Cure ARS

10/09/2026

UK Families!!!

The amazing Dr. Horvath and team has launched a targeted Amino Acid Study for the mtARS genes.

Details on how to enroll can be found at this link

Status: Open to recruitment Background Amino acids are the building blocks of proteins. In order for the proteins to be ‘built’ the body needs both the amino acids and a small molecule called transfer RNA (tRNA). Mitochondrial tRNA synthetases (mt-ARS) are enzymes which are found in the mitochon...

09/18/2026

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Today is and you can take action by learning more about Mitochondrial ARS (Aminoacyl-tRNA Synthetase) Disorders and sharing this post. Visit UMDF's types page to learn the symptoms of mtARS disorders, how to cope with a diagnosis, and what UMDF is doing to help chart a path toward treatments and eventual cures of mitochondrial diseases like ARS. https://umdf.org/mtars/

A special thanks to our fellow Mitochondrial Disease Advocacy Coalition member Cure ARS for helping us develop the content!

09/18/2026

💚 Today is mtARS Awareness Day! 💚

Today, during World Mitochondrial Disease Week, we’re shining a light on mtARS disorders—the rare mitochondrial diseases that unite our CureARS community. 🧬💚

Help us spread awareness today by wearing GREEN! 💚 Whether it’s a shirt, ribbon, socks, or anything green, we’d love to see you showing your support for our mtARS warriors and families.

📸 Share a photo to your Instagram or Facebook story and tag us so we can reshare it to our story! Let’s fill our feeds with GREEN and show just how strong this community is. 💚

Together, we can raise awareness, support families, and keep pushing toward better treatments and a cure.

09/18/2026

💚📚 World Mito Week is the perfect time to meet Chondrie! 📚💚

Last year, we released Chondrie: The Tiny Battery with a Big Job with one simple goal: to help children understand mitochondrial disease in a way that feels gentle, relatable, and empowering.

Through Chondrie’s story, kids learn about the tiny “batteries” inside our cells, why energy can sometimes be harder for kids with mitochondrial disease, and how our differences never take away from the incredible things that make each child special. 💚

Even more meaningful, Chondrie was inspired by real children living with mitochondrial disease and the different ways mito can affect their everyday lives.

During , we hope Chondrie can help start conversations in classrooms, families, and communities about mitochondrial disease, disability, inclusion, and kindness. 🦋

📖 Chondrie: The Tiny Battery with a Big Job is available now on Amazon ➡️ https://a.co/d/05eJwcnL

And best of all, proceeds support CureARS and our mission to advance research and find treatments for mtARS disorders. 💚🧬

09/17/2026

💚 Too many people with mitochondrial disease wait years for answers. 💚

For many families, the road to a mitochondrial disease diagnosis is long and complicated—filled with different specialists, unexplained symptoms, missed connections, and far too many unanswered questions.

That’s why awareness matters.

When more people recognize mitochondrial disease, we can help lead to earlier diagnoses, better care, greater understanding, and more research. And for families living with rare forms of mitochondrial disease like mtARS disorders, that research is desperately needed.

This World Mitochondrial Disease Week, help us put mito on the map. 🌎💚

Share a post. Tell someone about mitochondrial disease. Wear green. Start a conversation. Every person who learns about mito is one more person who can help make these rare diseases a little less invisible.

Together, we can turn awareness into action—and action into hope for answers, treatments, and one day, cures. 💚

09/15/2026

It’s Mitochondrial Disease Awareness Week. 💚

It’s little moments like last night that remind us exactly why we started CureARS. Our children deserve treatments, hope, and a future. We need a cure.

Please donate and help us fund the research that can lead us there. 💚

09/15/2026

💚 It’s World Mito Week! 💚

But what exactly is mitochondrial disease?

Mitochondria are often called the powerhouses or batteries of our cells because they help produce the energy our bodies need to function. When mitochondria don’t work properly, cells may not have enough energy to do their jobs — and that can affect almost any part of the body.

Mitochondrial disease is actually a group of rare genetic conditions, and no two people are affected exactly the same way. Symptoms can involve the brain, muscles, heart, vision, hearing, digestive system and more.

At CureARS, we’re working to raise awareness, advance research, and ultimately find treatments and cures for mitochondrial aminoacyl-tRNA synthetase (mtARS) disorders.

This World Mito Week, help us put mitochondrial disease on the map. 💚🌎

09/14/2026

Keep an eye out for awareness initiatives taking place during . Mark your calendar for:

• Leigh syndrome Awareness Day – Thursday, Sept. 17

• mtARS Awareness Day: Friday, Sept. 18

• LHON Awareness Day: – Saturday, Sept. 19

• Light Up for Mito – Saturday, Sept. 19

• LBSL Awareness Day – Sunday, Sept. 20

Participating in an awareness event? Tag so we can see and share it with the community.

Visit: https://umdf.org/world-mitochondrial-disease-week/

09/14/2026

💚 World Mito Week is about more than raising awareness — it’s about turning awareness into ACTION! 💚

This week, we’re asking our CureARS community, friends, and families to help by making our voices heard in Washington. 🏛️

The Mitochondrial Disease Advocacy Coalition is calling on advocates across the country to ask their U.S. House representatives to join the Congressional Mitochondrial Disease Caucus.

It only takes a few minutes to send a prewritten letter, but when our community speaks together, our collective voice can make a powerful impact. Every voice matters. Every advocate matters. And every step brings mitochondrial disease closer to the attention, funding, and action our families deserve. 💚

📣 Take action today and help us put mitochondrial disease on the Congressional agenda!

Send your letter / Take Action

✅ https://umdf.secure.nonprofitsoapbox.com/mitocaucus?fbclid=IwdGRleAUU-ONwZG9mBWZkaWQWUOZmwlU3VAgT8A7h1l4D1HaZDbvjYWV4dG4DYWVtAjExAHNydGMGYXBwX2lkCjY2Mjg1NjgzNzkAAR6AUzzuhY86O0_G4igVOo0z91vY6rbRdW5fnwRLveI8oUsHS91qGmDAW3hTdA_aem_M_RXoTUh8EcNtMWdoZtCRA

09/14/2026

💚 World Mitochondrial Disease Week starts TODAY! 💚

This World Mito Week, we’re helping put mito on the map. 🌎💚 Every story shared helps more people understand mitochondrial disease. Every conversation creates awareness. And every voice reminds the world that our rare community deserves answers and hope.

💚 Join the global movement. Share your story. Help us put mito on the map.