Lupus/ Fibromyalgia The Battle of The Unknown.

Lupus/ Fibromyalgia The Battle of The Unknown. A support page for everyone who needs info on Lupus and Fibromyalgia. Both are misunderstood disabilities. Allison was Diagnosed at 18 and is now 19.

The term lupus (Latin for wolf) is attributed to the thirteenth century physician Rogerius who used it to describe erosive facial lesions that were reminiscent of a wolf bite. Tamara was Diagnosed with Lupus in 1987 and Fibromyalgia in 2007. Tamara is now 38.

06/08/2018

https://suicidepreventionlifeline.org/
Life is Hard, and no one can get through it without positive help and support. That does not mean you are alone. There are those who know what you are dealing with. You are not alone. It is a battle and you need tools to fight back. You are a strong worrier so fight back strong and know that you can get through this. If you feel like you need help, pick up the phone. Call 1-800-273-8255 or click on the link. They have an online Chat Button.

Keep in mind that this time of year is going to be hard on you.  Here are some things to keep in mind.
12/04/2017

Keep in mind that this time of year is going to be hard on you. Here are some things to keep in mind.

High expectations, money woes, and other holiday hazards can spell trouble for those prone to depression.

I feel like this some days.  Which way is up?
09/08/2017

I feel like this some days. Which way is up?

Family History is not the doctor being nosey.  It is very important in helping look into hereditary illnesses or possibl...
05/19/2017

Family History is not the doctor being nosey. It is very important in helping look into hereditary illnesses or possible inherited health issues. It is best to go as far back as Great Grand Parents. Recently my daughter went to the doctor and the doctor wanted a family history. I provided her with my health issues, and what I though was my mom’s issues but I did not know my dad’s issues or her father’s family issues. I cannot get my father’s family history because I do not have a relationship with that side of the family and they probably would not like to disclose any illness even if I am blood.

I did research her father’s family history and was able to get that. However, it was not until recently that I discovered my mother held to important illnesses from us for almost 20 years. I am not sure if it is just that generation or she just did not think that our doctors needed to know because of testing today. However, it is very important and can help prevent needless testing and suffering. So to be on the safe side the doctor did an DNA check for illness. This will be passed down to her kids etc.

I am not angry with my mother, I do not really know why she waited or if she just did not believe the doctor. But it makes a big difference in how my daughters doctors treat her. It also helps them to believe that she does have an illness and that there is a history of that illness.

Everyone should have a family tree but, what we need to do is do a medical family tree and keep it in file and pass it down. Having an illness is nothing to be ashamed of and sharing with your family that may be directly affected, may save their life. The older the generation or the position they hold in society may make it harder to get accurate information but press on and keep at it. Keep a medical family tree and update it yearly. Make sure all your doctors have a copy with current date. If you can get a copy of your relatives diagnoses for your file, please do so if they let you and never share their information with anyone other than the doctor. Look up HIPA regulations online to find out their rights and your rights.

05/13/2017

One of those days.

For the guys who suffer, you are a hero.
05/10/2017

For the guys who suffer, you are a hero.

You are a warrior.
05/10/2017

You are a warrior.

http://www.healthline.com/health-slideshow/lupus-sun-exposureDid you know that the sun can cause elargment of your organ...
05/01/2017

http://www.healthline.com/health-slideshow/lupus-sun-exposure
Did you know that the sun can cause elargment of your organs and in some cases organ damage.

If you have lupus, it’s important to protect yourself from sun exposure. Learn about the risks of photosensitivity and how to keep yourself safe.

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Prattville, AL

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