Hope for EBS MD

Hope for EBS MD There is HOPE. We are two sisters, Andrea Underwood (age 30) and Veronica Lewis (age 28) who were born with EBS MD. Our bio is now posted on the wall.

We knew we had EBS from birth and were diagnosed with MD in our late teens.

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06/23/2022

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WE HAVE OUR FIRST DRUG APPROVED for the EB community!!! Amryt's drug, Filsuvez, was approved this morning in the European Union. Truly exciting news for the EB community. Congrats and thank you to Amryt Pharma.

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06/22/2022

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Congratulations to Krystal Bio for submitting their application for approval to the FDA for their gene therapy for EB. B-VEC has shown complete wound healing & allows cells to create collagen 7.

This is a big day for those w/ EB. Our first gene therapy is now up for approval.

Yes you are....
04/24/2021

Yes you are....

10/15/2020

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Yes! 🍀
09/10/2020

Yes! 🍀

Keep the hope. ♥️
05/31/2020

Keep the hope. ♥️

Approach may lead to new treatment approach for osteoarthritis, obesity

Celebrate the good things in your life. With all the covid-19 news everywhere you look it’s hard to see what’s right in ...
05/23/2020

Celebrate the good things in your life. With all the covid-19 news everywhere you look it’s hard to see what’s right in front of you. 🌷

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08/17/2019

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07/26/2019

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Wow this is pretty cool!!
07/12/2019

Wow this is pretty cool!!

A local campaign called  is looking to spread awareness and bring together people of all abilities.

06/30/2019

Address

Prosser, WA
99350

Telephone

+15097810327

Website

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