Kelton Christopher James Peter was born on April 18th, 2012 and passed away 8 short days later due to complications arising from a rare genetic defect, Trisomy 13. God had a greater purpose for Kelton in heaven than here on earth, and we learned more from Kelton in those 8 days than we could have ever envisioned learning in a lifetime. As soon as Kelton was born, however, he had difficulty breathi
ng on his own and was intubated. That night, April 18, Kelton was transferred to St. Louis Children's Hospital in his own personal “rocket ship” accompanied by MiMi Peter. We, however, had to remain in Quincy until Stephanie was well enough to make the 2 hour trek south to be with our son. A day and a half after having a c-section, we convinced the doctors that Stephanie was well enough to travel, which I believe is a new hospital record for release time. Louis, we discovered that Kelton had a rare genetic defect known as Trisomy 13 . Trisomy 13 is a disorder in which every cell in Kelton’s body had an extra 13th chromosome. Thus, Kelton had 47 chromosomes instead of the normal 46. This extra chromosome causes numerous birth defects. Most of these are primarily midline defects such as heart defects, and the cumulative effects are generally fatal. God has a plan, and it was to ensure Kelton made it safely here on Earth so that he could positively impact our lives and subsequently help many others in need. Where the name “Forever Kelton” originated is an interesting story as well. Kelton’s eldest sister, Victoria, has somewhat of a “Sixth Sense" and created a poster with "Forever Kelton" on it while Stephanie was in labor, long before we knew Kelton was a very sick little boy. This poster traveled with us to St. While we were all in Kelton’s room in the NICU saying our “Good Byes”, Victoria pulled out a $5 bill that she had found on the ground during lunch, and announced that she wanted to be the first to donate money in Kelton’s memory. She then wondered what we should call it, and we all looked at her poster hanging on the wall and said "Yeah! That's it! We'll call it Forever Kelton!"
The first Forever Kelton Warrior Weekend held April 19th, 20th & 26th, 2013 raised $17,500. This year's events to be held May 30th- June 1st, 2014. Funds generated will be used to establish an endowment in Kelton’s honor under the aegis of St. Louis Children’s Hospital, and all funds will be used to support NICU research activities.