadelphia
Vascular Anomalies Alliance
Miss Lancaster County Scholarship Organization
Miss Pennsylvania's Teen
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08/26/2025

Wondering 💭 what our race is all about? Swipe through to learn more! 💜
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Don't forget... REGISTRATION IS OPEN NOW!! ✅ Register Here ➡️ https://runsignup.com/Race/PA/Chesterbrook/PAPurplePolkaDotRace
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PA Purple Polka Dot Race
Miss PA Scholarship Foundation, Inc.
Children's Hospital of Philadelphia
Purple Polka Dot Race
Vascular Anomalies Alliance
Miss Lancaster County Scholarship Organization
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